Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 In a message dated 3/6/2000 6:57:57 PM Pacific Standard Time, dwnestr@... writes: << downest maine which is on the new brunswick canada border family line back to early 1700,s we have many >> Do you have any PELTONS i your family? I am a distant PELTON from Maine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 hi everyone i am the father of a undiagnoised (still waiting for dna test)13 yr old girl my wife and i have been 12 yrs trying to find a diagnoises for her not much help with doctors they did not want to spend time searching so we did all the searching with help from our families finially my wife found a friend who got us into n.i.h. in washington d.c. since then we have a doctor that will search they did dna last august are checking for type x carlenes problems started when she was 7 months old we took her to the doc for an ear infection and while ther he gave her immunization shots well in a week her eyes turned yellow and tested her at non a non b hepetites which was false she was there for 2 weeks and when she went home we did not know what happened she did not walk until 18 months and still can only say a few words she has all the symptoms of cmt some i would say are severe according to the info we have found on the web our oldest dau. is 16 yrs old and has no symptoms i on the other hand have quite a few that i have recently found out about on the web and a family trate of problems with feet /hands /curved back /ect. that goes for many generations we live in brewer maine which is in the central part of the state but i am origanally from downest maine which is on the new brunswick canada border family line back to early 1700,s we have many question,s but will ask a little at a time it has been extremely frustrating not getting cooperation from doc,s we only have 1 neurologist in the state that will handle children and he is in portland 3 hrs away also would like to add our first born a son had the same thing happen when he had his immunization shots as carlene but his was worse and passed away at 11 months old for what reason we still don,t know my first question can or does this happen in cmt? well again hi everyone and i hope this is not to long but had to tell also is there any one else in the group from or near maine would like to talk to ya thanks brad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 In a message dated 3/6/00 10:34:31 PM Pacific Standard Time, jacee17@... writes: << << downest maine which is on the new brunswick canada border family line back to early 1700,s we have many >> Do you have any PELTONS i your family? I am a distant PELTON from Maine. >> Do you have any Badeau's my father side of the family all live in St. NB Quote Link to comment Share on other sites More sharing options...
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