possible new cmter ?

[Guest guest]

hi everyone i am the father of a undiagnoised (still waiting for dna

test)13 yr old girl my wife and i have been 12 yrs trying to find a

diagnoises for her not much help with doctors they did not want to

spend time searching so we did all the searching with help from our

families finially my wife found a friend who got us into n.i.h. in

washington d.c. since then we have a doctor that will search they did

dna last august are checking for type x carlenes problems started

when she was 7 months old we took her to the doc for an ear infection

and while ther he gave her immunization shots well in a week her eyes

turned yellow and tested her at non a non b hepetites which was false

she was there for 2 weeks and when she went home we did not know what

happened she did not walk until 18 months and still can only say a

few words she has all the symptoms of cmt some i would say are severe

according to the info we have found on the web our oldest dau. is 16

yrs old and has no symptoms i on the other hand have quite a few that

i have recently found out about on the web and a family trate of

problems with feet /hands /curved back /ect. that goes for many

generations we live in brewer maine which is in the central part of

the state but i am origanally from downest maine which is on the new

brunswick canada border family line back to early 1700,s we have many

question,s but will ask a little at a time it has been extremely

frustrating not getting cooperation from doc,s we only have 1

neurologist in the state that will handle children and he is in

portland 3 hrs away also would like to add our first born a son had

the same thing happen when he had his immunization shots as carlene

but his was worse and passed away at 11 months old for what reason we

still don,t know my first question can or does this happen in cmt?

well again hi everyone and i hope this is not to long but had to

tell also is there any one else in the group from or near maine would

like to talk to ya thanks brad