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Re: URGENT!! TAKING MIRAPEX or REQUIP? Need your help for my Mom!

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Sorry to hear about your Mom. I hope this is not to late for you. My

Mom is 82 and takes Mirapex. She has been taking it for several months

now and has severe RLS/PLMD. THe Mirapex has helped her tremendously,

she still has occasional nights where it doesn't seem to work, but for

the most part she is much more comfortable and able to deal with life

better. Hope this helps. Good luck to your Mom..

Debbie

, Ca.

41 and holding

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SurSiliImp@... wrote:

>

> From: SurSiliImp@...

>

> Hi Gang,

>

> My mother has an appointment at her neurologist tomorrow morning. She

already

> takes Sinemet but for Parkinson's Disease. She also has RLS. However, for the

> meantime, her RLS symptoms have come under good control since her abysmally

> low FERRITIN LEVEL (8) has come up plus B-12 shots (deficient) and ULTRAM

> before bed time (also helps back pain she frequently has).

>

> Mom's RLS symptoms had been severe before I jumped in with both feet

to find

> help for her through this Cyberspace Support Group, helping form a RLS Group

> in Central Florida, etc. She is 81.

>

> My Mom is going to ask her neurologist, sorry I am so late in asking

for your

> help, for a prescription for Mirapex or Requip for her Parkinson's symptoms

> which have progressively gotten worse. I have run off a bevy of things I was

> able to find on the Internet on each for her also. However, those who take it,

> in my opinion, are often the best source of information!

>

> She has already tried Premax but had too many side effects from it and

> Tasmar. Because of the profound liver problems reported by some who have taken

> Tasmar, she was told to stop by her neurologist without providing another

> agonist, which I question.

>

> If you have taken or presently take Mirapex (only reports I remember

several

> of you mentioning was insomnia but not due to RLS; the Sinemet often puts her

> to sleep so that might balance that out). Or, Requip, what side effects you

> had and dosages of each you take or were taking. Granted, she might have to

> take gradually higher doses then RLS patients would for Parkinson.

>

> Mom needs some help and encouragement on this. At least Mirapex has

been out

> since 7-2-97 and Requip, 9--22-97; not a whole lot of time but longer then

> Tasmar which had been out only a few months when she started it. Since many of

> you are taking Mirapex and I assume a few Requip, rather then deluge the

> support group, feel free to E-mail me directly (Sursiliimp@...). I will

> send out a compilation of the responses.

>

> Thanks so much for what you can do to try to help my Mom.

>

> Barbara

>

> ------------------------------------------------------------------------

>

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