Re: EMGs and a very strong child

[Guest guest]

Hello Dawn!

What will become of your girl? Something greate I´m sure! What an

inspiration she is for us CMT:ers.

I must agree with all describtions how painfull the EMG test is. Me and my

12 years old boy (Pierre) have done it but I will not let them do that on

my 8 years old boy (Patric). It´s obvious that he has CMT so why would I

Iet them do that test on him?

Pierre participated in a swimming competition yesterday for handicapped

children. He won one heat and was the last one in another heat. This

swimming with handicapped kids have been the most positive thing he has

done, both in a physical and a psycological way. Otherwise he doesn´t want

to move at all. I think his legs and arms feel like dead logs which he

only can move with willpower. So it´s wonderful to have found something

for him to do which makes him feel good about himself.

I have been very tired and exhausted the last month but now I feel like

I´m soon will be back in buisness again. I feel strong enough to clean the

kids room and that was a long time ago since I did.

Tonight I will go to a new restaurant here with my friend which is called

" The Danish inn " which seems to be very cosy. And I will not hear the word

" doctor " pronounced!!!

Have a nice weekand from Rose in (for the moment) sunny Sweden

[Guest guest]

Dawn,

You have every right to brag. Your daughter is an inspiration.

My 9-yr-old daughter is starting her first year as an MDA Goodwill

ambassador for eastern NC. I will have to show her your email about

Bethany! My Katey loves being involved with the MDA organization, from

summer camps to the Christmas parties to service work.

Ruth

>>

>

>>I also want to tell you about my little girl. She is the strongest

>person that I know. I know that I have talked about her before, but

>she really knows how to keep going. I need to be about to have half

>as much strength as she does.

>

>Bethany has CMT 1A and has been on local feed of the Labor Day

>Telethon since she was 3 years old. The local chapter really liked

>the work that she did so when she was 7 they asked her to be a local

>Goodwill ambassador. She accepted and was off and running. She talk

>to groups as small as 10 people then she graduated to much large

>groups. At 8 she was promoted to state ambassador and her greatest

>accomplishment at 8 was speaking to a group of over 400. She has

>more courage than most adults I know.

>

>Bethany is now a 4th year girl scout and also rides horse in the

>summer. No matter how busy her summer is she always finds the time

>to help other and to work with MDA on many events. She is also a

>mentor for a little boy who has CP in her school. Bethany has

>problems getting around with her AFOs and her handwriting will never

>be beautiful(accept in my eyes)because of the muscles in her hand,

>but she really doesn't care. She just wants to be a great person and

>will not let other people say who she is.

>

>Thanks for giving me a place to brag, sorry this is so long

>

>Dawn

>

>

>

>

>------------------------------------------------------------------------

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[Guest guest]

Dawn,

You have every right to brag. Your daughter is an inspiration.

My 9-yr-old daughter is starting her first year as an MDA Goodwill

ambassador for eastern NC. I will have to show her your email about

Bethany! My Katey loves being involved with the MDA organization, from

summer camps to the Christmas parties to service work.

Ruth

>>

>

>>I also want to tell you about my little girl. She is the strongest

>person that I know. I know that I have talked about her before, but

>she really knows how to keep going. I need to be about to have half

>as much strength as she does.

>

>Bethany has CMT 1A and has been on local feed of the Labor Day

>Telethon since she was 3 years old. The local chapter really liked

>the work that she did so when she was 7 they asked her to be a local

>Goodwill ambassador. She accepted and was off and running. She talk

>to groups as small as 10 people then she graduated to much large

>groups. At 8 she was promoted to state ambassador and her greatest

>accomplishment at 8 was speaking to a group of over 400. She has

>more courage than most adults I know.

>

>Bethany is now a 4th year girl scout and also rides horse in the

>summer. No matter how busy her summer is she always finds the time

>to help other and to work with MDA on many events. She is also a

>mentor for a little boy who has CP in her school. Bethany has

>problems getting around with her AFOs and her handwriting will never

>be beautiful(accept in my eyes)because of the muscles in her hand,

>but she really doesn't care. She just wants to be a great person and

>will not let other people say who she is.

>

>Thanks for giving me a place to brag, sorry this is so long

>

>Dawn

>

>

>

>

>------------------------------------------------------------------------

>PERFORM CPR ON YOUR APR!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>http://click.egroups.com/1/2121/7/_/616793/_/953358588/

>------------------------------------------------------------------------

>

>