Re: recently diagnoised cmt type 2

[Guest guest]

My husband has been diagnosed with CMT type 2. He has had a lot of problem

with pain - more so than is to be expected, so says his neurologist. His

feet and ankles are both pretty well atrophied, and he can not feel anything

on certain areas of his foot. However, he is back to work at a standing up

type job (he is only doing short shifts, and we will hopefully find something

different for him to do soon), and he is doing pretty well. We are trying to

take it one day at a time, though, and we are glad it isn't some condition

that is even worse. Just know that you are not alone.

Yours,

[Guest guest]

Hi, Vivien:

I have Type 2. Does he wear AFO's? I wear them inside of Keds Comfort

s and the plastic that goes under my feet plus the cushioning of the

shoes help with any walking pains. However, I am in a scooter now possibly

because of a tremendous weight gain and the doctors don't want me falling

and breaking any more bones in my feet which had been happening. I have had

a slow progression in 30 yrs. and hoping to have 30 more years of slow

progression. My goal in life is to lose this weight which is extremely hard

for me. I was diagnosed at age 8 and had a triple arthodesis at age 12.

The AFO's came only at age 38 or 39 and I've been in a scooter now for 6

years about. I don't have any pain just soreness from doing too much of one

thing one day and not doing anything the next, etc. I'm getting back into

water walking in June that will help me physically as well as emotionally as

I tend to be a little depressed about all this - mainly the weight thing not

the CMT. My b-day is tomorrow and I'll be 49. I have one year to get it

all together before I'm 50!!!!! Donna

Re: recently diagnoised cmt type 2

>My husband has been diagnosed with CMT type 2. He has had a lot of problem

>with pain - more so than is to be expected, so says his neurologist. His

>feet and ankles are both pretty well atrophied, and he can not feel

anything

>on certain areas of his foot. However, he is back to work at a standing up

>type job (he is only doing short shifts, and we will hopefully find

something

>different for him to do soon), and he is doing pretty well. We are trying

to

>take it one day at a time, though, and we are glad it isn't some condition

>that is even worse. Just know that you are not alone.

>

>Yours,

>

>

>------------------------------------------------------------------------

>Failed tests, classes skipped, forgotten locker combinations.

>Remember the good 'ol days

>http://click.egroups.com/1/4053/10/_/616793/_/959220994/

>------------------------------------------------------------------------

>

>

[Guest guest]

Hi, Vivien:

I have Type 2. Does he wear AFO's? I wear them inside of Keds Comfort

s and the plastic that goes under my feet plus the cushioning of the

shoes help with any walking pains. However, I am in a scooter now possibly

because of a tremendous weight gain and the doctors don't want me falling

and breaking any more bones in my feet which had been happening. I have had

a slow progression in 30 yrs. and hoping to have 30 more years of slow

progression. My goal in life is to lose this weight which is extremely hard

for me. I was diagnosed at age 8 and had a triple arthodesis at age 12.

The AFO's came only at age 38 or 39 and I've been in a scooter now for 6

years about. I don't have any pain just soreness from doing too much of one

thing one day and not doing anything the next, etc. I'm getting back into

water walking in June that will help me physically as well as emotionally as

I tend to be a little depressed about all this - mainly the weight thing not

the CMT. My b-day is tomorrow and I'll be 49. I have one year to get it

all together before I'm 50!!!!! Donna

Re: recently diagnoised cmt type 2

>My husband has been diagnosed with CMT type 2. He has had a lot of problem

>with pain - more so than is to be expected, so says his neurologist. His

>feet and ankles are both pretty well atrophied, and he can not feel

anything

>on certain areas of his foot. However, he is back to work at a standing up

>type job (he is only doing short shifts, and we will hopefully find

something

>different for him to do soon), and he is doing pretty well. We are trying

to

>take it one day at a time, though, and we are glad it isn't some condition

>that is even worse. Just know that you are not alone.

>

>Yours,

>

>

>------------------------------------------------------------------------

>Failed tests, classes skipped, forgotten locker combinations.

>Remember the good 'ol days

>http://click.egroups.com/1/4053/10/_/616793/_/959220994/

>------------------------------------------------------------------------

>

>

[Guest guest]

Hi, Vivien:

I have Type 2. Does he wear AFO's? I wear them inside of Keds Comfort

s and the plastic that goes under my feet plus the cushioning of the

shoes help with any walking pains. However, I am in a scooter now possibly

because of a tremendous weight gain and the doctors don't want me falling

and breaking any more bones in my feet which had been happening. I have had

a slow progression in 30 yrs. and hoping to have 30 more years of slow

progression. My goal in life is to lose this weight which is extremely hard

for me. I was diagnosed at age 8 and had a triple arthodesis at age 12.

The AFO's came only at age 38 or 39 and I've been in a scooter now for 6

years about. I don't have any pain just soreness from doing too much of one

thing one day and not doing anything the next, etc. I'm getting back into

water walking in June that will help me physically as well as emotionally as

I tend to be a little depressed about all this - mainly the weight thing not

the CMT. My b-day is tomorrow and I'll be 49. I have one year to get it

all together before I'm 50!!!!! Donna

Re: recently diagnoised cmt type 2

>My husband has been diagnosed with CMT type 2. He has had a lot of problem

>with pain - more so than is to be expected, so says his neurologist. His

>feet and ankles are both pretty well atrophied, and he can not feel

anything

>on certain areas of his foot. However, he is back to work at a standing up

>type job (he is only doing short shifts, and we will hopefully find

something

>different for him to do soon), and he is doing pretty well. We are trying

to

>take it one day at a time, though, and we are glad it isn't some condition

>that is even worse. Just know that you are not alone.

>

>Yours,

>

>

>------------------------------------------------------------------------

>Failed tests, classes skipped, forgotten locker combinations.

>Remember the good 'ol days

>http://click.egroups.com/1/4053/10/_/616793/_/959220994/

>------------------------------------------------------------------------

>

>

[Guest guest]

Hello Brad,

I am 52 and have CMT Type 2. What would you like to know? A short synopsis

here. I've three grown children who also have CMT. I wear braces on both of

my legs. My hands have atrophied to a great degree, making fine motor skills

difficult. I hold down a full time job as an assistant at a middle school.

This affords me a lot of time off, which I need. I find fatigue is my worse

symptom. I also have different types of pains. But overall, I'm a very happy

person, who presses most of the time. If you learn to accept CMT and hold

your head up high and keep your sense of humor, then you will find CMT much

easier to live with.

If you would like any more info, you may email me: Flyingk@...

Good Luck and keep me posted on how you are doing, please.

from Indy