Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 Welcome Jeannine, You sound like you have my exact symptoms. I have the same problems swallowing....I always pretty much related it to the surgeries I had....but the more I learn from the list I am beginning to really think differently. I have the times too(often) when I can't quite seem to swallow my own saliva and often start to choke. When I had both my surgeries they went in thru my throat and from what I was told placed my vocal cords to one side and went in to do fusion. I had a herniated disk. This kind of scares me as to what I have to look forward to. Thanks for writing about this. Cathy CSCluv** http://community.webtv.net/cat926/CATHYSCOOLCATCORNER Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 Re: Digest Number 247 >Welcome Jeannine, >You sound like you have my exact symptoms. I have the same problems >swallowing....I always pretty much related it to the surgeries I >had....but the more I learn from the list I am beginning to really think >differently. I have the times too(often) when I can't quite seem to >swallow my own saliva and often start to choke. When I had both my >surgeries they went in thru my throat and from what I was told placed my >vocal cords to one side and went in to do fusion. I had a herniated >disk. This kind of scares me as to what I have to look forward to. >Thanks for writing about this. >Cathy > > I have the same problems with my CMT. Its not common, or as your Dr. seems to think, MILD case of CMT? My neurologist says my CMT is taking a rare course, I have Bulbar Palsy with it. My throat is atrophied and my neck and right shoulder also. I have a cold now and nearly choke to death when I cough, (phlegm). With this cold its affected my breathing, I cannot take any deep breaths, only shallow ones. I cough and then my atrophied throat spasms and I cannot breath. Very scary last few days for me. I hope to get into see my Dr. in the morning. the more I hear from CMTer's around the world the more I'm convinced The Medical Profession is in the dark regarding the symptoms of CMT. They are still using the old standard set of symptoms, I have heard that CMT is getting worse with each generation, the Dr's need to do more surveys, research on symptoms of CMTer's as we all KNOW there is really no set in cement symptoms for each type of CMT. It seems to be crossing the lines of what type has what symptom. Such as type 1 or 2 doesn't have such and such symptom with it when we know it does and can have those symptoms. We are proof of that. I wish the Medical Professional's would wake up and take a stand for CMT! Instead of sticking their heads in the sand and and writing us off as Oh Well there is no cure and there is nothing to be done about it. Sorry guess its my day to complain and squawk about our great Medical care available to us. >Becky M. Quote Link to comment Share on other sites More sharing options...
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