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rlssupport (AT) onelist (DOT) com wrote:

> We are proud as punch of our new web site!

> http://www.onelist.com

> Onelist: The leading provider of free email community services

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

>

> There are 25 messages in this issue.

>

> Topics in today's digest:

>

> 1. Re: How to Unsubscribe; I am not -- this for others

> From: SurSiliImp@...

> 2. Re: Juli

>

> 3. Re:

>

> 4. Re: Juli

> From: EVANBAER@...

> 5. Re: Pregnancy and RLS

>

> 6. Re: RLS group, what has happened?

>

> 7. Re: A Farewell Note

>

> 8. Group meltdown

>

> 9. Corrie unsubscribing

>

> 10. Re : Pain in legs

> From: Vkeykey2@...

> 11. Corrie unsubscribing

>

> 12. General comment upon reading 151 RLS msgs

>

> 13. Re: RLS group, what has happened?

>

> 14. Re: Re : Pain in legs

> From: Vkeykey2@...

> 15. Gloria unsubscribing

>

> 16. Gloria unsubscribing

>

> 17. Re: RLS

>

> 18. RLS 201

> From: KMTW4825@...

> 19. educate a newbie

>

> 20. Ibprofen/Heat

>

> 21. Re: RLS: Dr. Meadow/In Dreath of Night

> From: SurSiliImp@...

> 22. homeopathic road

>

> 23. Re: Re : Pain in legs

>

> 24. Re: homeopathic road

>

> 25. Living a near normal life

>

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 1

> Date: Wed, 31 Mar 1999 17:03:49 EST

> From: SurSiliImp@...

> Subject: Re: How to Unsubscribe; I am not -- this for others

>

> Hi,

>

> After subscribing, you received this on how to unsubscribe and were told to

> save it. Obviously, it is not sufficient to send a note to the group saying to

> unsubscribe you. They do not control Onelist's data base. You have to go to

> the below yourself.

>

> Barbara

>

> Subj: You have been added to rlssupport (AT) onelist (DOT) com

> Date: 10/25/98 6:31:07 PM Eastern Standard Time

> From: rlssupport-unsubscribe-169-sursiliimp=aol.com (AT) onelist (DOT) com (ONElist)

> To: sursiliimp@...

>

>

> Hello,

>

> This is the ONElist Mailing List Communities service.

>

> You have been added by the moderators to the following list:

>

> rlssupport

> Cyberspace RLS (Restless Leg Syndrome) Support Group

>

> Email Address: sursiliimp@...

> Password: xxxxxxx (deleted mine)

>

> Here is a welcome message provided by the list moderators:

>

> -------------

>

> This is just a confirmaton notice resulting from my adding your name to the

> new list server for the Cyberspace RLS Support Group. No action is required on

> your part. If you have any questions, please contact me.

> (jmjudson@...)

>

> -------------

>

> If you do not wish to be on this list, you can remove yourself by

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>

> If you have any questions about the list or your subscription, please

> contact the list managers. You can email them at the following email

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>

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>

> ONElist has a strict anti-spam policy. If you feel that the list owners

> violated that policy by subscribing you to this list, please send an

> email to abuse (AT) onelist (DOT) com.

>

> Now that you are subscribed, you can send email to the list through

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>

> rlssupport (AT) onelist (DOT) com

>

> Messages sent to that address will be sent to all other subscribers.

>

> To subscribe to new lists, change your current subscriptions to digest, or

> start new lists, please visit the ONElist web site, at http://www.onelist.com,

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> the password listed above.

>

>

> The ONElist Team

>

>

>

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 2

> Date: Wed, 31 Mar 1999 15:27:32 -0700

>

> Subject: Re: Juli

>

> Hi Juli,

>

> I'm Kim and I live in Alberta, Canada. I've had rls for as long as I can

> remember. I started with my GP which was no help. Then I finally got into

> a sleep clinic where they used me as a Guinea pig for a textbook study.

> After the study was done they said I has rls and plm, and that was

> basically it. He said that they could put me on some meds, the same ones

> used for Parkinson's but was not recommended because of the side effects.

> Went back to my GP where she put me on Baclofen (Lioresal), this helped a

> lot but by now I had bad insomnia and was on Sleeping pills everynight. I

> then went to a sleep specialist, and this helped me greatly. I take

> nothing now. The nights when my legs and arms act up I take IBprofen. I

> found that by getting off everything (very hard to do). I feel better now

> that I have in years. I just have to see how long it lasts. When my rls

> act up they are bad and for days on end. I seem to only get it now in my

> left arm and leg, does this happen to anyone else? I notice during the day

> that my muscles twitch a lot more. Maybe they are too pooped out at night

> from all the daytime rls :)

>

> KimB

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 3

> Date: Wed, 31 Mar 1999 15:38:20 -0700

>

> Subject: Re:

>

> Hi there,

>

> My legs start up also after exercise, especially walking. Hot tubs help

> mine too. I used to have low blood pressure also. Mine is 114/80 right

> now (I don't know if this is low or not). I find that any type of massage

> devise worsens mine. Unless my hubby does it with his hands....poor hubby!

>

> KimB

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 4

> Date: Wed, 31 Mar 1999 18:04:23 EST

> From: EVANBAER@...

> Subject: Re: Juli

>

> Welcome Juli,

> I had good luck printing some of the information from the various sites, like,

> Jodi's site and the So. Cal web site. I printed the information about

> medications out, and my general practitioner put me on Mirapex, which is great

> for me. Some people have gone through sleep studies and neurologist's.

>

> I think I got lucky with my Doctor, but make no mistake, I am a well informed

> consumer. I printed out some info for him, and put it in some folders, for

> any future patients that are suffering. He really appreciated it. Hope this

> helps.

>

> As most of you know, I live in Malibu, and today, we released six rescued seal

> lions back into the ocean, fully healed. It felt so good! Sweet Dreams,

> Elaine, Malibu

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 5

> Date: Wed, 31 Mar 1999 18:14:23 -0600

>

> Subject: Re: Pregnancy and RLS

>

> Know about what? Pregnancy? Thanks but no thanks. I knew how to get

> that way and did so twice and twice was enough. That was 14 years

> ago. I'd rather have RLS than be pregnant again. Geez, I'd even ride

> Rush Linbaugh's exercse bike with only a tie on before I would want to

> be pregnant again!

>

> Lindy B. in Southeast Texas

>

> Meadows wrote:

>

> > Lindy Bingham: Pregnancy is frequently related to RLS but there are

> > other things you need to know about it. Log onto

> > www.mdrestlesslegs.com Author

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 6

> Date: Wed, 31 Mar 1999 18:24:46 -0600

>

> Subject: Re: RLS group, what has happened?

>

> Debbie, et. al

> Sorry to hear ya'll are leaving the group. I, too, came aboard when was

around. It also

> was a time when the group was small and very cohesive. With any group,

organization, etc., as it

> grows, so do opinions, politics, etc. Yes, there have been some posts I

haven't cared for, but

> I still just hit the " Delete " key if I'm not interested. I'm not going to cut

off my only true

> form of RLS support because someone didn't answer my questions or I didn't

like the way someone

> answered one. I have had many questions. Some have been answered, some have

not. Hey, just

> ask the question again. I guess that's just the school teacher in me--if you

don't get the

> answer you want the first time, ask it again. In my business, you still may

not get it!!!

again>

>

> Lindy B. in Southeast Texas

>

> Debbie A Rupp wrote:

>

> >

> >

> > I have given this a lot of thought over the past couple of weeks. I have

> > belonged to this group since was the moderator and passed the baton

> > to Jodi. I have gotten a lot of information from this group in the past,

> > and have come to think of some of the members as family.

> > But this group has changed, not that change is a bad thing, but I have

> > noticed a negativity in this group that hasn't been there before. I know

> > we are all tired and that makes us grouchy, but there have been some mean

> > spirited things said over the last month or two. I have come really

> > close to unsubscribing myself on numerous occasions, perhaps I will yet.

> > I too asked a question of the group a week ago, and got one response.

> > The group was too involved with the Arthur deal to notice anyone else. I

> > hope the newbies to this group will stay a bit longer and see if this

> > currant trend will correct itself. There are some wonderful people on

> > this group who are caring and knowledgeable. ( a Dr.? We could

> > learn a lot from a martian!)

> > Most of my support now comes from letters written off group to individual

> > members. This list has gotten off (in my opinion only) the support issue.

> > We seem to have lost our open mind and reject anything new. I missed

> > the " Arthur " deal, I guess that started in a chat room, but I sure read

> > all the posts about him. I deleted all of them because there is no room

> > for negativity in my life, I am fighting this disease just like all the

> > rest of you, and I don't want to get brought down, when I have to fight

> > so hard just to smile at my kids and get through the day without the

> > black cloud of doom hanging over my head. I'm sure I will get blasted

> > for this, but that's okay, I feel I had to say something. I will truly

> > miss the friends that I have made on this group, but it has become

> > something I don't want to be involved with, I spend my morning scanning

> > each email and deleting most of them. I hope the friends I have made on

> > this group will continue to email me, I will miss you. To the newbies

> > again, hang in there, this too shall pass...

> > Peaceful days and nights to all.

> >

> > Debbie

> > , Ca

> > 42

> >

> > ___________________________________________________________________

> > You don't need to buy Internet access to use free Internet e-mail.

> > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

> > or call Juno at (800) 654-JUNO [654-5866]

> >

> > ------------------------------------------------------------------------

> > Ideas on how we can improve ONElist?

> > http://www.onelist.com

> > Check out the Suggestion Box feature on our new web site

> > ------------------------------------------------------------------------

> > This forum is for support only. The information posted to this List is for

support purposes

> > and is not intended to replace the examination, diagnosis and treatment of a

licensed

> > physician and no such claims are inferred.

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 7

> Date: Wed, 31 Mar 1999 18:31:03 -0600

>

> Subject: Re: A Farewell Note

>

> Go Doc, uh, I mean !!!! It reminds me of little boys pouting when

they don't get their

> way. BTW, I thought was unsubscribing!!! (OOPS! I guess that was

mean, huh? the devil

> made me do it!)

> Lindy

>

> RAINBOWPED@... wrote:

>

> > From: RAINBOWPED@...

> >

> > In a message dated 3/31/99 1:35:28 AM !!!First Boot!!!, DMcdon6452@...

> > writes:

> >

> > << I too am very disappointed with the attitudes of many people on this

site.

> > I

> > agree with your decision to give up this group. I have tried to engage them

> > with some new thinking for a few days and I can't see myself staying much

> > longer. I can't seem to get beyond an opening statement. They have a

> > tremendous thinking blockage. I see little future in being so cynical and

> > mistrustful. I wonder what they hope will come their way when they are so

> > negative. I wish you the best of luck with your future efforts.

> > Sincerely,

> > McDonagh, M.D. >>

> >

> > This group has a " thinking blockage. " I don't think so! This group has

some

> > of the most open-thinkers anywhere! We have to be as we beat our brains

> > trying to find relief, answers and solutions to our RLS.

> > Notice how someone who is trying to sale you something always gets very

> > critical and insulting when you tell them NO! If your product/service is

> > real, it will sell itself, especially to this group as we struggle to find

an

> > answer/cure to our RLS.

> >

> >

> > ------------------------------------------------------------------------

> > We have a new web site!

> > http://www.onelist.com

> > Onelist: The leading provider of free email community services

> > ------------------------------------------------------------------------

> > This forum is for support only. The information posted to this List is for

support purposes

> > and is not intended to replace the examination, diagnosis and treatment of a

licensed

> > physician and no such claims are inferred.

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 8

> Date: Wed, 31 Mar 1999 20:04:59 -0800

>

> Subject: Group meltdown

>

> Hi, Everybody!

> It seems while I was moving, that everyone has had a slight meltdown!!

> What is going on with you guys? I was offline for 6 days and everyone is

> leaving!! I think everyone needs a chill pill (remember Jill's ). I was

> very surprised to see all the bickering going on, and don't quite get

> it, but then again we are all sleep deprived, and we must all remember

> this!

> I, myself just deleted all the msgs. that bugged me, and did not read

> them. That is the easiest way to do it.

> Anyway, enough of that, and I think we should concentrate our thoughts

> on Jodi and sending her our good thoughts!

>

> CHEERS TO ALL!

> Donna/Vt

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 9

> Date: Wed, 31 Mar 99 20:20:11 Pacific Daylight Time

>

> Subject: Corrie unsubscribing

>

> Dear Corrie,

>

> I'm sorry that you have decided to leave the group. I was glad that another

" Canadian from Ontario "

> came on board, I guess a kind of geographical kinship, if you will.

>

> I'm sorry that you feel you had no response, but I did respond to one of your

questions over a week

> ago. It is below... You mentioned in your farewell note, that the amount of

e-mail is staggering.

> This is true, I received 52 alone today.... This is also the same reason why

sometimes

> someone's question is not answered in a speedy fashion. We all have lives &

kids & jobs & bosses

> & husbands/wives, etc....

>

> Regardless, I just wanted you to know that I did care, and wish you all the

best....

>

> Sincerely,

>

> Ana Casinha

> Woodbridge, Ont.

>

> --------

> >From: ana.casinha@...

> >To: rlssupport (AT) onelist (DOT) com

> >Subject: weight resistance

> >Date: March 23, 1999

> >

> >re: Corrie in Waterloo,

> >

> >I started weight resistance training about 2 mths ago to " strengthen " my

back, thus hoping to

> >alleviate rls. The back feels better, but not much change in legs & arms

yet. I've not given up hope.

> >

> >It has occured to me, though, to sneak out one of those 20 lb weights and use

it to smash my limbs...

> >

> >It was a really baaaaaad day. Here's hoping everyone has a good night.

> >

> >Ana Casinha

> >Woodbridge, Ontario

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 10

> Date: Wed, 31 Mar 1999 20:17:53 EST

> From: Vkeykey2@...

> Subject: Re : Pain in legs

>

> Group

> Don't write very often, but the pain in my legs for the last few days has been

> very bad, feel like they are going to burst. Sure is good to know I can vent

> here and you will understand. Meds seem to be working for the rls, but not the

> pain.

> Sure do hate to see all you people unscribing, we need all the input, just

> take what you like and leave the rest. (Use the delete) :-) I get a lot of

> help from everyone in some way.

> Thanks Rodney for taking your time to work on the survey. That should be

> interesting I plan to participate. Thanks to all of you for you input, you

> have sure helped me.

> Keep those e-mails coming.

> Versie 62 NC

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 11

> Date: Wed, 31 Mar 99 20:26:47 Pacific Daylight Time

>

> Subject: Corrie unsubscribing

>

> Dear Corrie,

>

> I'm sorry that you have decided to leave the group. I was glad that another

" Canadian from Ontario "

> came on board, I guess a kind of geographical kinship, if you will.

>

> I'm sorry that you feel you had no response, but I did respond to one of your

questions over a week

> ago. It is below... You mentioned in your farewell note, that the amount of

e-mail is staggering.

> This is true, I received 52 alone today.... This is also the same reason why

sometimes

> someone's question is not answered in a speedy fashion. We all have lives &

kids & jobs & bosses

> & husbands/wives, etc....

>

> Regardless, I just wanted you to know that I did care, and wish you all the

best....

>

> Sincerely,

>

> Ana Casinha

> Woodbridge, Ont.

>

> --------

> >From: ana.casinha@...

> >To: rlssupport (AT) onelist (DOT) com

> >Subject: weight resistance

> >Date: March 23, 1999

> >

> >re: Corrie in Waterloo,

> >

> >I started weight resistance training about 2 mths ago to " strengthen " my

back, thus hoping to

> >alleviate rls. The back feels better, but not much change in legs & arms

yet. I've not given up hope.

> >

> >It has occured to me, though, to sneak out one of those 20 lb weights and use

it to smash my limbs...

> >

> >It was a really baaaaaad day. Here's hoping everyone has a good night.

> >

> >Ana Casinha

> >Woodbridge, Ontario

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 12

> Date: Wed, 31 Mar 1999 20:23:13 -0500

>

> Subject: General comment upon reading 151 RLS msgs

>

> Congratulations on having survived Med School, Internship, Residency

etcetc. After 71 years on this planet titles before and after someone's name

fails to excite me. Anyhow, I did enjoy our little " back and forth " a week or

so again and I believe you did too. Let's do it again sometime...........

>

> Varicose sharicose!!! enough already.

>

> I too am sorry to see some sign off but what the hey, I've been here for

something like 2 years or more and am having a helluva time bitchin' ,

encouraging, laughing, crying, searching and comparing notes. No way is anyone

getting rid of me!!

>

> I may get carpal tunnel syndrome again from plunking away on the delete button

when things get too hairy but hey, que sera sera as ole Barney Fife used to say.

>

> I'm sorry too that everyone's questions go unanswered sometimes but I agree,

if you really want an answer ask it again and add " will someone please wake up

and answer ME? "

>

> I'm still into the Homeopathic thing and have gotten some books to look over

plus I've discovered a keen place in Middlebury where they're knowledgeable

about it. I got put on the list of folks to notify when they have a speaker

come down from Burlington (there are several MD's up there who have incorporated

Homeopathy in their practice). It's called the " gentle medicine " where the

patient, not the disease, is treated. Sounds weird but it works. After I know

a lot more I'll report if it helps my RLS along with my plethora of other

complaints. ;-)

>

> Meanwhile folks, stay calm, retain your sense of humour, be patient with us

and remember we're here to not only give out information on what's helping and

what's not but we're here to try to keep each other from sinking into clinical

depression, thoughts of suicide and even maybe wreaking havoc on the world

around us because of this awful malady that the outside world just doesn't seem

to understand or take seriously.

>

> CHEERS!!

>

> Jeanne and Mr. Biggles in Poultney VT

> Mr. Biggles sez " You humans got a lot to learn. Sometimes I wonder why God

put you in charge of us instead of the other way around........... "

> (he mumbles a lot)

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 13

> Date: Wed, 31 Mar 1999 20:41:08 -0500

>

> Subject: Re: RLS group, what has happened?

>

> Lindy, I too am a school teacher and I hear childish bickering all

> day. I really don't want to hear it all evening, however, I have

> learned so much from this group in a few days that I think I'll hang in

> there. Tomy in Ohio State Buckeye country!!!

>

> Lindy Bingham wrote:

> >

> >

> >

> > Debbie, et. al

> > Sorry to hear ya'll are leaving the group. I, too, came aboard when

was around. It also

> > was a time when the group was small and very cohesive. With any group,

organization, etc., as it

> > grows, so do opinions, politics, etc. Yes, there have been some posts I

haven't cared for, but

> > I still just hit the " Delete " key if I'm not interested. I'm not going to

cut off my only true

> > form of RLS support because someone didn't answer my questions or I didn't

like the way someone

> > answered one. I have had many questions. Some have been answered, some

have not. Hey, just

> > ask the question again. I guess that's just the school teacher in me--if

you don't get the

> > answer you want the first time, ask it again. In my business, you still may

not get it!!!

> again>

> >

> > Lindy B. in Southeast Texas

> >

> > Debbie A Rupp wrote:

> >

> > >

> > >

> > > I have given this a lot of thought over the past couple of weeks. I have

> > > belonged to this group since was the moderator and passed the baton

> > > to Jodi. I have gotten a lot of information from this group in the past,

> > > and have come to think of some of the members as family.

> > > But this group has changed, not that change is a bad thing, but I have

> > > noticed a negativity in this group that hasn't been there before. I know

> > > we are all tired and that makes us grouchy, but there have been some mean

> > > spirited things said over the last month or two. I have come really

> > > close to unsubscribing myself on numerous occasions, perhaps I will yet.

> > > I too asked a question of the group a week ago, and got one response.

> > > The group was too involved with the Arthur deal to notice anyone else. I

> > > hope the newbies to this group will stay a bit longer and see if this

> > > currant trend will correct itself. There are some wonderful people on

> > > this group who are caring and knowledgeable. ( a Dr.? We could

> > > learn a lot from a martian!)

> > > Most of my support now comes from letters written off group to individual

> > > members. This list has gotten off (in my opinion only) the support issue.

> > > We seem to have lost our open mind and reject anything new. I missed

> > > the " Arthur " deal, I guess that started in a chat room, but I sure read

> > > all the posts about him. I deleted all of them because there is no room

> > > for negativity in my life, I am fighting this disease just like all the

> > > rest of you, and I don't want to get brought down, when I have to fight

> > > so hard just to smile at my kids and get through the day without the

> > > black cloud of doom hanging over my head. I'm sure I will get blasted

> > > for this, but that's okay, I feel I had to say something. I will truly

> > > miss the friends that I have made on this group, but it has become

> > > something I don't want to be involved with, I spend my morning scanning

> > > each email and deleting most of them. I hope the friends I have made on

> > > this group will continue to email me, I will miss you. To the newbies

> > > again, hang in there, this too shall pass...

> > > Peaceful days and nights to all.

> > >

> > > Debbie

> > > , Ca

> > > 42

> > >

> > > ___________________________________________________________________

> > > You don't need to buy Internet access to use free Internet e-mail.

> > > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

> > > or call Juno at (800) 654-JUNO [654-5866]

> > >

> > > ------------------------------------------------------------------------

> > > Ideas on how we can improve ONElist?

> > > http://www.onelist.com

> > > Check out the Suggestion Box feature on our new web site

> > > ------------------------------------------------------------------------

> > > This forum is for support only. The information posted to this List is

for support purposes

> > > and is not intended to replace the examination, diagnosis and treatment of

a licensed

> > > physician and no such claims are inferred.

> >

> > ------------------------------------------------------------------------

> > Ta Da! Come see our new web site!

> > http://www.onelist.com

> > Onelist: A free email community service

> > ------------------------------------------------------------------------

> > This forum is for support only. The information posted to this List is for

support purposes

> > and is not intended to replace the examination, diagnosis and treatment of a

licensed

> > physician and no such claims are inferred.

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 14

> Date: Wed, 31 Mar 1999 20:38:46 EST

> From: Vkeykey2@...

> Subject: Re: Re : Pain in legs

>

> Ninette

> I live in Winston-Salem NC have been here over 40 years and love this area. I

> usually don't have pain in my legs either, but have had on and off for the

> past year. This round has been the worst. Gets fo bad sometimes just want to

> cry, have a hot tub and that helps but I can't stay in it all the time. I've

> thought meaby the weather has had something to do with it, just don't know.

> Versie 62 NC

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 15

> Date: Wed, 31 Mar 99 21:03:26 Pacific Daylight Time

>

> Subject: Gloria unsubscribing

>

> Dear Gloria,

>

> You wrote " And as for the e-mail!!! I hate not to open each letter as I might

miss some

> useful information, but for Pete's sake!!!! Most of the replies should be

> sent to the sender and not to the onelist group. What a waste of my time!!!

>

> I thought the purpose of the " onelist " was for shared emailing. Am I wrong?

>

> A few times I'm reading a response to something for which I have no clue what

was originally

> said and yet it has to do with RLS, then I realize that previous

communication was between them

> only. I could internalize it and feel left out, BUT I DON'T.

> I might just write back & say " Hey, what was that about? " . As it happens

> someone always comes along in the group and clarifies things anyway... You

never know, what

> you deem trivial can mean the answer to someone else and salvation from RLS so

sharing your

> comments is best, in my opinion.

>

> Now, if it's personal, sure thing, it doesn't belong on the onelist. I

haven't read anything yet that

> wasn't one way or another related to RLS.

> As I wrote to Corrie, I wish you all the best, even though, I suspect, my

emails were a

> waste of your time....

>

> Sincerely,

>

> Ana Casinha

> Woodbridge, Ont.

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 16

> Date: Wed, 31 Mar 99 21:03:58 Pacific Daylight Time

>

> Subject: Gloria unsubscribing

>

> Dear Gloria,

>

> You wrote " And as for the e-mail!!! I hate not to open each letter as I might

miss some

> useful information, but for Pete's sake!!!! Most of the replies should be

> sent to the sender and not to the onelist group. What a waste of my time!!!

>

> I thought the purpose of the " onelist " was for shared emailing. Am I wrong?

>

> A few times I'm reading a response to something for which I have no clue what

was originally

> said and yet it has to do with RLS, then I realize that previous

communication was between them

> only. I could internalize it and feel left out, BUT I DON'T.

> I might just write back & say " Hey, what was that about? " . As it happens

> someone always comes along in the group and clarifies things anyway... You

never know, what

> you deem trivial can mean the answer to someone else and salvation from RLS so

sharing your

> comments is best, in my opinion.

>

> Now, if it's personal, sure thing, it doesn't belong on the onelist. I

haven't read anything yet that

> wasn't one way or another related to RLS.

> As I wrote to Corrie, I wish you all the best, even though, I suspect, my

emails were a

> waste of your time....

>

> Sincerely,

>

> Ana Casinha

> Woodbridge, Ont.

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

> Message: 17

> Date: Wed, 31 Mar 1999 21:02:53 -0500

>

> Subject: Re: RLS

>

> Tried logging into this site and was told it was no longer available. Is

> the address listed below correct?

> ne, 59, Lawrenceville, NJ

>

> On Wed, 31 Mar 1999 09:44:25 -0600 Meadows drmead@...>

> writes:

> >

> >

> >Ekbom, a Swedish neurologist established the causes of RLS in 1960,

> >but

> >the medical establishment has ingnored his conclusions. Try logging

> >onto

> >www.mdrestlesslegs.com

> >Author

> >

> >

> >------------------------------------------------------------------------

> >

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  • 11 months later...
Guest guest

Hell Everyone,

Gretchen I have never been teased or bullied about my CMT but I do have

a handicap plate on my car and sometimes on a goodday I don't use the

handicap parking area because the walk is good for me but on the bad

days.....You guys all know what I mean by that.... I really need it and

some times I get some pretty nasty stares from people. As for Chance

(He is my Grandson) this is a serious thing here when a 7 yr old goes

after another with a shovel.....something is really wrong with this

picture....I am afraid the Police may have to get involved because Amy

has talked to the Mother and it seems the situation has gotten worse

since. We have talked to the local Newspapr and they are doing a story

about Chance and CMT so maybe we can educate some folks........Lets

hope!!

Take Care Everyone

Cathy

CSCluv**

http://community.webtv.net/cat926/doc

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

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