(No subject)

[Guest guest]

Hello Rhonda and everyone!

Hope you Rhonda can relax and enjoy when you are beeing scratched (if you

are) .

I must ask: what is a treadmill? I have read that several of you CMT:ers

on this list like this training. Is it some kind of " moving stairs " you go

up and and down from? I have been thinking of getting a " walk and run

machine " . I tried that once and really liked it. I felt it so easy to walk

and even run a bit on it when you could grab your hands on the handles.

What do you CMT:ers think is the best trainingmachine?

About stress: yes my different symtoms are getting much worse when I´m

stressed. And if

I am under stress a longer time I think the disease itself increases. But

what to do about stress? I feel very much stress about the fact that I

dont´t have doctors for me or my children

which I can talk to from my heart and trust. They have said to many times

that CMT is such a slight disease which not can cause problems like weak

hands, pain etc. I probably have to see it this way: for my childrens sake

it is my obligation and destiny to search for interested doctors, collect

information, educate myself and those doctors who will respond. I must say

I have found: for many doctors are their own prestige more important than

the health of their patients! But I have also found: the doctors can´t

help they know so little about CMTand when you dispite of that also have

very rare symtoms which not is described in a proper scientificly way the

doctors are in a hard postion. But still: they could at least listen and

search for information (like we have to do) and be more nice and

understanding!

I friend of mine wrote yesterday about this problem: Can´t you just say to

your doctor: " Excuse me but I don´t understand your male dialect " , mayby

I´ll try:).

Have a good time and try no to stress! Rose