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Re: bicycling

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<< I was told THEN to ride bikes! - the thought was it would strengthen my

legs. While I don't know if it does, I do like riding bikes, although, just

like everything else, I need to pace myself. >>

I believe this is another very individual matter. Some CMTers can and may

benefit, others can't or won't benefit, or may be harmed by doing it.

My mom's neuro didn't know why she was suddenly becoming so weak, and he

assumed this formerly very active woman had gotten lazy, so he told her to

buy a stationary bike and ride a few miles every day. She did that, and she

rapidly got weaker than ever. After a few weeks she was no longer even able

to get up on the bike. If I had know what was happening I think I would have

told her to stop sooner, but she was not diagnosed and no one knew what was

causing her weakness. The bike seemed to use up whatever reserve she had

left. From then on she got around with a walker, slowly and with tremendous

effort. Mom had always been fiercely independent, but after the bike incident

I knew I needed to pay much more attention to her, and make sure she was

safe, and I did.

In the chat room I've met a couple of people who are able to bike often, and

enjoy it. They believe it's helping them.

Different strokes for different folks, especially CMTers. Each person has to

find out his or her own abilities and limits.

Kat in Seattle

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Hello all CMTUS'ers!

I tried to post a few days ago, but something must have

gone wrong. So, I'll try it again :)

My pal, Steve, has CMT, and his Doctors haven't been

able to help him much. Has anyone tried anything in the

holistic/homeopathic area for relief, and if so, what?

I promised him I'd research it, but it a dead end on all

of my normal sources.

Best regards,

Fast

Wandering In Virginia

fast@...

bicycling

>

>

> Hi Alisha and everyone, does anyone else ride a bicycle? Ever since my

> original CMT diagnosis in '62, I was told THEN to ride bikes! - the

> thought was it would strengthen my legs. While I don't know if it does,

> I do like riding bikes, although, just like everything else, I need to

> pace myself.

>

> Gretchen

>

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>

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I ride a bike everywhere, it is a lot cheaper than running a car, and a lot

better for you overall. Round Ipswich there are lots of hills, that is a

challenge, because it is either cycle up them, or walk, and I know which is

easiest!

Dom

>

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS CMTUS (AT) onelist (DOT) com>

>Subject: bicycling

>Date: Wed, 15 Mar 2000 09:43:19 -0800

>

>Hi Alisha and everyone, does anyone else ride a bicycle? Ever since my

>original CMT diagnosis in '62, I was told THEN to ride bikes! - the

>thought was it would strengthen my legs. While I don't know if it does,

>I do like riding bikes, although, just like everything else, I need to

>pace myself.

>

>Gretchen

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