Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Hi sandra, I have 3 children, I found out as a small child that I have cmt and when I was 20 I had first child who is 6 now. I didnt have any pain caused from the cmt with her or with other 2 babies which were born in June of 98 and May of 99. I have however noticed that my cmt has gotten worse since having my last child. Yes, my legs were weaker when I was pregnant, but no pain and no medication. I delivered all three of them just fine and they were all full term. I had no problem with pushing them out as suggested in some of the things i read about cmt and delivery. I havent had any real pain with my cmt at all just weakness and frustation. if you have any question for me you can email me at coyote6598@... put cmt in the subject line please. Jeanne age 26 > I had two children within a year. June 83 and Dan May 84. At the time I didn't know I had CMT so consequently wasn't on any medication. I sailed through both my pregnancies but I did find that after about 28 weeks I couldn't hardly walk and standing etc was very painful. I also delivered earlier. at 34 weeks and Dan at 36 weeks. > I had another son in 91 again I was fine, except for the walking and the pain. > I've been reading the messages with interest regarding having children and the risks of passing CMT on to them. My father only found out earlier this month for definite that he had something wrong and that it's CMT (he's has it very mildly and is 61 now) and that he passed it on to me. He was naturally upset about it but sadly he said he'd wished he'd never been born. > Okay, so yes I got from him. I've had it all my life and have been disabled and in pain with it, but I've had up till now a damn good life and one that I've lived to the full. It hasn't been easy in any way with divorce, children, violent partner and working up to 18 hrs a day to pay for the kids and the house whilst on my own. And yes, to be honest looking back there are parts that given the chance I would change but you know, if I could change those parts I wouldn't be me. > I walked for 37 years, I've done things I shouldn't have done, but now what I have to do is change my lifestyle. At times I feel as if I'm fighting for my life, my identity because of what has happened, so quickly and so recently but I certainly have never wished I hadn't be born. Now I'm a mother, I adore my kids and yes I cry when they hurt and I wish I hadn't given it to them but it happened and now, we work things out together, so that they'll have a good and fruitful life. Hey I want grandkids... someday > Sue > Having children > > > Hi everyone, > > I have got a question to those of you who have cmt and have decided to > have children: > > I am 28 years old and I would like to have a child. What do I have to > expect during > pregnancy. I know, Kathleen told me a few months ago that there are > women who > needed a wheelchair because of the fact they were pregnant. But I guess > this is the > worst case. What did you experience? And was it a question for you > wheter having > children or not? How old were you when you had your child? What happened > during > pregnancy, did you have pain (I mean if you had pain before)? Did you > take medicine > like anti-depressants (prozac or so)? > > Thanks for your help. > > Best wishes from Germany, > > > > -------------------------------------------------------------------- ------------ > > > > -------------------------------------------------------------------- ------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Hi sandra, I have 3 children, I found out as a small child that I have cmt and when I was 20 I had first child who is 6 now. I didnt have any pain caused from the cmt with her or with other 2 babies which were born in June of 98 and May of 99. I have however noticed that my cmt has gotten worse since having my last child. Yes, my legs were weaker when I was pregnant, but no pain and no medication. I delivered all three of them just fine and they were all full term. I had no problem with pushing them out as suggested in some of the things i read about cmt and delivery. I havent had any real pain with my cmt at all just weakness and frustation. if you have any question for me you can email me at coyote6598@... put cmt in the subject line please. Jeanne age 26 > I had two children within a year. June 83 and Dan May 84. At the time I didn't know I had CMT so consequently wasn't on any medication. I sailed through both my pregnancies but I did find that after about 28 weeks I couldn't hardly walk and standing etc was very painful. I also delivered earlier. at 34 weeks and Dan at 36 weeks. > I had another son in 91 again I was fine, except for the walking and the pain. > I've been reading the messages with interest regarding having children and the risks of passing CMT on to them. My father only found out earlier this month for definite that he had something wrong and that it's CMT (he's has it very mildly and is 61 now) and that he passed it on to me. He was naturally upset about it but sadly he said he'd wished he'd never been born. > Okay, so yes I got from him. I've had it all my life and have been disabled and in pain with it, but I've had up till now a damn good life and one that I've lived to the full. It hasn't been easy in any way with divorce, children, violent partner and working up to 18 hrs a day to pay for the kids and the house whilst on my own. And yes, to be honest looking back there are parts that given the chance I would change but you know, if I could change those parts I wouldn't be me. > I walked for 37 years, I've done things I shouldn't have done, but now what I have to do is change my lifestyle. At times I feel as if I'm fighting for my life, my identity because of what has happened, so quickly and so recently but I certainly have never wished I hadn't be born. Now I'm a mother, I adore my kids and yes I cry when they hurt and I wish I hadn't given it to them but it happened and now, we work things out together, so that they'll have a good and fruitful life. Hey I want grandkids... someday > Sue > Having children > > > Hi everyone, > > I have got a question to those of you who have cmt and have decided to > have children: > > I am 28 years old and I would like to have a child. What do I have to > expect during > pregnancy. I know, Kathleen told me a few months ago that there are > women who > needed a wheelchair because of the fact they were pregnant. But I guess > this is the > worst case. What did you experience? And was it a question for you > wheter having > children or not? How old were you when you had your child? What happened > during > pregnancy, did you have pain (I mean if you had pain before)? Did you > take medicine > like anti-depressants (prozac or so)? > > Thanks for your help. > > Best wishes from Germany, > > > > -------------------------------------------------------------------- ------------ > > > > -------------------------------------------------------------------- ------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Jeannie I wish I could hold you in my arms and give you a great big hug. (Might knock you out with the metal in my wrist braces but never mind) My two eldest sons if they're home first have to start preparing dinner, if not my husband does it when he comes home. My three sons help with the housework, in fact everyone in this family has to muck in. My three kids hate CMT, my two eldest particularly because they have it too. They hate seeing their Mum in pain and seriously disabled as does my husband. But... you may very well hate me for this but I've got to say it. You ask your kids what would they prefer. A mother who is abled bodied and doesn't need their help but who may well be horribly cruel and hate them or a mother who is disabled but loves and adores them and does everything she possibly can do for them. I know what I would prefer. I think your kids are very lucky for having such a wonderful, caring Mum and I hope soon they will realise exactly what a treasure they have. Much love and many hugs Sue Re: Having children , when ever I was considering getting married my fiance and I talked about children. At that time I knew there was a 50/50 chance of my children having CMT. I had decided that my grandpa, dad and myself was doing just fine with having CMT so I wasn't too concerned. We had 2 yrs after we were married. During the pregnancy I had horrible morning sickness for about 2 months. In my 7th month I stated havng a sinsation of a pinched nerve in my spin. The doctors could never find anything wrong. However when this nerve (or whatever) go pinched (or whatever) I would loose my legs for a split second. Back then I had alot better abilities for walking and standing and keeping my balance, so I never actually hit the floor thank goodness. In my 9th month however it got worse and I could never walk alone. Someone was always by my side.... The same thing happened with my second pregnancy 3 years later. With each pregnancy my legs did get weaker and I was more fatigued. At times I could keep up with my daughter. But she was never allowed very far from me since I couldn't run or move fast. She learned to hug my body when ever I carried her so that my balance was stable. Oh, I guess I should tell you that in my family history I had a second cousin that during childbirth was paralysed from the waste down for 6 months. The doctors said it was becasue of the CMT. (nerves). I didn't know about this until I was already pregnant with my son. My hubby and I decided to adopt the rest of our children. So I had my tubes tied. We do have one adoted son (Jon). CMT with kids growing up: I think this is the hardest thing. It's very hard on the kids and it's hard on me to see it affect them. My daughter does not show any signs of CMT. (she only has week Knees). Mayby if had CMT it wouldn't have been so hard on her. She hates my CMT, she hates me for giving birth to her because of the CMT. She hates the thought that she might have the gene and might pass on CMT if she had children. The kids hate having to help me with housework because my legs won't last. They hate having to wait for me. They hate that I can't do thier car-pool or go on field trips with them like other moms. I have problems with this also. I wish I could do those things, but the fatigue can really be bad. I wish I had known my great grandmother who had CMT.... Maybe then I would've decided not to have children - but to adopt. Apparently my great grandma raised her kids from a chair that she scooted around on in the house. After she wore down the wood legs she would get another chair. I know that's there's going to be moms out there that disagree with this and think that I'm not good. BUT, I wish I had made the decision not to have children at all. I see the pain that my selfishness has caused.... I'm not getting better... I'm getting worse..... I know that some moms with CMT do just fine.... I wish I had been one of them... My kids shouldn't have to take care of themselves and me..... I should be taking care of them..... But, I can't..... Oh yes, I was not on any medications when I was pregnant at all. Jeanie In a message dated 7/22/00 10:57:38 AM Pacific Daylight Time, st@... writes: > >Hi everyone, I have got a question to those of you who have cmt and have decided to have children: I am 28 years old and I would like to have a child. What do I have to expect during pregnancy. I know, Kathleen told me a few months ago that there are women who needed a wheelchair because of the fact they were pregnant. But I guess this is the worst case. What did you experience? And was it a question for you wheter having children or not? How old were you when you had your child? What happened during pregnancy, did you have pain (I mean if you had pain before)? Did you take medicine like anti-depressants (prozac or so)? Thanks for your help. Best wishes from Germany, >> -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.