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Voluntary & Involuntary RLS

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Hi, Group:

I thought I would add my input to the above subject. I have found that

usually I start moving my legs before I'm even aware I am doing it...this is

in the daytime. In fact, it is really hard for me to sit still and do my

email, which is one reason I get so far behind. If I make a determined effort

to be still, then eventually, one of my legs just jumps anyway without any

warning.

I have PLMD, and one night recently, I forgot to take my Sinemet. I woke

during the night just thrashing and kicking and wondering what was wrong,

until I remembered I had not taken any medication before going to bed other

than Klonopin. This was around 2 a.m., and I can't take Sinemet on an empty

stomach, and I have to get up at 4 a.m. So, what I did was to get up and

take my usual dosage of Ultram and Neurontin, because they will settle my legs

down until I need to get up, and I won't be all hung over.

Connie, I know that many of us know what you were going through recently and

can certainly sympathize. I hope things are going better for you now.

Someone asked if any one else rocked back and forth. I am told by my mother

that I did this when I was in a baby pen, and to this day I still do it. My

mother asked me the other day why I was doing it, and I said, " I just have to

move. " I have no idea if this is part of RLS, but it does provide some

measure of relief. As with the RLS, I am usually rocking back and forth

before I realize I am doing it, and I have noticed that it most frequently

happens when I am stressed out about something.

Later.

Joyce F/58/ville,ARkansas

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