Guest guest Posted January 29, 1999 Report Share Posted January 29, 1999 My name is Jill, I'm 32, and new to the group. Three years ago I was diagnosed with " probable MS " . I also suffer from depression, and was previously taking Paxil, but recently my doctor switched me to Prozac for better results. Approx a month ago, I began getting this achey feeling in my legs, to the point where it's unbearable and I have to move to achieve comfort. I just saw the doctor 2 days ago for this problem, and he mentioned I could have rls. After researching this on the web, I am absolutley convinced that I have rls. I have a good relationship with my doctor, but he really kind of downplayed my symptoms(it's driving me crazy!!!)and didn't offer any input as to how to achieve relief. Has anyone out there experienced something similar? Do you have any advice? I'm a rather timid person, and was almost embarassed to even tell my doctor--I'm so afraid I'll be labeled a " hypocondriac " . I have learned since my neurological problems started though, that no one knows my body better than me. Please, any advice anyone has I would appreciate...I'm very thankful for web sites/support groups such as this! What a godsend! Thanks a bunch. Jill, 32 yrs old, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 1999 Report Share Posted January 29, 1999 Jill, Two quick points- 1) I had to quit some medications because they interfered with RLS. One was amitriptyline, an anti-depressant that works by increasing serotonin levels. Even at a very low dose (I was taking it for fibromyalgia), it really flared my RLS. Prozac is a SSRI (selective serotonin reuptake inhibitor) which also ,effectively, increases serotonin levels. I wonder if the timing of your change from Paxil to Prozac was more than coincidental with increase in RLS symptoms? Paxil is also an SSRI, but maybe enough different that it did not cause RLS problems. 2)Join the club of people who have doctors that dont listen, or dont believe, or who downplay. It's one of our most common experiences. I'm lucky, I have some of the best docs, but I went years and years with previous docs who wrote off everything as " all in your head " . One suggestion: contact the RLS foundation ( http://www.rls.org ), they have a packet for MD's that they can send out to your doctor upon your request. Some docs will take info more seriously if it's written by other docs and sent out by a medical " foundation " . Hope this is helpful. At 10:47 AM 1/29/99 -0800, you wrote: >My name is Jill, I'm 32, and new to the group. Three years ago I was diagnosed with " probable MS " . I also suffer from depression, and was previously taking Paxil, but recently my doctor switched me to Prozac for better results. Approx a month ago, I began getting this achey feeling in my legs, to the point where it's unbearable and I have to move to achieve comfort. I just saw the doctor 2 days ago for this problem, and he mentioned I could have rls. After researching this on the web, I am absolutley convinced that I have rls. I have a good relationship with my doctor, but he really kind of downplayed my symptoms(it's driving me crazy!!!)and didn't offer any input as to how to achieve relief. Has anyone out there experienced something similar? Do you have any advice? I'm a rather timid person, and was almost embarassed to even tell my doctor--I'm so afraid I'll be labeled a " hypocondriac " . I have learned since my neurological problems started though, that no one knows my body better than me. Please, any advice anyone has I would appreciate...I'm very thankful for web sites/support groups such as this! What a godsend! Thanks a bunch. Jill, 32 yrs old, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 > Hi everyone! I just found this group and I am excited about talking with all of you through the e-mails and chat. I have had pancreatitis for two years on Oct, 7. Its so great to know there are so many people out there like me. I feel like I need to talk to someone who can empathize. So, take care and God bless you all and your pancreas' ! Love, Lillies628 Welcome Lillies, We're here to listen and help answer any questions you may have. Usually if you tell us a little about your particular experiences and story it helps others to find some similarities to relate to. You can read the stories of several of our members at: http://www.pancassociation.org/ourstories.html Feel free to join in with any comments or questions whenever you like. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Representative Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 > Hi everyone! I just found this group and I am excited about talking with all of you through the e-mails and chat. I have had pancreatitis for two years on Oct, 7. Its so great to know there are so many people out there like me. I feel like I need to talk to someone who can empathize. So, take care and God bless you all and your pancreas' ! Love, Lillies628 Welcome Lillies, We're here to listen and help answer any questions you may have. Usually if you tell us a little about your particular experiences and story it helps others to find some similarities to relate to. You can read the stories of several of our members at: http://www.pancassociation.org/ourstories.html Feel free to join in with any comments or questions whenever you like. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Representative Quote Link to comment Share on other sites More sharing options...
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