Re: chacne

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In a message dated 2/28/00 6:26:05 AM Pacific Standard Time, amy913@...

writes:

<< Hi all,

I have not written lately, am always listening....Chacne (6 yrs) woke up

yesterday crying that his lower legs were hurting. It went on about all

day. This morning, again, the same thing. He is fine if he is sitting

or laying, but when he walks he is walking on his tippy-toes and his

knees are bent outward. He says he cannot walk with his heel down b/c

it hurt. Is this something others experience due to CMT? He told me

that his legs have hurt there before, but never to this point. I am not

sending him to school today, and am worried. He has a doctors

appointment March 15 with a new dr. b/c the one he has now just says

there is nothing that can be done, that it will progress..da da

da....you know the story. So anyway what do I do until March 15.

Yesterday when we left the house we had to carry him to the car b/c he

was in so much pain getting down the stairs.

>>

He is getting the short heel cord pain. Have him do stretching exercises.

This is one I did when I was young. I had my hands against a wall and pushed

down with my feet like I was pushing the wall away. You can really feel the

titeness when you do this. The object is to stretch those tendons and heel

cord out. I had PT therapy for this problem for years. You may want to see a

PT to get more exercises. Swimming is a great time to stretch them out

against the pool sides and bottom. Also pain meds are something I would

consider like advil. The Dr. suggested a night splint to help with the

tightening at night. I used to crawl out of bed until my heel cords would

loosen up a bit. I was 6. Mind you this is all stuff my Dr. had me do for

myslef and my children. I am not a Dr. or nurse.