Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 , You have a very special role in life. I would like to give you my mother's e-mail address. She does not have CMT, but my dad (her husband) does. She has dealt with a husband and a daughter with CMT. She is always willing to share her experiences and knowledge with others. To reach blzerbabe@... " >Darlene (care giver) click on this My husband Bill helps me best by not expecting me to do the things I used to be able to. He knows to try to keep stressful situations away from me. My husband always takes my arm to help me keep my balance and he's learned not to abandon me in stores or malls or at a picnic. My balance is not good and I depend on him and my arm crutch (crutches). If your husband is in pain, be understanding.... Try to rub his feet, or pull his toes in order to help dull the pain. This is only my opinion, and it has helped me. Jeanie ************************ In a message dated 4/25/00 1:34:40 PM Pacific Daylight Time, Vivien529@... writes: << I am learning that 's CMT is different from even the few bits I have read about so far. As a spouse, do you all have any advice for me to help out? I mean, there isn't a whole lot I can do, but let me know what you all appreciate. Take care, >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Thank you so much. I will contact your mom soon. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Thank you so much. I will contact your mom soon. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Moonglow21@... wrote: , You have a very special role in life. I would like to give you my mother's e-mail address. She does not have CMT, but my dad (her husband) does. She has dealt with a husband and a daughter with CMT. She is always willing to share her experiences and knowledge with others. To reach blzerbabe@... " >Darlene (care giver) click on this My husband Bill helps me best by not expecting me to do the things I used to be able to. He knows to try to keep stressful situations away from me. My husband always takes my arm to help me keep my balance and he's learned not to abandon me in stores or malls or at a picnic. My balance is not good and I depend on him and my arm crutch (crutches). If your husband is in pain, be understanding.... Try to rub his feet, or pull his toes in order to help dull the pain. This is only my opinion, and it has helped me. Jeanie ************************ In a message dated 4/25/00 1:34:40 PM Pacific Daylight Time, Vivien529@... writes: << I am learning that 's CMT is different from even the few bits I have read about so far. As a spouse, do you all have any advice for me to help out? I mean, there isn't a whole lot I can do, but let me know what you all appreciate. Take care, >> --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Moonglow21@... wrote: , You have a very special role in life. I would like to give you my mother's e-mail address. She does not have CMT, but my dad (her husband) does. She has dealt with a husband and a daughter with CMT. She is always willing to share her experiences and knowledge with others. To reach blzerbabe@... " >Darlene (care giver) click on this My husband Bill helps me best by not expecting me to do the things I used to be able to. He knows to try to keep stressful situations away from me. My husband always takes my arm to help me keep my balance and he's learned not to abandon me in stores or malls or at a picnic. My balance is not good and I depend on him and my arm crutch (crutches). If your husband is in pain, be understanding.... Try to rub his feet, or pull his toes in order to help dull the pain. This is only my opinion, and it has helped me. Jeanie ************************ In a message dated 4/25/00 1:34:40 PM Pacific Daylight Time, Vivien529@... writes: << I am learning that 's CMT is different from even the few bits I have read about so far. As a spouse, do you all have any advice for me to help out? I mean, there isn't a whole lot I can do, but let me know what you all appreciate. Take care, >> --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Moonglow21@... wrote: , You have a very special role in life. I would like to give you my mother's e-mail address. She does not have CMT, but my dad (her husband) does. She has dealt with a husband and a daughter with CMT. She is always willing to share her experiences and knowledge with others. To reach blzerbabe@... " >Darlene (care giver) click on this My husband Bill helps me best by not expecting me to do the things I used to be able to. He knows to try to keep stressful situations away from me. My husband always takes my arm to help me keep my balance and he's learned not to abandon me in stores or malls or at a picnic. My balance is not good and I depend on him and my arm crutch (crutches). If your husband is in pain, be understanding.... Try to rub his feet, or pull his toes in order to help dull the pain. This is only my opinion, and it has helped me. Jeanie ************************ In a message dated 4/25/00 1:34:40 PM Pacific Daylight Time, Vivien529@... writes: << I am learning that 's CMT is different from even the few bits I have read about so far. As a spouse, do you all have any advice for me to help out? I mean, there isn't a whole lot I can do, but let me know what you all appreciate. Take care, >> --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
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