Re: Thanks for the welcome :-)

[Guest guest]

Thanks for the welcome :-)

>I am reading the postings about children in CMT families. As a rule, did

you

>all know you had CMT before or after you had kids? P and I were thinking

>about starting our family this year or next, but now with his diagnosis, we

>aren't at all sure.

>

>Thanks,

>

>

, I had my children before knowing about my CMT. My 10

yr.old don has it now. There are so many differences in CMT and even

within family members. Some may be severe and have children wih NO CMT or

with very mild CMT. Some may be mild and have children with NO CMT or mild,

to severe. There is no test or way to predict if a child will be born with

CMT or to later develope CMT or how mild or severe. IMO, if your want

children, have them love them, none of us know for SURE if a child will be

born healthy, or with an impairment not until that child is born. My

brother has C.P. due to the use of forecepts during delivery, if forecepts

were not used he would of been born w/o C.P. and be mentally challanged as

he is now. There are no guarantee's in life. A healthy person with no

hereditary impairments can give birth to a child with many impairments. This

is just my opinion. >Becky M.

[Guest guest]

- I'm not an expert on whether CMTers should go ahead and

have kids. We had 3 kids before we knew about the CMT in our family.

Now we do know, we don't wish we had done anything differently.

Here's a URL for an article by a CMT specialist back in 1989. In it

(near the end, he says he thinks that people with CMT should be told

they can go ahead and have kids if they want them. He says, " Why

not? " he says some of the best people he knows have CMT!

http://www.ultranet.com/~smith/files/Dyck.discusses.CMT.txt

There are so many other things - personality, character, mental and

physical that people can have wrong with them, or can happen to them -

and in most cases CMT is not that bad. We are so luck to have so

much, here in the developed part of the world - imagine living in

many counries, ethiopia, sudan, etc etc, we are so lucky....

We must not demand perfection of everything, should be content with

our lot which is a far better than most people in the world, even

with CMT (for most CMT people)

Best wishes to you both

>

> I am reading the postings about children in CMT families. As a

rule, did you

> all know you had CMT before or after you had kids? P and I were

thinking

> about starting our family this year or next, but now with his

diagnosis, we

> aren't at all sure.

>

[Guest guest]

, we knew I had CMT before starting our family. This is a very

personal decision. I never blamed my dad and mom for havng me or for my CMT.

But, I have a daughter who wishes I had chosen not have have kids. She hates

being born into a family with a hereitary disease that she might have or

might pass on to her children. She swears she will not have children because

the CMT. Jeanie

**********************

In a message dated 4/25/00 1:30:39 PM Pacific Daylight Time,

Vivien529@... writes:

<< As a rule, did you

all know you had CMT before or after you had kids? P and I were thinking

about starting our family this year or next, but now with his diagnosis, we

aren't at all sure.

Thanks,

>>

[Guest guest]

I have a 20 year old daughter that is really o.k. with my CMT. She can't wait to

have children when she graduates from college. She say's she will love any child

she has. She is my treasure.

Moonglow21@... wrote:

, we knew I had CMT before starting our family. This is a very

personal decision. I never blamed my dad and mom for havng me or for my CMT.

But, I have a daughter who wishes I had chosen not have have kids. She hates

being born into a family with a hereitary disease that she might have or

might pass on to her children. She swears she will not have children because

the CMT. Jeanie

**********************

In a message dated 4/25/00 1:30:39 PM Pacific Daylight Time,

Vivien529@... writes:

<< As a rule, did you

all know you had CMT before or after you had kids? P and I were thinking

about starting our family this year or next, but now with his diagnosis, we

aren't at all sure.

Thanks,

>>

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