New Member

[Guest guest]

Just wanted to let you all know how much I've enjoyed being added to the

support group (thanks to Lynne Gessner)!

Thought it would also be helpful to share my story....

I'm 45 years old and have had RLS/PLMD for about 4 years. Last year, I

was told that I have multiple sclerosis (the remissive form). During my

visit to the Mayo Clinic here, I was fornunate to come across a RLS

Foundation newsletter. I promptly became a subscriber.

I had been put on Klonopin by my GP 3 and a 1/2 years ago, when in May,

the 3 mg of Klonopin stopped working. The physician at the Mayo Clinic

took me off of the Klonopin, cold turkey, and tried Nuerontin, Mirapex

and finally Permax. The Permax made me pass out for 1 and a half hours

in the middle of the night. I couldn't get out of bed until 6pm the

following night-20 hours after I took the Permax.

At this point, I turned to my nuerologist and a homeopathic doctor. The

homeopathic doctor tried numerous approaches, but none were successfull.

My nuerologist put me on a combination of baclofin and acetometaphine

with codine along with a regime of decreasing the Klonopin in 25mg

increments. I completely got off of the Klonopin but was still walking

2 times per night. He was very good about listening to me and reading

the Night. We decided a month ago to try Requip along with 1mg of

Klonopin and the acetometaphine with codine. After several weeks of

increasing the dosage, I'm now taking .25mg with my 3 meals and taking

the Klonopin and acetometaphine at bedtime. I'm very pleased with the

quality of sleep. I generally have one instance of PLM and then sleep

the rest of the night.

Hope this is helpful!

Best Wishes for a Happy Holiday,

Dottie