Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 Thanks, Gretchen, for your quick reply. This, again, shows the vast variations of CMT. And what type do you have? Have you been diagnosed genetically? Sorry if I am re-asking questions you have already answered. By the by, what type of writing do you do? I am trying to write a novel. About ten chapters in to the first draft. Peace, Marc progression free > > > Hi Marc, > > I too was diagnosed with CMT when I was a kid. When I was in high school > I could barely walk and by 2:30 pm I needed to sleep! I also had BAD > balance problems and fell into things almost constantly. By the time I > went to college I had figured out that in the a.m. I was fine, but by > afternoon/night I was a mess, mess meaning balance problems, fatigue, > tremors, etc. So alcohol and pot helped get me through that! (Some other > pills from neuros too.) OK, long story short, something happened these > last 20 years of my life, I am 47 now, so since age 27, I have not had > any CMT progression, short of wearing in-shoe orthotic inserts in my > shoes. Stopping the alcohol + pot helped I am sure, then finding a > 'team' of good doctors + working together, changing my diet, etc. Just > last summer the only complaint I had to my medical team was the > 'electrical' type pain that would run through me at night from time to > time and as you know, I started taking Neurontin for that. So that's > about the extent of it. Basically progression-free and why I don't know. > When I was young all I did was worry what my 30's and 40's would be > like! And they have been great so far! I just wish I hadn't worried so > much. > > Gretchen > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click.egroups.com/1/967/1/_/616793/_/951705445/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 Thanks, Gretchen, for your quick reply. This, again, shows the vast variations of CMT. And what type do you have? Have you been diagnosed genetically? Sorry if I am re-asking questions you have already answered. By the by, what type of writing do you do? I am trying to write a novel. About ten chapters in to the first draft. Peace, Marc progression free > > > Hi Marc, > > I too was diagnosed with CMT when I was a kid. When I was in high school > I could barely walk and by 2:30 pm I needed to sleep! I also had BAD > balance problems and fell into things almost constantly. By the time I > went to college I had figured out that in the a.m. I was fine, but by > afternoon/night I was a mess, mess meaning balance problems, fatigue, > tremors, etc. So alcohol and pot helped get me through that! (Some other > pills from neuros too.) OK, long story short, something happened these > last 20 years of my life, I am 47 now, so since age 27, I have not had > any CMT progression, short of wearing in-shoe orthotic inserts in my > shoes. Stopping the alcohol + pot helped I am sure, then finding a > 'team' of good doctors + working together, changing my diet, etc. Just > last summer the only complaint I had to my medical team was the > 'electrical' type pain that would run through me at night from time to > time and as you know, I started taking Neurontin for that. So that's > about the extent of it. Basically progression-free and why I don't know. > When I was young all I did was worry what my 30's and 40's would be > like! And they have been great so far! I just wish I hadn't worried so > much. > > Gretchen > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click.egroups.com/1/967/1/_/616793/_/951705445/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 Gretchen Can you elaborate on the diet you follow would love to try it see if it would work for me. Thanks Second childhoods are always more fun o:-) Quote Link to comment Share on other sites More sharing options...
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