CMT and/or Fibromyalgia (Cindy)

[Guest guest]

Hi Cindy,

I was diagnosed with both: cmt and fibromyalgia. cmt is in our family

and fibromyalgia

was diagnosed three years ago because I had a lot of pain. I had 18 of

18 tender points and have

depressions. FM was diagnosed by a rheumatologist. My problem was that

all other doctors (neurologists

and otrhopaedist) told me fibromyalgia didn' t exist. I didn' t know

what to believe.

Today I believe that I have sort of fibromyalgia but one that belongs to

cmt (secundary fibromyalgia).

I have the symptoms of fibromyalgia but because of cmt.

What kind of cmt does your brother have? Did you have a testing for cmt?

Bye,

[Guest guest]

Hi ,

Thank you for your input. It is very interesting. Maybe I do have

both. I know that I have trigger points, but do not know how many.

I went to a massage therapist and she found them all over my body

from top to bottom. My brother has CMT type II. His peroneal nerve

in his lower leg is not working at all. He has a muscle in his foot

that has atropied. His problems are mostly in his legs and feet. I

have another brother who has similiar problems but has not been

diagnosed yet. This is quite new to us so we are just beginning to

get tested. I go July 11 to a neurologist to find out if I have it.

If I do, I believe I have it more in my upper body. My shoulders,

arms, and hands are in terrible shape. I ache, have numbness and

tingling all the time. It does not matter how much I stretch (which

they tell you to do for FM) I still have it. I also have been

battling depression. I have had severe symptoms since about 1992

when I had a traumatic emotional event happen in my life. Before

that I could say that I was ok on a scale of 1 to 10. Depression

runs in my family so I was always put in that neurotic category. My

family doctor told me I had a " touch " of FM. I knew that something

was wrong so I went with it without any more doctoring. I do not

care for doctors much. As you know, sometimes they are totally of

base and if you don't find the right one in the beginning they can

totally mess you up emotionally and physicially. But I also know that

they are very much needed and now I am ready to put myself in their

hands because I feel that I am onto something. I know that FM can go

with other medical problems. I have a friend who has MS and FM with

it. It makes sense to me if your nerves are not working right that

your muscles are going to suffer also. I take an antidepressant to

help my depression which I believe it helps but I also believe it

helps calms my nerves. I get very jittery. Is this normal with

CMT?? Sometimes it is so bad that I call it " falling apart " . Thank

you for sharing your story. I am very interested in FM and CMT.

Cindy

> Hi Cindy,

>

> I was diagnosed with both: cmt and fibromyalgia. cmt is in our

family

> and fibromyalgia

> was diagnosed three years ago because I had a lot of pain. I had 18

of

> 18 tender points and have

> depressions. FM was diagnosed by a rheumatologist. My problem was

that

> all other doctors (neurologists

> and otrhopaedist) told me fibromyalgia didn' t exist. I didn' t know

> what to believe.

> Today I believe that I have sort of fibromyalgia but one that

belongs to

> cmt (secundary fibromyalgia).

> I have the symptoms of fibromyalgia but because of cmt.

>

> What kind of cmt does your brother have? Did you have a testing for

cmt?

>

> Bye,

>