Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Yo Rory, Another Philadelphian here, S. Philly to be exact. I am skeptical about this EEG/light thing but I'll try anything if it helps. Count me in, let me know. Ed-Cyberphilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Yo Rory, Another Philadelphian here, S. Philly to be exact. I am skeptical about this EEG/light thing but I'll try anything if it helps. Count me in, let me know. Ed-Cyberphilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Yo Rory, Another Philadelphian here, S. Philly to be exact. I am skeptical about this EEG/light thing but I'll try anything if it helps. Count me in, let me know. Ed-Cyberphilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Hi Rory, welcome to the group, also the recent newcomers. Can you do the eeg thing via the computer? I had an eeg once, didn't know it can be used therapeutically (?).Tell me more, please, Marleen, 52, Holland Rory Cohen wrote: > > > Hello, all. > New reader of rlssupport. > I've had mild symptoms since my teens, but last spring they escalated to > interfere with sleep. I've been trying non-pharmaceutical response > (except that I take a clomazopin once a week if I haven't been able to > sleep). In response to the message about alternatives, wanted to report > early success with a form of biofeedback that uses flashing lights > through an EEG program. After one treatment, the symptoms disappeared > completely. After seven, the result seemed to stick, so that I had no > symptoms for a week after the last treatment. Am now working with the > provider to get some research grant money. If there is anyone in the > Philadelphia area who wants to participate, let me know! I now have the > program on my computer at home and am giving myself a treatment every > morning for one month to see how long the relief will last. > > One other note, had read in the support group mail about magnesium > helping with symptoms. I had the opposite reaction. My first stop at > getting help was to a homeopathist. I didn't know about any magnesium > RLS connection, but she asked because in her research, magnesium > exacerabated restless symptoms. It turned out I was getting a lot of > magnesium in the calcium I was taking and in the Melatonin I had tried > at night. SO I cut the mag out of both and reduced the RLS symptoms > from a 8.5 on a scale of 10 to about a 6, meaning I could get to sleep > and wasn't up for hours in the middle of the night, though still had > enough symptoms to disturb sleep. > > Anyway, assume people will be interested in the eeg stuff, and will keep > you posted as our " research " progresses. > > Rory, 43, Philadelphia > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Hi Rory, welcome to the group, also the recent newcomers. Can you do the eeg thing via the computer? I had an eeg once, didn't know it can be used therapeutically (?).Tell me more, please, Marleen, 52, Holland Rory Cohen wrote: > > > Hello, all. > New reader of rlssupport. > I've had mild symptoms since my teens, but last spring they escalated to > interfere with sleep. I've been trying non-pharmaceutical response > (except that I take a clomazopin once a week if I haven't been able to > sleep). In response to the message about alternatives, wanted to report > early success with a form of biofeedback that uses flashing lights > through an EEG program. After one treatment, the symptoms disappeared > completely. After seven, the result seemed to stick, so that I had no > symptoms for a week after the last treatment. Am now working with the > provider to get some research grant money. If there is anyone in the > Philadelphia area who wants to participate, let me know! I now have the > program on my computer at home and am giving myself a treatment every > morning for one month to see how long the relief will last. > > One other note, had read in the support group mail about magnesium > helping with symptoms. I had the opposite reaction. My first stop at > getting help was to a homeopathist. I didn't know about any magnesium > RLS connection, but she asked because in her research, magnesium > exacerabated restless symptoms. It turned out I was getting a lot of > magnesium in the calcium I was taking and in the Melatonin I had tried > at night. SO I cut the mag out of both and reduced the RLS symptoms > from a 8.5 on a scale of 10 to about a 6, meaning I could get to sleep > and wasn't up for hours in the middle of the night, though still had > enough symptoms to disturb sleep. > > Anyway, assume people will be interested in the eeg stuff, and will keep > you posted as our " research " progresses. > > Rory, 43, Philadelphia > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Rory, Sounds like the '90s version of Simon and Garfunkel's " America " ( " counting the cars on the New Jersey Turnpike... " ) ... I'd be real interested in the results of your study. What is the cost involved in obtaining such a program, and what kind of hardware/software is involved? Will this run on my wimpy 486 or will I need some six-figured Unix box or something? Flashing lights...hm...hope this isn't a throwback to some late '70s disco thing... might evoke haunting memories for some of us...( " ah, ah, ah, ah, stayin' awake, stayin' awake... " ) (Oh...you said EE-EE-GEE's...thought you said " BEE-EE-GEE's " ....sorry...sleep deprived...) Jeff P. , 45, Clueless and Sleepless in Colorado Springs Rory Cohen matclark@...> on 12/31/98 06:44:13 AM Please respond to matclark@... To: rlssupport (AT) onelist (DOT) com cc: (bcc: Jeff Plissner) Subject: alternatives and RLS Hello, all. New reader of rlssupport. I've had mild symptoms since my teens, but last spring they escalated to interfere with sleep. I've been trying non-pharmaceutical response (except that I take a clomazopin once a week if I haven't been able to sleep). In response to the message about alternatives, wanted to report early success with a form of biofeedback that uses flashing lights through an EEG program. After one treatment, the symptoms disappeared completely. After seven, the result seemed to stick, so that I had no symptoms for a week after the last treatment. Am now working with the provider to get some research grant money. If there is anyone in the Philadelphia area who wants to participate, let me know! I now have the program on my computer at home and am giving myself a treatment every morning for one month to see how long the relief will last. One other note, had read in the support group mail about magnesium helping with symptoms. I had the opposite reaction. My first stop at getting help was to a homeopathist. I didn't know about any magnesium RLS connection, but she asked because in her research, magnesium exacerabated restless symptoms. It turned out I was getting a lot of magnesium in the calcium I was taking and in the Melatonin I had tried at night. SO I cut the mag out of both and reduced the RLS symptoms from a 8.5 on a scale of 10 to about a 6, meaning I could get to sleep and wasn't up for hours in the middle of the night, though still had enough symptoms to disturb sleep. Anyway, assume people will be interested in the eeg stuff, and will keep you posted as our " research " progresses. Rory, 43, Philadelphia ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Rory, Sounds like the '90s version of Simon and Garfunkel's " America " ( " counting the cars on the New Jersey Turnpike... " ) ... I'd be real interested in the results of your study. What is the cost involved in obtaining such a program, and what kind of hardware/software is involved? Will this run on my wimpy 486 or will I need some six-figured Unix box or something? Flashing lights...hm...hope this isn't a throwback to some late '70s disco thing... might evoke haunting memories for some of us...( " ah, ah, ah, ah, stayin' awake, stayin' awake... " ) (Oh...you said EE-EE-GEE's...thought you said " BEE-EE-GEE's " ....sorry...sleep deprived...) Jeff P. , 45, Clueless and Sleepless in Colorado Springs Rory Cohen matclark@...> on 12/31/98 06:44:13 AM Please respond to matclark@... To: rlssupport (AT) onelist (DOT) com cc: (bcc: Jeff Plissner) Subject: alternatives and RLS Hello, all. New reader of rlssupport. I've had mild symptoms since my teens, but last spring they escalated to interfere with sleep. I've been trying non-pharmaceutical response (except that I take a clomazopin once a week if I haven't been able to sleep). In response to the message about alternatives, wanted to report early success with a form of biofeedback that uses flashing lights through an EEG program. After one treatment, the symptoms disappeared completely. After seven, the result seemed to stick, so that I had no symptoms for a week after the last treatment. Am now working with the provider to get some research grant money. If there is anyone in the Philadelphia area who wants to participate, let me know! I now have the program on my computer at home and am giving myself a treatment every morning for one month to see how long the relief will last. One other note, had read in the support group mail about magnesium helping with symptoms. I had the opposite reaction. My first stop at getting help was to a homeopathist. I didn't know about any magnesium RLS connection, but she asked because in her research, magnesium exacerabated restless symptoms. It turned out I was getting a lot of magnesium in the calcium I was taking and in the Melatonin I had tried at night. SO I cut the mag out of both and reduced the RLS symptoms from a 8.5 on a scale of 10 to about a 6, meaning I could get to sleep and wasn't up for hours in the middle of the night, though still had enough symptoms to disturb sleep. Anyway, assume people will be interested in the eeg stuff, and will keep you posted as our " research " progresses. Rory, 43, Philadelphia ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 since i was born in nyc many many years ago i believe everything and anything - could this eeg flashing light contain subliminal messages such as 'YOU WILL NOT TWITCH' or 'YOU WILL GO TO SLEEP'????????? or maybe its a self-hypnosis technique of some sort???????? seriously though i also am interested in the findings. JACK snowing and freezing my butt off in western nys At 11:07 AM 12/31/98 EST, you wrote: >From: EJude958@... > > > > > >Yo Rory, > >Another Philadelphian here, S. Philly to be exact. I am skeptical about this >EEG/light thing but I'll try anything if it helps. Count me in, let me know. > >Ed-Cyberphilly > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 since i was born in nyc many many years ago i believe everything and anything - could this eeg flashing light contain subliminal messages such as 'YOU WILL NOT TWITCH' or 'YOU WILL GO TO SLEEP'????????? or maybe its a self-hypnosis technique of some sort???????? seriously though i also am interested in the findings. JACK snowing and freezing my butt off in western nys At 11:07 AM 12/31/98 EST, you wrote: >From: EJude958@... > > > > > >Yo Rory, > >Another Philadelphian here, S. Philly to be exact. I am skeptical about this >EEG/light thing but I'll try anything if it helps. Count me in, let me know. > >Ed-Cyberphilly > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 since i was born in nyc many many years ago i believe everything and anything - could this eeg flashing light contain subliminal messages such as 'YOU WILL NOT TWITCH' or 'YOU WILL GO TO SLEEP'????????? or maybe its a self-hypnosis technique of some sort???????? seriously though i also am interested in the findings. JACK snowing and freezing my butt off in western nys At 11:07 AM 12/31/98 EST, you wrote: >From: EJude958@... > > > > > >Yo Rory, > >Another Philadelphian here, S. Philly to be exact. I am skeptical about this >EEG/light thing but I'll try anything if it helps. Count me in, let me know. > >Ed-Cyberphilly > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 hi Rory, My hubby is taking Calcium magnesium mix everyday...so maybe that is making his rls worse? how much magnesium were you taking during the day? thanks! Coleen :-) Reunited adoptee phone/fax Missing Links,Grants Pass, Or. fredmom@... or fredmom@... http://www.barysoftware.com &%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&% Oregon Adoptee Rights Initiative Measure 58 Our Birth Certificate: Our Right http://www.plumsite.com/oregon/ alternatives and RLS > > >Hello, all. >New reader of rlssupport. >I've had mild symptoms since my teens, but last spring they escalated to >interfere with sleep. I've been trying non-pharmaceutical response >(except that I take a clomazopin once a week if I haven't been able to >sleep). In response to the message about alternatives, wanted to report >early success with a form of biofeedback that uses flashing lights >through an EEG program. After one treatment, the symptoms disappeared >completely. After seven, the result seemed to stick, so that I had no >symptoms for a week after the last treatment. Am now working with the >provider to get some research grant money. If there is anyone in the >Philadelphia area who wants to participate, let me know! I now have the >program on my computer at home and am giving myself a treatment every >morning for one month to see how long the relief will last. > >One other note, had read in the support group mail about magnesium >helping with symptoms. I had the opposite reaction. My first stop at >getting help was to a homeopathist. I didn't know about any magnesium >RLS connection, but she asked because in her research, magnesium >exacerabated restless symptoms. It turned out I was getting a lot of >magnesium in the calcium I was taking and in the Melatonin I had tried >at night. SO I cut the mag out of both and reduced the RLS symptoms >from a 8.5 on a scale of 10 to about a 6, meaning I could get to sleep >and wasn't up for hours in the middle of the night, though still had >enough symptoms to disturb sleep. > >Anyway, assume people will be interested in the eeg stuff, and will keep >you posted as our " research " progresses. > >Rory, 43, Philadelphia > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Geez, I've been taking a Calcium Plus formula containing Calcium, Iron, Magnesium plus Vit A,D,C in a fast dissolving formula to ward off osteoporosis in my dotage. Does this mean that in order to lessen the RLS fidgets I'll have to go around with a dowager's hump?????????? If so, life is looking considerably darker in '99. Ugh :-( Jeanne and Mr. Biggles in Poultney VT Snow covers all and the coyotes are howling in the moonlight Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 Group, Holy cow, now its magnesium is it. I was gulping down the cal, mag, zinc coctail each night and wondering why I got all my e-mail answered in the middle of the night! I wonder if it is the mag that is making my legs worse, and here I thought I needed to adjust my meds. This battle is making me weary! Lee Quote Link to comment Share on other sites More sharing options...
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