(unknown)

August 18, 2001

Have you only tried the moisturising lotion from , or have you also

tried the oils? I can't speak for the lotion, but the oils (the big

bottled one at least) work well on my skin, especially when coupled with

oodles of water-based moisturiser (Cetaphil). My routine is as follows:

Night-time:

- Wash with Cetaphil cleansing lotion (I _hate_ the bar, but the lotion is

wonderful)

- Mositurise with a small amount of Sy's Moisturising Oil.

- Blot skin dry.

- Apply liberal amounts of Cetaphil moisturiser to the flakiest parts of

my skin (especially the rims of my nostrils).

Morning:

- Don't touch a thing.

This might be of great, little, or no help to you, but it's what works for

me, and I've not found anything else that does.

Stuart

> Hi,

>

> I haven't found any moisturizer at all that I can use, not even tolerin or

> linds sy's, without getting rosy. Any suggestions?

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html)

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to rosacea-support-unsubscribe

>

August 31, 2001

Dear Mat,

One thing I'll say is you're a very amusing writer. Your portrait of the

dermatologists was very

entertaining, though I'm sure it wasn't to you at the time. My advice, for what

it's worth, is to get

on with your life. You're always going to have rosecea (unless some remedy is

found) but it's really

not the worst thing in the world to have to live with. If you've got

interesting work -- and a sense

of humor -- you'll get on.

Good luck,

Mat Shelden wrote:

> I guess I could open up here, just for a little.

>

> I'm relatively new to the group, probably two weeks or

> so, and basically I've just been reading and gathering

> information, which I thank you for.

>

> My name is Mat and I live in Oregon. Yes, it'll be

> nice when the winter gets here. It was probably the

> beginning of this summer that my rosacea got pretty

> intense. I've got the redness on both my cheeks and

> nose, and I flush pretty much at anything, so please

> don't smile at me. I've always had a rosy complexion,

> which might suggest some allergy, plus I flushed when

> I exercised, and I've gotten my share of sunburns,

> which I realise how damaging that can be.

>

> I'm 21, going to be a senior at Oregon State, and am

> just finishing up an internship with the

> transportation department with the city of Portland.

> The good thing, my mentor was very understanding when

> I finally talked to him about what was going on. He

> said that the intership wasn't important, what's

> important is getting me back to where I need, and want

> to be.

>

> On this quest so far I've seen three dermotologists.

> One of them was supposed to have seen everything. He

> looks at me, pokes my cheek, and says, " I haven't seen

> this before. " Right, maybe you won't be seeing my

> money either. The second one basically agreed with the

> first one, and I agreed with my first thought, too.

> Then the third one, up at the Oregon Health Science

> University, reminded me one of the lollipop kids from

> the Wizard of Oz. So, I told him my story, and he

> nodded his head while intermittently writing something

> down. I began to sense some kind of disconnection, so

> I stopped talking. He was still nodding. Great, his

> head's loose. Do I really want to be seeing a guy

> who's head isn't screwed on tight. The whole effect

> of this was antibiotics and topical steriods.

>

> So basically I didn't know what the hell was happening

> to me and it scared me to death. I just wondered if I

> would ever be able to do any of the things I could do

> before. I was huge on sports, now I can't even flip

> someone off without flushing. Not that I would.

> Maybe.

>

> And finally I found this group, which has made me feel

> so much better. Finally I can attack this condition.

>

> I'm looking into the allergy thing, changing my diet,

> protecting my skin, and I've had one photoderm

> treatment. It didn't do anything about the flushing

> or the redness, but they said that it wouldn't, all

> they said was that after this one I would see my

> sunspots and freckles crust off. And that's what I'm

> seeing. And they said they were going to be very

> conservative on the first one, which I respect.

>

> So I've thought about taking this first term off just

> to try and get better, but I think it would be better

> if I stayed busy.

>

> If you got any helpful advice or comments or anything,

> please share.

>

> So, enough about me. I gotta visit the bathroom

> anyway.

>

> Mat

>

> __________________________________________________

>

November 7, 2001

In a message dated 11/7/01 9:50:43 PM Eastern Standard Time,

carriei@... writes:

> one day i

> did not feel well at all and i dragged myself to

> the drugstore for some advil and took my blood

> pressure just for the heck of it to find it was

> 80/60!!

> that was not good i don't think. but that's not

> my usual.

>

,

You were probably dehydrated. Lack of fluids and dehydration can cause low

blood pressure.

~~~Beth~~~

December 16, 2001

Do you have a healthy diet now? If not, I'd go that route first.

(unknown)

> I do not know if you can help me. But my question is this:

>

> This is an assumption that I have come up with due to my experiance.

> A long time ago, when I was young I was put on antibiotics for my

> bronchitis, and also for when I had in grown toe nails. As a kid I

> ate just about everything, and it usually contained high amounts of

> sugar. Well As time went on I got acne, really bad. On my back, my

> chest, shoulders. Some where big some where small. After reading

> many many stories of others, I came to the conclusion that I have a

> fungal infection inside of my body, that is out of control. My skin

> look pre-mature, I seem to react badly to certain foods, that never

> affected me before. I am constantly tired, I have headaches

> frequently, I have athletes foot, toe nail fungus, and sometimes at

> night I will sweet, and in the areas of my body that are warmest, it

> will start to itch. I have tried an anti biotic one time. It was for

> a rash that I had on my shoulder. It cleared up my skin, and

> everything for a short amount of time. The antibiotic was only for 5

> days. The doctor said it was not very strong, and that he thought it

> would be best for me. Considering all the side affects with

> diflucan, and nystatin, and sporanx..whatever they are. anyways, it

> was temporary relief. I have an overgrowth of this fungus in my

> body, and it is ruining my life, my self concious, self esteem, I

> cannot go anywhere without worrying about my skin. I know there has

> to be something, I just cannot find anyone willing to work with me,

> and actually put forth REAL effort in finding a cure. I guess I am

> asking you what you suggest for me? Seriously suggest? I have tried

> Probiotics, and they seem to help slightly, but not enough to really

> notice. I feel very confident that if I can get rid of this fungus

> in my body that it will bring me back to normal.

>

> Thanks

> Matt

>

> ps

> if you could mail me that would be helpful, for it was hard to find

> this group!

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html)

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

January 23, 2002

*thinks this has gotten way out of hand and people ought to get back to what

this list is all about, rosacea...*

(unknown)

> Let's face it, for many (if not all) of us, rosacea is

> not a great thing to have. I, and probably many of

> you, have gone through very noticable changes mentally

> and physically since being diagnosed 10+ years ago.

>

> I have scarring on my face from the acne component.

> My face it red at times. Just because everyone

> doesn't experience rosacea as badly as some have,

> doesn't mean we can't vent our concerns or fears about

> rosacea. Yes, sometimes the dialogue is negative, and

> people can ignore those posts if they feel, but

> sometimes they aren't and people can choose to ignore

> those too.

>

> But for someone to say that we must only talk in one

> manner is just ridiculous.

>

> If this isn't the place where we can be free and talk

> as we feel, where is?

>

> Just my two cents.

>

> __________________________________________________

>

January 23, 2002

*thinks this has gotten way out of hand and people ought to get back to what

this list is all about, rosacea...*

(unknown)

> Let's face it, for many (if not all) of us, rosacea is

> not a great thing to have. I, and probably many of

> you, have gone through very noticable changes mentally

> and physically since being diagnosed 10+ years ago.

>

> I have scarring on my face from the acne component.

> My face it red at times. Just because everyone

> doesn't experience rosacea as badly as some have,

> doesn't mean we can't vent our concerns or fears about

> rosacea. Yes, sometimes the dialogue is negative, and

> people can ignore those posts if they feel, but

> sometimes they aren't and people can choose to ignore

> those too.

>

> But for someone to say that we must only talk in one

> manner is just ridiculous.

>

> If this isn't the place where we can be free and talk

> as we feel, where is?

>

> Just my two cents.

>

> __________________________________________________

>

January 23, 2002

*thinks this has gotten way out of hand and people ought to get back to what

this list is all about, rosacea...*

(unknown)

> Let's face it, for many (if not all) of us, rosacea is

> not a great thing to have. I, and probably many of

> you, have gone through very noticable changes mentally

> and physically since being diagnosed 10+ years ago.

>

> I have scarring on my face from the acne component.

> My face it red at times. Just because everyone

> doesn't experience rosacea as badly as some have,

> doesn't mean we can't vent our concerns or fears about

> rosacea. Yes, sometimes the dialogue is negative, and

> people can ignore those posts if they feel, but

> sometimes they aren't and people can choose to ignore

> those too.

>

> But for someone to say that we must only talk in one

> manner is just ridiculous.

>

> If this isn't the place where we can be free and talk

> as we feel, where is?

>

> Just my two cents.

>

> __________________________________________________

>

January 26, 2002

In a message dated 1/26/02 8:19:29 AM Mountain Standard Time,

bwattenbach@... writes:

> I also need some ideas on make up, I need something I can get at a drug

> store.

Becky, I use Airwear by L'Oreal. It has very intense pigment, covers well,

and has never caused me to break out, etc. If you buy it a Rite Aid you can

return it if it does not work for you.

January 26, 2002

In a message dated 1/26/02 8:19:29 AM Mountain Standard Time,

bwattenbach@... writes:

> I also need some ideas on make up, I need something I can get at a drug

> store.

Becky, I use Airwear by L'Oreal. It has very intense pigment, covers well,

and has never caused me to break out, etc. If you buy it a Rite Aid you can

return it if it does not work for you.

February 5, 2002

Everyone in the group can relate to your fear and frustration, that is

why this group is here.

You should try reading some of the group email and get an idea that you

can find a way to control your rosacea, many have and you can too.

There are other groups besides this one, but this is the largest one

with the longest running amount of information. You should first read

the highlights of this group at this url:

http://rosacea.ii.net/toc.html

if you are using physicians to control your rosacea, Dr. Nase's book is

a must have, at this url:

http://www.drnase.com

If you wish to control your rosacea with your diet, as well as a

clearinghouse of information on the control of rosacea, check out my

websites below:

--

Brady Barrows - webmaster for

http://www.rosacea-control.com

http://www.rosaceadiet.com

http://groups.yahoo.com/group/rosacea-diet-users-support-group

> rosacea-support

--

Brady Barrows - webmaster for

http://www.rosacea-control.com

http://www.rosaceadiet.com

http://groups.yahoo.com/group/rosacea-diet-users-support-group

April 21, 2002

Mira,

I am new to this whole pancreatitis scene, but I wish you the best of luck and

will say a prayer for you (can add you to my fast growing list... ).

This is by far the worst illness I have ever had or have ever seen (heard of)

anyone else suffering with. I hope that you have a speedy recovery and that you

feel the warmth of all of your friends here as you make the hard desicions you

are faced with today.

Best wishes to you {{{HUGZ}}}

mira crocker miracrocker@...> wrote: SUBJECT : Unprepared Doctor

visit/Mira

Joan, and anyone how wish to answers me.

I have read all the answers and the questions the

members of the group sent to you,

I really must say you did your homework,..

As for myself I went unprepared to speak to Prof.

son about the

Whipple surgery,

Last Tuesday the 16th of April I sat in front of the

Prof. son I asked why the surgery has to take 6

hours and he replayed 8 hours in your case.

Being open for 8 hours on the OP table it seems very

long.

I have asked him to preserve my stomach and the

duodenum just take out the head of the pancreas. He

said he could do this operation but it will take

longer, and first he has to go in with ERCP and put a

stent in the duodenum to be able to find the duct

during the operation in order to preserve it. I have a

stent in I't was put in 23 August 2001 and still in my

pancreas, If Dc goes in and put another on in I will

be walking with two stents How about that? Does anyone

know about this procedure?.

I have been resisting this operation since October

2001 I keep putting it off everytime I feel a bit

better.

I will appreciate answers to my frustration.

Mira

---------------------------------

April 28, 2002

Mark,

I'm taking Oxycodone 5mg for breakthrough pain.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

April 29, 2002

Mark,

I was on Duragesic Fentanyl 75mcg patches for several months and for the

breakthrough pain I used Lortab 5 or Lortab 7.

It helped.

Tammy

April 29, 2002

Mark,

I'm so sorry that you have had to be suffering so much lately. Hopefully you

will be able to get some releif soon. I have an implasnted medtronic pain pump

that I get constant morphine thru with 3 bolis a day for my pain, but however I

do get breakthru pain and I take percocet the generic kind and it's

calledOxycodone W/APAP 5/325 tab MCK. This do help with my breakthru pain.

Maybe this info will help you. Good Luck.

Take Care,

Louie in WV

(unknown)

Mark from Illinois here,

I'm much too tired to tell you all about my horrifying

ER experience I had on Friday morning. Perhaps I'll be

up to it tommorrow; it's a doosey.

For now I would like to ask the members to tell me

what your being given for breakthrough pain and in

what dosage, and if it's effective for you. I'd like

to have some suggestions for my pain doc on Monday.

I'm currently on Duragesic Fentanyl 75mcg patches

every three days, but he has been reluctant to give me

anything for breakthrough pain and I am suffering

horribly. I can at least be assured that the members

here understand what I mean when I say suffering. It's

been a hellish couple of days for me, of which I will

give you complete details when I'm more up to it.

Thanx in advance for your responses.

You partner in pain,

Mark

__________________________________________________

April 30, 2002

As far as I know, paper products are not triggers for

rosacea. Are you sure this isn't an allergy? cea

triggers are certain foods, alcohol, stress, &

emotion.

--- rfeuz rfeuz@...> wrote:

> I have known I had cea for a few years and was

> finally and

> formally diagnosed a month ago. I flush to a deep

> purple on my nose

> only. Does anyone else only have their nose flush?

> I can tell I am

> having an episode because of the almost intense

> heat. Not to mention

> the staring!

>

> My Dr. prescribed Nicomide. I find this is very

> expensive as my

> insurance will not pay for it. I have noticed the

> different vitamin

> doses listed. Has anyone just taken the vitamins

> seperately? It

> does help, but are there any other over the counter

> vitamin

> supplements that have helped others? My only real

> triggers that I

> can pin down are residue from the likes of new

> magazines and being in

> stores where there is a large quanity of paper or

> new clothing.

>

> Also, just a note to those looking for an

> inexpensive cleanser; I

> have found that the Sauve fragrance free face wash

> is absolutely

> wonderful. No redness occurs and leaves my skin

> feeling softer than

> usual.

>

> Again, I am anxious to find out what supplements

> others are taking

> that resemble Nicomide? Thanks so much. This is

> wonderul to have

> this forum.

>

> --

> Please read the list highlights before posting to

> the whole group (http://rosacea.ii.net/toc.html).

> Your post will be delayed if you don't give a

> meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently

> published book.

>

> To leave the list send an email to

> rosacea-support-unsubscribe

>

April 30, 2002

As far as I know, paper products are not triggers for

rosacea. Are you sure this isn't an allergy? cea

triggers are certain foods, alcohol, stress, &

emotion.

--- rfeuz rfeuz@...> wrote:

> I have known I had cea for a few years and was

> finally and

> formally diagnosed a month ago. I flush to a deep

> purple on my nose

> only. Does anyone else only have their nose flush?

> I can tell I am

> having an episode because of the almost intense

> heat. Not to mention

> the staring!

>

> My Dr. prescribed Nicomide. I find this is very

> expensive as my

> insurance will not pay for it. I have noticed the

> different vitamin

> doses listed. Has anyone just taken the vitamins

> seperately? It

> does help, but are there any other over the counter

> vitamin

> supplements that have helped others? My only real

> triggers that I

> can pin down are residue from the likes of new

> magazines and being in

> stores where there is a large quanity of paper or

> new clothing.

>

> Also, just a note to those looking for an

> inexpensive cleanser; I

> have found that the Sauve fragrance free face wash

> is absolutely

> wonderful. No redness occurs and leaves my skin

> feeling softer than

> usual.

>

> Again, I am anxious to find out what supplements

> others are taking

> that resemble Nicomide? Thanks so much. This is

> wonderul to have

> this forum.

>

> --

> Please read the list highlights before posting to

> the whole group (http://rosacea.ii.net/toc.html).

> Your post will be delayed if you don't give a

> meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently

> published book.

>

> To leave the list send an email to

> rosacea-support-unsubscribe

>

April 30, 2002

As far as I know, paper products are not triggers for

rosacea. Are you sure this isn't an allergy? cea

triggers are certain foods, alcohol, stress, &

emotion.

--- rfeuz rfeuz@...> wrote:

> I have known I had cea for a few years and was

> finally and

> formally diagnosed a month ago. I flush to a deep

> purple on my nose

> only. Does anyone else only have their nose flush?

> I can tell I am

> having an episode because of the almost intense

> heat. Not to mention

> the staring!

>

> My Dr. prescribed Nicomide. I find this is very

> expensive as my

> insurance will not pay for it. I have noticed the

> different vitamin

> doses listed. Has anyone just taken the vitamins

> seperately? It

> does help, but are there any other over the counter

> vitamin

> supplements that have helped others? My only real

> triggers that I

> can pin down are residue from the likes of new

> magazines and being in

> stores where there is a large quanity of paper or

> new clothing.

>

> Also, just a note to those looking for an

> inexpensive cleanser; I

> have found that the Sauve fragrance free face wash

> is absolutely

> wonderful. No redness occurs and leaves my skin

> feeling softer than

> usual.

>

> Again, I am anxious to find out what supplements

> others are taking

> that resemble Nicomide? Thanks so much. This is

> wonderul to have

> this forum.

>

> --

> Please read the list highlights before posting to

> the whole group (http://rosacea.ii.net/toc.html).

> Your post will be delayed if you don't give a

> meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently

> published book.

>

> To leave the list send an email to

> rosacea-support-unsubscribe

>

May 1, 2002

I agree this sounds like an allergy - my husband (nonrosacean) has an

allergy to dye - so he stays away from lots of paper, new clothes and I

always make sure I wash his clothes before he wears them - twice for socks!

Re: (unknown)

> As far as I know, paper products are not triggers for

> rosacea. Are you sure this isn't an allergy? cea

> triggers are certain foods, alcohol, stress, &

> emotion.

>

> --- rfeuz rfeuz@...> wrote:

> > I have known I had cea for a few years and was

> > finally and

> > formally diagnosed a month ago. I flush to a deep

> > purple on my nose

> > only. Does anyone else only have their nose flush?

> > I can tell I am

> > having an episode because of the almost intense

> > heat. Not to mention

> > the staring!

> >

> > My Dr. prescribed Nicomide. I find this is very

> > expensive as my

> > insurance will not pay for it. I have noticed the

> > different vitamin

> > doses listed. Has anyone just taken the vitamins

> > seperately? It

> > does help, but are there any other over the counter

> > vitamin

> > supplements that have helped others? My only real

> > triggers that I

> > can pin down are residue from the likes of new

> > magazines and being in

> > stores where there is a large quanity of paper or

> > new clothing.

> >

> > Also, just a note to those looking for an

> > inexpensive cleanser; I

> > have found that the Sauve fragrance free face wash

> > is absolutely

> > wonderful. No redness occurs and leaves my skin

> > feeling softer than

> > usual.

> >

> > Again, I am anxious to find out what supplements

> > others are taking

> > that resemble Nicomide? Thanks so much. This is

> > wonderul to have

> > this forum.

> >

> > --

> > Please read the list highlights before posting to

> > the whole group (http://rosacea.ii.net/toc.html).

> > Your post will be delayed if you don't give a

> > meaningful subject or trim your reply text. You must

> > change the subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently

> > published book.

> >

> > To leave the list send an email to

> > rosacea-support-unsubscribe

> >

May 1, 2002

I agree this sounds like an allergy - my husband (nonrosacean) has an

allergy to dye - so he stays away from lots of paper, new clothes and I

always make sure I wash his clothes before he wears them - twice for socks!

Re: (unknown)

> As far as I know, paper products are not triggers for

> rosacea. Are you sure this isn't an allergy? cea

> triggers are certain foods, alcohol, stress, &

> emotion.

>

> --- rfeuz rfeuz@...> wrote:

> > I have known I had cea for a few years and was

> > finally and

> > formally diagnosed a month ago. I flush to a deep

> > purple on my nose

> > only. Does anyone else only have their nose flush?

> > I can tell I am

> > having an episode because of the almost intense

> > heat. Not to mention

> > the staring!

> >

> > My Dr. prescribed Nicomide. I find this is very

> > expensive as my

> > insurance will not pay for it. I have noticed the

> > different vitamin

> > doses listed. Has anyone just taken the vitamins

> > seperately? It

> > does help, but are there any other over the counter

> > vitamin

> > supplements that have helped others? My only real

> > triggers that I

> > can pin down are residue from the likes of new

> > magazines and being in

> > stores where there is a large quanity of paper or

> > new clothing.

> >

> > Also, just a note to those looking for an

> > inexpensive cleanser; I

> > have found that the Sauve fragrance free face wash

> > is absolutely

> > wonderful. No redness occurs and leaves my skin

> > feeling softer than

> > usual.

> >

> > Again, I am anxious to find out what supplements

> > others are taking

> > that resemble Nicomide? Thanks so much. This is

> > wonderul to have

> > this forum.

> >

> > --

> > Please read the list highlights before posting to

> > the whole group (http://rosacea.ii.net/toc.html).

> > Your post will be delayed if you don't give a

> > meaningful subject or trim your reply text. You must

> > change the subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently

> > published book.

> >

> > To leave the list send an email to

> > rosacea-support-unsubscribe

> >

May 1, 2002

I agree this sounds like an allergy - my husband (nonrosacean) has an

allergy to dye - so he stays away from lots of paper, new clothes and I

always make sure I wash his clothes before he wears them - twice for socks!

Re: (unknown)

> As far as I know, paper products are not triggers for

> rosacea. Are you sure this isn't an allergy? cea

> triggers are certain foods, alcohol, stress, &

> emotion.

>

> --- rfeuz rfeuz@...> wrote:

> > I have known I had cea for a few years and was

> > finally and

> > formally diagnosed a month ago. I flush to a deep

> > purple on my nose

> > only. Does anyone else only have their nose flush?

> > I can tell I am

> > having an episode because of the almost intense

> > heat. Not to mention

> > the staring!

> >

> > My Dr. prescribed Nicomide. I find this is very

> > expensive as my

> > insurance will not pay for it. I have noticed the

> > different vitamin

> > doses listed. Has anyone just taken the vitamins

> > seperately? It

> > does help, but are there any other over the counter

> > vitamin

> > supplements that have helped others? My only real

> > triggers that I

> > can pin down are residue from the likes of new

> > magazines and being in

> > stores where there is a large quanity of paper or

> > new clothing.

> >

> > Also, just a note to those looking for an

> > inexpensive cleanser; I

> > have found that the Sauve fragrance free face wash

> > is absolutely

> > wonderful. No redness occurs and leaves my skin

> > feeling softer than

> > usual.

> >

> > Again, I am anxious to find out what supplements

> > others are taking

> > that resemble Nicomide? Thanks so much. This is

> > wonderul to have

> > this forum.

> >

> > --

> > Please read the list highlights before posting to

> > the whole group (http://rosacea.ii.net/toc.html).

> > Your post will be delayed if you don't give a

> > meaningful subject or trim your reply text. You must

> > change the subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently

> > published book.

> >

> > To leave the list send an email to

> > rosacea-support-unsubscribe

> >

May 8, 2002

Yes it is true that you can never drink again. But so what.....Life can be

a wonderful thing without drinking.....Now when I go to party's I get to

laugh at all the people and the way they act.....Enjoy yourself no matter

what is going on. Life is grand.....If I can ever do anything to help you,

please let me know

Mark E. Armstrong

NW Rep, PAI

www.top5plus5.com

casca@...

(unknown)

> i was just diagnosed with pancreatitis.is it true that i can never

> drink alcohol again?doctor wasn't very specific!

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

May 8, 2002

Well, Jon, look at it this way. Any single drink can be the one that

triggers an attack of Acute Pancreatitis. Any attack of AP has the

possibility of killing you. You never know which acute attack will be the

one to do enough damage to the pancreas to push you into Chronic

Pancreatitis. Once you have Chronic Pancreatitis your life as you knew it

is over. You will need pills to digest food and you will be in severe pain

24x7x365 for the rest of your life (or the life of the organ).

This may sound like I am being rough and dramatic. I am not. It is the

dead, honest, unsweetened truth.

How about that drink now?

Chuck

At 07:46 PM 5/8/2002 +0000, you wrote:

>i was just diagnosed with pancreatitis.is it true that i can never

>drink alcohol again?doctor wasn't very specific!

>

Chuck Sullivan

chuck@...

" When in command, Take charge. When faced with a decision, do what is

right. Nothing else matters. " - Gen. Norman Schwarzkopf

May 8, 2002

<< i was just diagnosed with pancreatitis.is it true that i can never

drink alcohol again?doctor wasn't very specific! >>

You can certainly drink alcohol again, you may drink as much as you choose!

Problem is, it will only damage your pancreas even further, and may well kill

you... But you certainly have that choice, all of us do. We can drink

anytime we want to. We just have to remember that, like everything else in

life, there are consequences that we accept whenever we take any particular

action.

If drinking is a big part of your life, this is a very difficult proposition,

and anybody telling you otherwise is full if $h*+. It may be a very

significant life change. It might be terribly difficult for a while. It may

not be easy at all, and I don't for a second mean to downplay that. But

unfortunately, you have a disease that severely limits, among many other

things, your choices if you want to be healthy. Just the facts, Jack.

Good luck with this. It's not an easy road. Most days, it's difficult and

unpleasant and painful. But nobody on this list has a choice about whether

or not we will have CP - we weren't asked if we'd like to have it. We just

do. We DO have a choice about whether or not we drink, or what we eat and

when, etc. We all have the same choices. I hope you will choose that which

will help sustain your life, rather than that which may well kill you, and

very unpleasantly at that. And the choice is not made only once - it's made

everyday.

Good luck,

Terry in KC

May 15, 2002

Hi:

There was a recent discussion here about the pro/cons of having ones

gallbladder removed. Most say they didn't have significant problems until

afterward- with severe abdomianl pain,etc. I was one of those. However, let

me offer you this perspective. I waited 2 years to have my GB out because

they were not sure it was the cause. I too had sludge, and the Hida scan

demonstrated such. So i waited, more tests,stress, etc... It wasn't until I

screamed enough! and a FP doc listened that they decided to go ahead with my

GB operation. THey found not only sludge, but a chronic infection. I

believe, and they do as well, that the chronic infection contributed to my

CP. I have pancreatic diviusm, but up until then did not have problems. So

what did I learn, and what would I do differently? I WOULD NOT wait to see

if that was the problem. I would go ahead with the surgery. Even knowing all

of the problems I have had since. A bad GB can CAUSE pancreatitis. I would

consider a second opinion. Best of luck to you.

in SC

>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: (unknown)

>Date: Wed, 15 May 2002 02:27:20 -0000

>

>Hi Everyone!!

>I am new here and wanted to say Hi!! I have been having many

>problems with abdominal pain that radiates into my back!! It is very

>painful and almost unbearable!! I have been dealing with the doctors

>for about a month and a half... First they thought it was my

>gallbladder...i had a ultrasound and a hidascan. The ultrasound

>showed sludge and the hidascan showed that my gallbladder wasnt

>emptying at a normal rate. The doc still isnt positive that is what

>is causing my problems. I had another attack today and went in...he

>said he thinks it could be an ulcer but now he is concerned because

>what i describe as my symptoms sounds like pancreatitis. I have no

>idea what it even is!!! Today was the first day I heard the word!

>But let me tell ya whatever it is that I have it is very very

>painful!! They took a bunch of blood today to check for

>pancreatitis...and they are supposed to call me tomorrow to let me

>know what the test showed. Can you tell me what the common symptoms

>are of pancreatitis?? Thank you so much for your help!!!!

>

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May 15, 2002