Becky's site, parents, my support group

[Guest guest]

alisha here,

first of all i have to say that Becky ur site was great. i just loved it so

much and i am going to add it to my webpage of links. to the subject of

parents, i am the only female affected in my whole family (or at least i am

pretty sure), this disorder is a family secret and i am being talked about

by my family, my progress, and what i shouldn't be doing. this is just

something u don't talk about and i really the only one doing just that. i

have no family support at all, i am dealing with this all by myself and i

can't keep doing it all by myself. it is so stressful and i should have

support but i am not getting any. i am being blamed for not talking to my

parents but i don't want to at all, they don't understand what i am going

through and they feel that they do. i feel so rejected and ostracized from

my family. they r making it so hard on me. when my parents talk to me they

yell and scream at me for everything, they want to know the answers to

anything that they ask and if i don't know, say that i don't know, i don't

remember, what r u talking about? they get angry if i say those sentences.

they really don't talk to me, they have to be told by my psychologist!!!!

they get angry when i don't talk to them. besides CMT i have depression,

memory loss and loss of concentration. i hate it so much, i have such bad

marks in school and i am getting harassed by my teachers again for

explanations. i have so much inside me and the only support i get is from

the groups i belong to and my best friends. my parents feel that i am

obsessed with CMT but i am not, its what has taken hold of my life. when i

graduate from high school i will be going to university and become a genetic

counsellor. i will do this and i have been told that i will be crushing my

dreams and that i am crushing them. i don't know what to do at all.

on a lighter note, i have a support group for kids and teenagers with CMT,

if u have a child with CMT please ask them to join, i created the list and i

am a teenager. i want to understand and support them, i

want to be able to help. please ask them to join.

sorry its so long, i just had a lot to say.

" I am not crazy, I am just a teenager! "

http://home.talkcity.com/OceanBlvd/cmtx/index.html

ICQ # 47695812

for information on CMT go here

www.cmtint.org/

are u a kid or teenager with CMT???

wanna talk to others with CMT????

join here if u want to

CMTchildren-subscribe (AT) onelist (DOT) com

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