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Gretchen, Lamar here,

I have had two fusions. The first was L-5/S-1 (11 years ago) . The second was

L-4/5 in Feb of this year. Both stopped my incapacitating back pain. There are

basically three types. One uses your own bone, (usually harvested from the top

of your pelvis. The second uses donor bone. The third uses a metal appliance

screwed to the bones. Different extents of the damage require the different

types, and each has it's advantages and disadvantages. As far as surgery, I had

much less pain when I woke up than when I went in surgery. The last one they

used my own bone and the harvest site was actually more painful than the back.

The recovery period varies as well as post op restrictions. A lot depends on

where the fusion was, and what was done. (As well as the surgeon's personal

preferences.) Often sitting is restricted for several weeks with lower back

fusions. In some types normal activity can resume in 4 weeks. It is important

to remember that with a bone graft fusion total healing takes about a year.

Your bone actually grows over the fusion (like a tree growing around a wire

attached to it).

My CMT may have been some worse after surgery, but I can't say for sure. In my

case the spinal nerve was so compressed that the disc had to be dissected from

around it. It had literally been crushed. So how much is due to that and scar

tissue and how much is my CMT is impossible to determine. Actually the last

surgery left me with some slight INCREASE in " feeling " in my feet (especially

slight touch), yet my legs are weaker.

I personally prefer a neurosurgeon to an orthopedist for spinal surgery, due to

the nerve involvement, but many orthopedists do great surgery. I would not

hesitate to have another one if I was in the pain I was in. It was so bad I

told the doctor to use a knife or a gun, and was literally praying that I would

not wake up from surgery if I had to wake up in the pain I was in. thankfully I

didn't.

The post-op pain was decreased a lot in 3 days and essentially just soreness and

tenderness after 7-10 days. It is important to start exercise as soon as your

Dr. says. Walking if possible is the best, but PT can help with other's for

those that can't walk. I did not have to have as much pain med. after surgery

as I did before.

Hope this helps.

back fusion

Anyone had any parts of their back fused, and what can you tell me about

this? - Gretchen

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Gretchen, Lamar here,

I have had two fusions. The first was L-5/S-1 (11 years ago) . The second was

L-4/5 in Feb of this year. Both stopped my incapacitating back pain. There are

basically three types. One uses your own bone, (usually harvested from the top

of your pelvis. The second uses donor bone. The third uses a metal appliance

screwed to the bones. Different extents of the damage require the different

types, and each has it's advantages and disadvantages. As far as surgery, I had

much less pain when I woke up than when I went in surgery. The last one they

used my own bone and the harvest site was actually more painful than the back.

The recovery period varies as well as post op restrictions. A lot depends on

where the fusion was, and what was done. (As well as the surgeon's personal

preferences.) Often sitting is restricted for several weeks with lower back

fusions. In some types normal activity can resume in 4 weeks. It is important

to remember that with a bone graft fusion total healing takes about a year.

Your bone actually grows over the fusion (like a tree growing around a wire

attached to it).

My CMT may have been some worse after surgery, but I can't say for sure. In my

case the spinal nerve was so compressed that the disc had to be dissected from

around it. It had literally been crushed. So how much is due to that and scar

tissue and how much is my CMT is impossible to determine. Actually the last

surgery left me with some slight INCREASE in " feeling " in my feet (especially

slight touch), yet my legs are weaker.

I personally prefer a neurosurgeon to an orthopedist for spinal surgery, due to

the nerve involvement, but many orthopedists do great surgery. I would not

hesitate to have another one if I was in the pain I was in. It was so bad I

told the doctor to use a knife or a gun, and was literally praying that I would

not wake up from surgery if I had to wake up in the pain I was in. thankfully I

didn't.

The post-op pain was decreased a lot in 3 days and essentially just soreness and

tenderness after 7-10 days. It is important to start exercise as soon as your

Dr. says. Walking if possible is the best, but PT can help with other's for

those that can't walk. I did not have to have as much pain med. after surgery

as I did before.

Hope this helps.

back fusion

Anyone had any parts of their back fused, and what can you tell me about

this? - Gretchen

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Guest guest

Gretchen, Lamar here,

I have had two fusions. The first was L-5/S-1 (11 years ago) . The second was

L-4/5 in Feb of this year. Both stopped my incapacitating back pain. There are

basically three types. One uses your own bone, (usually harvested from the top

of your pelvis. The second uses donor bone. The third uses a metal appliance

screwed to the bones. Different extents of the damage require the different

types, and each has it's advantages and disadvantages. As far as surgery, I had

much less pain when I woke up than when I went in surgery. The last one they

used my own bone and the harvest site was actually more painful than the back.

The recovery period varies as well as post op restrictions. A lot depends on

where the fusion was, and what was done. (As well as the surgeon's personal

preferences.) Often sitting is restricted for several weeks with lower back

fusions. In some types normal activity can resume in 4 weeks. It is important

to remember that with a bone graft fusion total healing takes about a year.

Your bone actually grows over the fusion (like a tree growing around a wire

attached to it).

My CMT may have been some worse after surgery, but I can't say for sure. In my

case the spinal nerve was so compressed that the disc had to be dissected from

around it. It had literally been crushed. So how much is due to that and scar

tissue and how much is my CMT is impossible to determine. Actually the last

surgery left me with some slight INCREASE in " feeling " in my feet (especially

slight touch), yet my legs are weaker.

I personally prefer a neurosurgeon to an orthopedist for spinal surgery, due to

the nerve involvement, but many orthopedists do great surgery. I would not

hesitate to have another one if I was in the pain I was in. It was so bad I

told the doctor to use a knife or a gun, and was literally praying that I would

not wake up from surgery if I had to wake up in the pain I was in. thankfully I

didn't.

The post-op pain was decreased a lot in 3 days and essentially just soreness and

tenderness after 7-10 days. It is important to start exercise as soon as your

Dr. says. Walking if possible is the best, but PT can help with other's for

those that can't walk. I did not have to have as much pain med. after surgery

as I did before.

Hope this helps.

back fusion

Anyone had any parts of their back fused, and what can you tell me about

this? - Gretchen

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Gretchen,

Jill here- I had a spinal fusion in 1986 when I had a Harrington Rod

placed along my entire spine. The spinal fusion was done with bone chips

from my hip, adn it took a full year to fully heal, I was in a fiberglass

half body cast for 3 months, and then a fiberglass, removable cast for the

fusion to fully heal, and the spine in place. The fusion it self is healed-

Hope this hopes you alittle.

Jill

>

>Reply-To: CMTUS (AT) e

>To: CMTUS CMTUS (AT) e>

>Subject: back fusion

>Date: Tue, 06 Jun 2000 18:26:01 -0700

>

>Anyone had any parts of their back fused, and what can you tell me about

>this? - Gretchen

>

>------------------------------------------------------------------------

>Old school buds here:

>http://click.egroups.com/1/4057/10/_/616793/_/960341659/

>------------------------------------------------------------------------

>

>

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Guest guest

Hi, a ...

Thanks for the sweet note, hope all is well with you. Nice to be meeting new

friends, especially when there is such a common thread running through all of

us. The world has its ways to challenge all humans and CMT is just one of

those millions of challenges. Lets all say a prayer tonight before we go to

sleep ... Lets pray for those among us who are suffering the most. My Feet

Hurt. God Bless ...

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Dear Gretchen; I am writing in answer to your questions about fusion. I had a

fusion done on the top part of my back in 1990. That is when the Neurologist

diagnosed my CMT> Although I had it probably all of my life. I was 45 when it

was diagnosed. For that fusion the neuro-surgeon removed one of my floating

ribs and fused a piece about 1 1/2 inches long into my back. It went very well.

I was out of work about 4 months. This went well but my CMT grew worse after

about 6 or 7 years and I was put on disability in Dec of 1997. Later I had

several falls and I messed up the lower part of my back, I am now recovering

from having had another fusion in which a piece of my hip bone was used. After

4 weeks I feel that I am doing very well, my legs are some weaker and I am now

using a walker whenever I go out of the house. But I am not in the severe pains

and spasms that I was in prior to my surgery. Doris

back fusion

Anyone had any parts of their back fused, and what can you tell me about

this? - Gretchen

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Guest guest

Dear Gretchen; I am writing in answer to your questions about fusion. I had a

fusion done on the top part of my back in 1990. That is when the Neurologist

diagnosed my CMT> Although I had it probably all of my life. I was 45 when it

was diagnosed. For that fusion the neuro-surgeon removed one of my floating

ribs and fused a piece about 1 1/2 inches long into my back. It went very well.

I was out of work about 4 months. This went well but my CMT grew worse after

about 6 or 7 years and I was put on disability in Dec of 1997. Later I had

several falls and I messed up the lower part of my back, I am now recovering

from having had another fusion in which a piece of my hip bone was used. After

4 weeks I feel that I am doing very well, my legs are some weaker and I am now

using a walker whenever I go out of the house. But I am not in the severe pains

and spasms that I was in prior to my surgery. Doris

back fusion

Anyone had any parts of their back fused, and what can you tell me about

this? - Gretchen

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