Re: Ninette's new problems

April 14, 1999

In a message dated 4/14/99 7:45:30 AM !!!First Boot!!!, MetaMom123@...

writes:

<< We really do have to be careful though, to analyze our symptoms and make

sure that we are not ignoring something that is not RLS. >>

Connie brings up a very important point!

RLS can be a " great " mimicker of other problems, serious and not-so-serious.

I think that is one reason we, RLS'ers, catch so much flak from health care

providers and others after we are " worked-up " and all the tests are

" negative " (again!). The docs get frustrated because they can't find

anything (docs like to find things, you know), The patient gets frustrated

because " nothing " is found and are not provided a " real " answer for their

symptoms. However, we must not give up nor must we become too resigned to

our fate. We are still humans with human bodies that can go awry. Any " new "

symptom needs to be carefully evaluated and thought about so as not to miss

something that should have been diagnosed earlier in spite of our RLS.

RAINBOWPED@...

April 14, 1999

It's 5 AM here in Poultney and it seems like several of us are having a

sleepless uncomfortable night. I've been up since 3 AM trekking the stairs

for my crackers and milk (didn't help), knitting (because I can't lay still)

while listening to tapes, going to the loo when I really don't have to and

just being miserable in general. I too wrote back to Ninette. She was

having a real bad time and my heart went out to her as I've been there too.

The misery reaches such a crescendo that I've wanted to simply fly out of my

tortured body in an effort to escape. Sometimes I've wondered if St.

had RLS. Reading about his pleading with God about his misery makes me

wonder especially when he gave in to the knowledge that he was going to have

to endure. If RLS was his problem I feel a special empathy for that great

man as he had no medicines to alleviate it and no one to share his torture.

Guess I'll go back and see if I can lay still and go back to sleep for an

hour or so.

CHEERS TO ALL YOU NIGHTHAWKS!

Jeanne and Mr. Biggles in Poultney VT

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