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Re: Tonight no sleep

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Dear Group

Its 2:54 Sunday morning and I've been to sleep about 20 minutes tonight.This

thing called rls is !!!!!!!!!!!!!!there are no words to describe it, but

awful, awful. I am tired and sleepy but the rls says (you stay up and walk or

kick or do whatever but just don't sit or lie down). Feel like I just won't to

scream and run, haven't had a night like this in quiet a while, have done

everything I know to do at this point. Now I guess I just wait until I can get

some sleep.

Thanks to all of you who e-mail, I read it every day or night, don't reply

very much but you are so helpful. Just to know someone is there who

understands. WOW

I take a combination of Permax and Sinemet which usually works, but not

tonight.

Thanks for listening and hope everyone is having a restful and peaceful night

Versie 62 NC

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Hi Versie,

It's 3 something AM here in NJ, and obviously I'm not sleeping either -

in fact I don't think I'v been in bed asleep at this time for months. I

went to Jill's web page today, and I really must bite the bullet and

start working at this thing, instead of just going with it. During a

really bad attack, such as you're having tonight, there's probably not

much you can do except wait it out, and try to hold on with anything

positive you can do, which is what you are doing, by writing to those who

know exactly what you're going through. A light sort of went on for me

when I put together Jill's theory of rewarding yourself by engaging in

something enjoyable in the middle of the night, like computer stuff, and

the Fence story.. If I would force myself to do something I don't like,

such as bills. or clean out a drawer, I would not be positively

reinforcing this middle of the night nonsense!

This kind of goes along with the " Fence " story, about the little boy who

had to pound a nail in a fence every time he lost his temper. After a

while, it just wasn't worth it.

As I said this is not relevant for you tonight, or me either, when the

rls hits with a vengeance. I'm talking about my nighttime patterns, no

doubt brought on by rls, but which have now taken on a life of their own.

I'm replying to the group instead of just you, because maybe there are

others out there who can also relate.

Hope your asleep by now, and not reading this as soon as it's sent!

ne, 59, Lawrenceville, NJ

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