Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 This sort of answers one of my questions. I was going to ask if it was ok for someone with Pancreatitis to take a melatonin supplement. I take trazadone for my Fibromyalgia to help me sleep, and I thought maybe that might help my mom. She gets very little sleep. Mom wanted me to ask if any of you have horrible spine pain, especially when sleeping. Also, are the enzymes that you can buy over the counter, the same as prescription? Will they serve the purpose? Thank you for all your past help. I finally have an appt for my mom with a new doctor who specializes in CP. His name is Dr. Gorelick out of New Haven, CT. She can't get in before the end of March though. In the meantime, she has gone to her PCP, so at least she is getting some help. Thanks again, Lanie , thanks for the name of the med. I'll have to bring it up with my doc. Actually, lately I've had no problem falling asleep so I haven't had to take a trazadone. I've found that 1/4 or 1/2 a tablet doesn't give me anywhere near as bad a zombie feeling depending upon how wide awake I am. The doctor did say I'd have to play with the dosage amount to get the right one for me. I'm allowed up to three a dose ( I don't even want to thing what I'd be like with 3 of them.). I'll keep the ambien in mind though if I continue to have problems with the trazadone. Kimber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 This sort of answers one of my questions. I was going to ask if it was ok for someone with Pancreatitis to take a melatonin supplement. I take trazadone for my Fibromyalgia to help me sleep, and I thought maybe that might help my mom. She gets very little sleep. Mom wanted me to ask if any of you have horrible spine pain, especially when sleeping. Also, are the enzymes that you can buy over the counter, the same as prescription? Will they serve the purpose? Thank you for all your past help. I finally have an appt for my mom with a new doctor who specializes in CP. His name is Dr. Gorelick out of New Haven, CT. She can't get in before the end of March though. In the meantime, she has gone to her PCP, so at least she is getting some help. Thanks again, Lanie , thanks for the name of the med. I'll have to bring it up with my doc. Actually, lately I've had no problem falling asleep so I haven't had to take a trazadone. I've found that 1/4 or 1/2 a tablet doesn't give me anywhere near as bad a zombie feeling depending upon how wide awake I am. The doctor did say I'd have to play with the dosage amount to get the right one for me. I'm allowed up to three a dose ( I don't even want to thing what I'd be like with 3 of them.). I'll keep the ambien in mind though if I continue to have problems with the trazadone. Kimber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Good luck with the ercp let us know how it goes... Hopefully they will have some answers that will help for you.... I take Temazepam for sleep also I have Ambien 10 ordered for me I don't take them together I take ambien only when the other does not work..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Good luck with the ercp let us know how it goes... Hopefully they will have some answers that will help for you.... I take Temazepam for sleep also I have Ambien 10 ordered for me I don't take them together I take ambien only when the other does not work..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Good luck with the ercp let us know how it goes... Hopefully they will have some answers that will help for you.... I take Temazepam for sleep also I have Ambien 10 ordered for me I don't take them together I take ambien only when the other does not work..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Heidi, Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... love simmons Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Heidi, Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... love simmons Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Heidi, Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... love simmons Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 > > Heidi, > > Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... > > love > simmons > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 > > Heidi, > > Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... > > love > simmons > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 I went to a few autopsies lately and you are right. That is where the pancreas is. It was buried alot deeper than I thought it was and the pancreas itself is not very big. I was shocked to see really how small it was in comparison to all of the pain that it generates !!!!!!! The appendix almost seemed bigger. was with me and maybe she can verify as my memory seems to be on vaction lately !!!! has been hooked up to her port with IV's the past week or so as she had a flare up with mega vomiting and pain. I spoke with her today and she was feeling better. But according to the anatomy, that rationale makes perfect sence to me! Lily from Ohio Re: Trouble Sleeping > > Heidi, > > Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... > > love > simmons > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 I went to a few autopsies lately and you are right. That is where the pancreas is. It was buried alot deeper than I thought it was and the pancreas itself is not very big. I was shocked to see really how small it was in comparison to all of the pain that it generates !!!!!!! The appendix almost seemed bigger. was with me and maybe she can verify as my memory seems to be on vaction lately !!!! has been hooked up to her port with IV's the past week or so as she had a flare up with mega vomiting and pain. I spoke with her today and she was feeling better. But according to the anatomy, that rationale makes perfect sence to me! Lily from Ohio Re: Trouble Sleeping > > Heidi, > > Sleeping on your left side may aggrevate your condition as the tail of your pancrease is on the left side behind your spleen and you spleen pushes on yor pancrease when on your left side and causes pain.... Can anyone correct me on this please do..... I will try to scan and up load some pictures that I have to show you exacltywhat I am talking about..... > > love > simmons > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Heidi, No problem.... I try to help as my back ground is in the health feild... have you tried taking what the call gel Ice packs it seems to help me when the pain meds aren;t enough.... My chiropractor made an interesting point... I hurt my neck and back on the job and the six moths later I developed CP he said that he thought the two could be related due to the nerves that go to your pancreas run through your spinal cord.... I love to go to him b/c I feel so much better after my adjustment.... although I am feeling alot better since my surgery with Doctor Sutherland.... Well I will stop my running my mouth as I do when I am feeling alright..... New Orleans La Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Heidi, No problem.... I try to help as my back ground is in the health feild... have you tried taking what the call gel Ice packs it seems to help me when the pain meds aren;t enough.... My chiropractor made an interesting point... I hurt my neck and back on the job and the six moths later I developed CP he said that he thought the two could be related due to the nerves that go to your pancreas run through your spinal cord.... I love to go to him b/c I feel so much better after my adjustment.... although I am feeling alot better since my surgery with Doctor Sutherland.... Well I will stop my running my mouth as I do when I am feeling alright..... New Orleans La Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 wrote: No problem.... I try to help as my back ground is in the health feild... have you tried taking what the call gel Ice packs it seems to help me when the pain meds aren;t enough , My chiropractor says much the same! I have slight scoliosis in my neck from an old skiing injury and have needed adjustments on occasion for over 20 years. Before my CP was diagnosed, it seemed like I was in to see him monthly because of the bad pain. After my diagnosis of CP, I had to return to him again and I told him about the pancreatitis. He said.....ah, now it all makes sense....and explained to me about the nerve bundles in the spinal cord and their relationship to the pancreas. I, too, feel glorious after an adjustment! I don't NEED to see him very often, yet I WISH I could see him all the time, I always feel like I'm walking on air after a chiro visit. I haven't tried the gel ice packs....I've always used a heating pad on the abdomen for about 15 minutes before I fall asleep. I had read on a medical pancreatitis site that heat was the suggested remedy. My husband, just a week or so ago, asked why I didn't try an ice pack instead, and I laughed at him and said bossily, oh no, the medical experts say to use heat! Oops!.....have you really tried the ice, and does that work as well? I am always receptive for trying something new, especially if it's worked for someone else. I'm glad that you are feeling so much better these days since your surgery, it is always good to hear positive news. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Representative PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 wrote: No problem.... I try to help as my back ground is in the health feild... have you tried taking what the call gel Ice packs it seems to help me when the pain meds aren;t enough , My chiropractor says much the same! I have slight scoliosis in my neck from an old skiing injury and have needed adjustments on occasion for over 20 years. Before my CP was diagnosed, it seemed like I was in to see him monthly because of the bad pain. After my diagnosis of CP, I had to return to him again and I told him about the pancreatitis. He said.....ah, now it all makes sense....and explained to me about the nerve bundles in the spinal cord and their relationship to the pancreas. I, too, feel glorious after an adjustment! I don't NEED to see him very often, yet I WISH I could see him all the time, I always feel like I'm walking on air after a chiro visit. I haven't tried the gel ice packs....I've always used a heating pad on the abdomen for about 15 minutes before I fall asleep. I had read on a medical pancreatitis site that heat was the suggested remedy. My husband, just a week or so ago, asked why I didn't try an ice pack instead, and I laughed at him and said bossily, oh no, the medical experts say to use heat! Oops!.....have you really tried the ice, and does that work as well? I am always receptive for trying something new, especially if it's worked for someone else. I'm glad that you are feeling so much better these days since your surgery, it is always good to hear positive news. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Representative PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 wrote: No problem.... I try to help as my back ground is in the health feild... have you tried taking what the call gel Ice packs it seems to help me when the pain meds aren;t enough , My chiropractor says much the same! I have slight scoliosis in my neck from an old skiing injury and have needed adjustments on occasion for over 20 years. Before my CP was diagnosed, it seemed like I was in to see him monthly because of the bad pain. After my diagnosis of CP, I had to return to him again and I told him about the pancreatitis. He said.....ah, now it all makes sense....and explained to me about the nerve bundles in the spinal cord and their relationship to the pancreas. I, too, feel glorious after an adjustment! I don't NEED to see him very often, yet I WISH I could see him all the time, I always feel like I'm walking on air after a chiro visit. I haven't tried the gel ice packs....I've always used a heating pad on the abdomen for about 15 minutes before I fall asleep. I had read on a medical pancreatitis site that heat was the suggested remedy. My husband, just a week or so ago, asked why I didn't try an ice pack instead, and I laughed at him and said bossily, oh no, the medical experts say to use heat! Oops!.....have you really tried the ice, and does that work as well? I am always receptive for trying something new, especially if it's worked for someone else. I'm glad that you are feeling so much better these days since your surgery, it is always good to hear positive news. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Representative PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 In a message dated 1/29/03 9:16:46 PM Eastern Standard Time, plumbug@... writes: > Hi Amy, I have no solutions and only sympathy. This disease has a side effect of a lot of trouble sleeping for many who have it. I can come from several specific things or even a little bit from many things. Mainly, I think when one is up and even moderately active, they can ignore the little things. But, when one is quiet and trying to get to sleep, the symptoms, either great or small, are magnified and can't be ignored. As for sleep, I would suggest total darkness, quiet, regular sleep times, (all the usual stuff). If one can't sleep don't frustrate yourself by trying too long. If necessary just get up for a while. a few sips of water, don't turn the TV on that's just not worth it as it is either boring or stimulating. Read, work a crossword puzzle. If your hot, cool down, if your cold, warm up. Stay up a while and then try to go to sleep again. Sometimes you can but if you can't, don't get too upset, remember tomorrow night is just around the corner. If you have a sleepless or little sleep night, try not to nap the next day or you will build a problem for the next night. Maybe others have suggestions and if they do I would appreciate them being posted on this board. This aspect of Chronic Panc. is one I fight with constantly. Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 In a message dated 1/29/03 9:16:46 PM Eastern Standard Time, plumbug@... writes: > Hi Amy, I have no solutions and only sympathy. This disease has a side effect of a lot of trouble sleeping for many who have it. I can come from several specific things or even a little bit from many things. Mainly, I think when one is up and even moderately active, they can ignore the little things. But, when one is quiet and trying to get to sleep, the symptoms, either great or small, are magnified and can't be ignored. As for sleep, I would suggest total darkness, quiet, regular sleep times, (all the usual stuff). If one can't sleep don't frustrate yourself by trying too long. If necessary just get up for a while. a few sips of water, don't turn the TV on that's just not worth it as it is either boring or stimulating. Read, work a crossword puzzle. If your hot, cool down, if your cold, warm up. Stay up a while and then try to go to sleep again. Sometimes you can but if you can't, don't get too upset, remember tomorrow night is just around the corner. If you have a sleepless or little sleep night, try not to nap the next day or you will build a problem for the next night. Maybe others have suggestions and if they do I would appreciate them being posted on this board. This aspect of Chronic Panc. is one I fight with constantly. Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Hi Amy, I'm male and 59 but also have problems with hot flashes and sweating. I have had CP for 38 years but before my current bout of constant pain began in 2000, I began having these uncontrollable sweats. The are mostly at night but can also occur during the day. I have tried injections of testosterone but still had them. None of my doctors have been able to tell me why. I just change clothes a lot. The scissor leg kicking sounds a little bit like a problem I had where when I went to bed and was relaxed I would have what felt like electrical charges going off in my legs requiring constant movement. I really couldn't stand that feeling. The doctor diagnosed it as Restless Leg Syndrome based on the symptoms. She prescribed Klonopin ( clonazepam) to help me sleep and relax those muscles. So far it's worked and I have been able to cut the dose in half or not take it at all most nights. I had never head of RLS and it took me a year of suffering before I was able to come up with the description that led to the diagnosis. I hope this helps. Bruce Finley trouble sleeping Hello everybody, I've had trouble sleeping the last few weeks and I know part of it is because of pain from my scar tissue. But even when I am not having pain I have trouble, whether its being really thirsty or getting what seems like hot flashes (though I'm only 20), or I just feel restless and I'm scissor kicking my legs out under my sheets! I just want to get a good nights sleep. Maybe its because I am on chemotherapy or maybe I am just nervous about my health. Anyway, If any of you have these problems please tell me what you do! Do any of you have any advice or tips for getting zzzzz's?? Gratefully, Amy in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Hi Amy, I'm male and 59 but also have problems with hot flashes and sweating. I have had CP for 38 years but before my current bout of constant pain began in 2000, I began having these uncontrollable sweats. The are mostly at night but can also occur during the day. I have tried injections of testosterone but still had them. None of my doctors have been able to tell me why. I just change clothes a lot. The scissor leg kicking sounds a little bit like a problem I had where when I went to bed and was relaxed I would have what felt like electrical charges going off in my legs requiring constant movement. I really couldn't stand that feeling. The doctor diagnosed it as Restless Leg Syndrome based on the symptoms. She prescribed Klonopin ( clonazepam) to help me sleep and relax those muscles. So far it's worked and I have been able to cut the dose in half or not take it at all most nights. I had never head of RLS and it took me a year of suffering before I was able to come up with the description that led to the diagnosis. I hope this helps. Bruce Finley trouble sleeping Hello everybody, I've had trouble sleeping the last few weeks and I know part of it is because of pain from my scar tissue. But even when I am not having pain I have trouble, whether its being really thirsty or getting what seems like hot flashes (though I'm only 20), or I just feel restless and I'm scissor kicking my legs out under my sheets! I just want to get a good nights sleep. Maybe its because I am on chemotherapy or maybe I am just nervous about my health. Anyway, If any of you have these problems please tell me what you do! Do any of you have any advice or tips for getting zzzzz's?? Gratefully, Amy in CA Quote Link to comment Share on other sites More sharing options...
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