Re: Digest Number 341 H Newsletter

[Guest guest]

In a message dated 7/1/2000 6:51:51 PM Pacific Daylight Time,

joyceanns@... writes:

<< I read all I could about them,

which was quite a lot, on the internet before deciding to become a member.

I'm glad I did too as my sister and her husband wound up being pregnant, and

they asked me all kinds of questions about the probability of the baby

having CMT. We were able to get DNA testing done on me, my sister, and

eventually the baby at the time of birth. >>

So did your sister and her baby have CMT

'

[Guest guest]

I agree, . I'm sure many people don't even know these organizations

exist. For years all the info I received was from MDA. And it was very

limited. Then as a result of severe depression and being coached to find

out everything I could by my psychiatrist, I found the CMTA

www.charcot-marie-tooth.org on the internet. I read all I could about them,

which was quite a lot, on the internet before deciding to become a member.

I'm glad I did too as my sister and her husband wound up being pregnant, and

they asked me all kinds of questions about the probability of the baby

having CMT. We were able to get DNA testing done on me, my sister, and

eventually the baby at the time of birth.

We do need to support the organizations that already exist for many reasons.

Most of all, it makes good sense to concentrate our financial support to a

few organizations that provide good, detailed information for their members,

rather than having a multitude of organizations that all provide the same

weak knowlege base and/or function.

Just my opinion...

Joyce Erie, PA

Digest Number 341

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[Guest guest]

I agree, . I'm sure many people don't even know these organizations

exist. For years all the info I received was from MDA. And it was very

limited. Then as a result of severe depression and being coached to find

out everything I could by my psychiatrist, I found the CMTA

www.charcot-marie-tooth.org on the internet. I read all I could about them,

which was quite a lot, on the internet before deciding to become a member.

I'm glad I did too as my sister and her husband wound up being pregnant, and

they asked me all kinds of questions about the probability of the baby

having CMT. We were able to get DNA testing done on me, my sister, and

eventually the baby at the time of birth.

We do need to support the organizations that already exist for many reasons.

Most of all, it makes good sense to concentrate our financial support to a

few organizations that provide good, detailed information for their members,

rather than having a multitude of organizations that all provide the same

weak knowlege base and/or function.

Just my opinion...

Joyce Erie, PA

Digest Number 341

> ------------------------------------------------------------------------

> @Backup- Protect and Access your data any time, any where on the net.

> Try @Backup FREE and receive 300 points from mypoints.com Install now:

> http://click.egroups.com/1/5666/13/_/616793/_/962362454/

> ------------------------------------------------------------------------

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