Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Hi Anita, I have a 6 year old son...and I would swear he has RLS. He sleeps with me at times and he always kicks his covers off and seems to move around a lot in his sleep. He even has some nights where he wakes up crying saying that his legs hurt. I am not sure if it is RLS or growing pains, although we had a discussion about growing pains once in the group and quite a few of us recall having had those pains too and wondered if they were related. I think the one thing to be grateful for is that this RLS seems to worsen with age and that your daughter will probably not experience anything to dramatic for years. I can give my son a ibuprofen and he is fine. ( RLS or growing pains as they may be) As for not having a baby because of this...I can't imagine! I have a 4 month old little girl and I wouldn't trade that for the world. I had horrible RLS during my pregnancy and it is still so worth it. Think of all the worse things that there are in this world. RLS although terrible is a livable and treatable disease. Lets think good thoughts that they will find a cure ( with the help of this group and all the research that we do on a daily basis) I am sure that our survey will inspire some doctor to figure this thing out once and for all. Good luck with your son Raine In Utah where it is trying to be spring if the wind doesn't blow it away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Hi Anita, I have a 6 year old son...and I would swear he has RLS. He sleeps with me at times and he always kicks his covers off and seems to move around a lot in his sleep. He even has some nights where he wakes up crying saying that his legs hurt. I am not sure if it is RLS or growing pains, although we had a discussion about growing pains once in the group and quite a few of us recall having had those pains too and wondered if they were related. I think the one thing to be grateful for is that this RLS seems to worsen with age and that your daughter will probably not experience anything to dramatic for years. I can give my son a ibuprofen and he is fine. ( RLS or growing pains as they may be) As for not having a baby because of this...I can't imagine! I have a 4 month old little girl and I wouldn't trade that for the world. I had horrible RLS during my pregnancy and it is still so worth it. Think of all the worse things that there are in this world. RLS although terrible is a livable and treatable disease. Lets think good thoughts that they will find a cure ( with the help of this group and all the research that we do on a daily basis) I am sure that our survey will inspire some doctor to figure this thing out once and for all. Good luck with your son Raine In Utah where it is trying to be spring if the wind doesn't blow it away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi Anita, >I just joined the e-mail group. My husband has had RLS all his life (he vividly remembers having it a child) and was diagnosed about 5 years ago. He is now doing great on Sinemet and Neurontin, and is being seen by Dr. Ehrenberg. > >However, we just had a baby and I'm finding that there is almost no information on >RLS in children, young adults, and pregnancy in Nightwalkers. The only stuff I've >found so far is one chapter in the Sleep Thief book. > >Does anyone out there have small children with RLS? How small? My mother-in-law is being driven insane by her RLS at the moment and my sister-in-law had RLS during both her pregnancies (and severe varicose veins and has to have her veins stripped now that she has had her last child). Both my mother-in-law and my wife sleepwalk at night (probably not related). That's the background, we've noticed that my son Dale is terribly restless at night. He's now two and even in winter I can't put pajama pants on him when he sleeps. He generally comes to our bed at about 3am and flings himself about so badly that one of us has to go sleep in his bed. Gets very hot and will kick until the covers are off. I also get very hot in the bed at night but I'm not as restless as he is (so it could be just that). He's two so it's a bit difficult to ask " Have you got crawly legs at night!? " > >Has anyone else worried about whether or not to go ahead and have a baby because of >their chance of getting RLS? We finally decided to just go ahead and do it. Now we want >to gather as much information as we can so we can identify and manage RLS in our daughter >if she gets it. I must say that there are so many different things that can get passed down, it comes down to if you really want children or not. With the advancements in medicine there's a good chance relief is just around the corner! So, be positive and pray for the best. In my family my mother has Celiacs Disease (has to be on a permanent gluten free diet. Those with Celiacs disease and not on a gluten free diet run a 10 times greater chance of cancer than a heavy smoker, normally non-hodgkins lymphoma). There is a very strong chance of 1st degree relatives having it, one aunt has died from NHL and the other is struggling with it as we speak. We keep a very careful eye on our kids, we take responsibility for them and don't rely on the doctors to pick up everything, especially with these rare conditions. I think the fact that you are making an effort to educate yourselves makes all the difference. Support, love and laughter, play a big part in coping with hardships, you'll be well equiped! Best Regards joe van niekerk Cape Town South Africa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 You know I was told I had growing pains as a child too. I think it was in my knee's. Wonder if that ties in somehow with that guy that had a knee injury. And the rls quit. I'm sorry I don't remember who that was. COCO MO. wrote: > > > Hi Everyone- > > I am wondering if there is a legitimate medical diagnosis as " growing > pains " in children, or if it is really RLS at a young age. I have RLS, > some of my sons have RLS, and my 4 year old granddaughter often has leg > pains. TIA. > > C, 55 in Huntington Beach, CA > > ------------------------------------------------------------------------ > Did you know that knowledge is power? > http://www.ONElist.com > Join a new ONElist e-mail community and strengthen your mind! > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for support purposes > and is not intended to replace the examination, diagnosis and treatment of a licensed > physician and no such claims are inferred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 In a message dated 4/19/99 12:18:47 AM !!!First Boot!!!, lindacampbell@... writes: << I am wondering if there is a legitimate medical diagnosis as " growing pains " in children, >> Yes Quote Link to comment Share on other sites More sharing options...
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