Re: rls and my neurology appointment

[Guest guest]

In a message dated 3/25/99 8:21:00 PM !!!First Boot!!!,

goviers@... writes:

<< i first asked him to order a blood test for ferritin and he almost laughed

at me - after some discussion he said he didn't believe there were any

valid studies that demonstrated that ferritin levels had any effect on rls

BUT he promised me that he would do more research on the subject. i also

asked him about switching over to permax or mirapex since the neurontin had

seemingly ceased to improve my condition - he said that if i wanted he'd

switch me over to a low dose of siminet >>

First, I would like to say that there are " valid " studies that demonstrate

that ferritin levels have effect on RLS..........this is rather " old " stuff

for most of us. This has been known for a long, long time!

Secondly, what is it with these neurologists? They seem to have " sinemet "

branded into their brain! Again, when I went to a neurologist and the first

words out of his mouth were: " Sinemet, sinemet, sinemet! " (in his thick

Indian accent), I promptly walked away as I mumbled: " thanks but no thanks! "

I have never been back to a neurologist since!

In my limited experience, I have observed the following knee-jerk responses:

Neurologist: " sinemet, sinemet, sinemet "

Other generalist doctors: " klonopin, klonopin, klonopin "

What this tells me is that, yes, doctors have finally " heard " about RLS and

think they know how to treat it but they have not put enough time nor effort

in really learning about RLS/PLMD and proper treatment regimens. Come on

docs, do your homework and help us out here!

IMHO

RAINBOWPED@...

[Guest guest]

You're right, , and that's why so many of us are willing to try

alternative remedies!

ne, 59, Lawrenceville,NJ

On Fri, 26 Mar 1999 06:42:16 EST RAINBOWPED@... writes:

>From: RAINBOWPED@...

>

>In a message dated 3/25/99 8:21:00 PM !!!First Boot!!!,

>goviers@... writes:

>

><< i first asked him to order a blood test for ferritin and he almost

>laughed

> at me - after some discussion he said he didn't believe there were

>any

> valid studies that demonstrated that ferritin levels had any effect

>on rls

> BUT he promised me that he would do more research on the subject. i

>also

> asked him about switching over to permax or mirapex since the

>neurontin had

> seemingly ceased to improve my condition - he said that if i wanted

>he'd

> switch me over to a low dose of siminet >>

>

>First, I would like to say that there are " valid " studies that

>demonstrate

>that ferritin levels have effect on RLS..........this is rather " old "

>stuff

>for most of us. This has been known for a long, long time!

>Secondly, what is it with these neurologists? They seem to have

> " sinemet "

>branded into their brain! Again, when I went to a neurologist and

>the first

>words out of his mouth were: " Sinemet, sinemet, sinemet! " (in his

>thick

>Indian accent), I promptly walked away as I mumbled: " thanks but no

>thanks! "

>I have never been back to a neurologist since!

>In my limited experience, I have observed the following knee-jerk

>responses:

>Neurologist: " sinemet, sinemet, sinemet "

>Other generalist doctors: " klonopin, klonopin, klonopin "

>What this tells me is that, yes, doctors have finally " heard " about

>RLS and

>think they know how to treat it but they have not put enough time nor

>effort

>in really learning about RLS/PLMD and proper treatment regimens. Come

>on

>docs, do your homework and help us out here!

>IMHO

>

>RAINBOWPED@...

>

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[Guest guest]

BRAVO !!! Well said.