Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Amy!! Welcome to the list. On my last visit to my neurologist, she was very surprised to discover strong reflexes that weren't there for as far as she has record of my disease. She said she would consult another doc about it and tell me about it on the next visit! I'm not what the reflexes mean, but I hope it's something good, hehe :-) Sasha. Amy wrote: > From: amy913@... (Amy) > > How are you guys. I subscribed to this list last week but havent left a > message yet. I have been very busy, but I wanted to tell everyone about > what happened to my mom at the doctors office and find out if anyone has > heard of this before. First of all I know some of you already but for > the ones I dont, I am Amy. I have never been diagnosed with CMT,but we > are pretty sure I have it to. I have the balance problem, high arches, > trembling in my hands etc. My son is 6 yrs old and he has been > diagnosed with it. I am having very bad probs with the school abd him. > My mom has it and is on several medications. My aunts have it and an > uncle several cousins. So as you can see it is all through my family. > Anyway on to my moms doctor visit. She went to see her Neurologist > today and she is excited because for the last 3 yrs she has not had any > reflexes. Well today she did! She has been having a little pain in her > left foot lately, and that is where the reflex was. Has anyone heard of > that happening before? Her doctor said he has never expeienced it with > a CMT patient. But then again, where we are from there is not a lot of > us. ha ha. Hope everyone is doing good and Ill talk later. > Amy > > amy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Amy!! Welcome to the list. On my last visit to my neurologist, she was very surprised to discover strong reflexes that weren't there for as far as she has record of my disease. She said she would consult another doc about it and tell me about it on the next visit! I'm not what the reflexes mean, but I hope it's something good, hehe :-) Sasha. Amy wrote: > From: amy913@... (Amy) > > How are you guys. I subscribed to this list last week but havent left a > message yet. I have been very busy, but I wanted to tell everyone about > what happened to my mom at the doctors office and find out if anyone has > heard of this before. First of all I know some of you already but for > the ones I dont, I am Amy. I have never been diagnosed with CMT,but we > are pretty sure I have it to. I have the balance problem, high arches, > trembling in my hands etc. My son is 6 yrs old and he has been > diagnosed with it. I am having very bad probs with the school abd him. > My mom has it and is on several medications. My aunts have it and an > uncle several cousins. So as you can see it is all through my family. > Anyway on to my moms doctor visit. She went to see her Neurologist > today and she is excited because for the last 3 yrs she has not had any > reflexes. Well today she did! She has been having a little pain in her > left foot lately, and that is where the reflex was. Has anyone heard of > that happening before? Her doctor said he has never expeienced it with > a CMT patient. But then again, where we are from there is not a lot of > us. ha ha. Hope everyone is doing good and Ill talk later. > Amy > > amy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 I just wanted to say I'm so glad I have found all of you and this site. My Dad died 14 years ago and I havn't known another person with CMT since. Whoever thought this web site up Thank You. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 welcome to our site. dimitrios greece warner_burris@... wrote: > From: warner_burris@... > > I just wanted to say I'm so glad I have found all of you and this > site. My Dad died 14 years ago and I havn't known another person with > CMT since. Whoever thought this web site up Thank You. > > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click.egroups.com/1/936/5/_/616793/_/952458779/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 welcome to our site. dimitrios greece warner_burris@... wrote: > From: warner_burris@... > > I just wanted to say I'm so glad I have found all of you and this > site. My Dad died 14 years ago and I havn't known another person with > CMT since. Whoever thought this web site up Thank You. > > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click.egroups.com/1/936/5/_/616793/_/952458779/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 In a message dated 3/8/2000 6:08:48 AM Pacific Standard Time, polyvios@... writes: << HI MY MOTHER DIED WHEN I WAS 14 AND I'M STILL MISSING HER DIMITRIOS >> It's a very hard age to loose a parent. I am still not over my Fathers death. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 In a message dated 3/8/2000 6:08:48 AM Pacific Standard Time, polyvios@... writes: << HI MY MOTHER DIED WHEN I WAS 14 AND I'M STILL MISSING HER DIMITRIOS >> It's a very hard age to loose a parent. I am still not over my Fathers death. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 HI MY MOTHER DIED WHEN I WAS 14 AND I'M STILL MISSING HER DIMITRIOS jacee17@... wrote: > From: jacee17@... > > In a message dated 3/7/00 11:59:43 AM Pacific Standard Time, > warner_burris@... writes: > > << I just wanted to say I'm so glad I have found all of you and this > site. My Dad died 14 years ago and I havn't known another person with > CMT since. Whoever thought this web site up Thank You. > > > >> > How are you? My Dad died when I was 14. Hard to loose a parent at any age i > am sure. > jenny > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click.egroups.com/1/937/5/_/616793/_/952483015/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 HI MY MOTHER DIED WHEN I WAS 14 AND I'M STILL MISSING HER DIMITRIOS jacee17@... wrote: > From: jacee17@... > > In a message dated 3/7/00 11:59:43 AM Pacific Standard Time, > warner_burris@... writes: > > << I just wanted to say I'm so glad I have found all of you and this > site. My Dad died 14 years ago and I havn't known another person with > CMT since. Whoever thought this web site up Thank You. > > > >> > How are you? My Dad died when I was 14. Hard to loose a parent at any age i > am sure. > jenny > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click.egroups.com/1/937/5/_/616793/_/952483015/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 << It's a very hard age to lose a parent. I am still not over my Fathers death. >> I lost my dad in 1977 and my mom in 1991 (she was 10 years younger than he was). I still think of them often and I miss them very much. There was so much more I wanted to say to them, and to learn from them. Kat in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 << It's a very hard age to lose a parent. I am still not over my Fathers death. >> I lost my dad in 1977 and my mom in 1991 (she was 10 years younger than he was). I still think of them often and I miss them very much. There was so much more I wanted to say to them, and to learn from them. Kat in Seattle Quote Link to comment Share on other sites More sharing options...
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