Re: Foot SurgeryPEGGY-MONICA

[Guest guest]

YOUR RIGHT THE TRIPLE IS NOT THE ANKLE I JUST HAD IT DONE AND I DO NOT HAVE MY

ANKLES DONE. THE TRIPLE OSTEOTOMY IS DONE FOR BALANCE ON THE TOES I DO BELIEVE

THEY FUSE THE TOE JOINTS BUT NOT THE ANKLE, AND YOU HAVE TO BELIEVE IN YOUR

DOCTOR CAUSE WHEN I HAD MY LEFT FOOT DONE THEY TOLD ME I DIDN'T NEED THIS DONE

AND WHEN THEY DID MY RIGHT FOOT THEY DID IT AND NOW I HAVE TO GO BACK IN AND

HAVE A NOTHER OPERATION CAUSE I NEEDED THE TRIPLE AFTER ALL. THEY TOLD ME THAT

IT'S LIKE FIRST YOU DO THE MAIN THINGS AND THEN YOU ADJUST THE REST, TILL

FINALLY YOUR FOOT IS RIGHT.THEY DON'T THINK OF ALL THE PAIN AND TIME YOU PUT

INTO THERE SCREWING AROUND BUT I GUESS THIS IS LIFE FOR US, NO BODY REALLY KNOWS

THAT MUCH ABOUT CMT OR THEY WOULD HAVE A CURE BY NOW.YES I WANTED TO KILL MY

DOCTOR BUT WHAT CAN YOU DO. I DON'T THINK THEY REALLY KNOW TILL THEY GET INSIDE

AND THEN IT'S A JUDGEMENT CALL, WE ALL KNOW HOW DIFFERENT WE ARE AND HOW

DIFFERENT THINGS HELP DIFFERENT PEOPLE SO I THINK THEY ARE UP AGAINST THE SAME

THING. I HOPE MY SURGERY LASTS A LONG TIME BUT IF NOT ,IM AT LEAST BETTER THEN

BEFOR. I THINK IF I KEPT WALKING ON THE SIDES OF MY TWO FEET I WOULD END UP IN A

WHEEL CHAIR I'M CLOSE TO THAT NOW,I AM 52 ALSO AND TRYING EVERY THING I CAN TO

KEEP ON GOING MONICA

Re: Foot SurgeryPEGGY-

No Theresa, I am not frustrated. I just would never go through it again not

for any reason. That's my opinion and I am sticking to it. I also said

that everyone is different and may have other foot problems. - when I was

asked, I said that I did not have any other problems. and that is fact.

and now am 52 - cmt has progressed greatly, and still have no other foot

problems except the ones caused by the surgery!!!! But, have had them for

many years, and put up with them. But, would never advise anyone else to

have the surgery. Also, I believe the triple is not the ankle - but might

be wrong - three more sets of bones in addition to my ankle were fused - all

the way to the toes - this is NOT an ankle fusion...... at least my other

doctors informed me that it was not.... maybe different doctors call it

different things, but still, many people talk about have the triple, and NOT

the ankle. Does this make any sense to you???? Doesn't to me, if ankle is

part of the triple. My doctor lied to me - and admitted it afterwards that

he did not have my permission to do the other joints.... as he was not

suppose to do them. So, since I am not a doctor, I don't know, but I do

believe that your doctor and mine are of a totally different mine!! But

then that is not unusual either......

Have a good night.

Re: Foot SurgeryPEGGY-

>

>

> Hi Peggy,

>

> You said<< And I was told the ankle would be

> fused - not 3 more sets of bones in addition to the ankle>>

>

> I did not say 3 more sets of bones--what I said was that the ankle fusion

> was ONE part of the triple arthrodesis. If I understand correctly, the

> back half of the foot has to be broken, so that the ankle can be placed

> in proper position. This involves more than the ankle bone itself.

>

> You are so right in saying--<

any sense to me - a fused bone, is a fused bone.>> The fused ankle does

> not permit any flexing forward or backward, but NOT to the side, so as

> more muscles atrophy, there is no support and the foot will start to go

> over on that side. But --the fused ankle remains fused.

>

> Peggy said--< some changes while young in your feet as you are still growing,>> You

> are right again, but you are speaking about a normal person's foot, that

> doesn't have CMT. If the disease progresses, then changes will always be

> occurring. Sometimes the CMT seems to be in a dormant state, and you

> stay at the same level for years.When this happens, then no changes will

> occur.That last sentence needs to be re-read--no progression, no changes.

>

>

that

> this MAJOR type of surgery was " short term " . >>

> Theresa said<

person, and the rate of progression. Some need it done in 10 or so

> years,others feel they don't need it again.>>

> My last sentence says that, depending on the person, it may NOT be needed

> again. I wouldn't call that " short term " .

>

> Final analysis--the one thing all CMT people agree on, is that

> everybody's different. I realize you are frustrated, and am sorry I can't

> help you more.

>

> Theresa

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