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Kim -- I don't know more than what I've lived -- My mom has CMT but her

symtoms would not direct someone to think she has it. My Grandmother has it

but was diagnosed with arthritis and diabeties not CMT. Three of my sisters

have it -- only my older sister of four of us is symptomatic.

By symptomatic I mean that are symptoms are not what brought us to the

attention of the physicians. Our symptoms haven't stood out as CMT symptoms

yet that is what we have. The gene is there -- for us. My uncles have it

severly but no one ever thought to check out the women in our family because

it was thought we had the CMT that was only passed to the males. That is

until my older sister was diagnosed and then all of us had the genetic

testing done (except my mother and grandmother who are pressumed to have

passed it on to us).

Now the many mild symptoms we experience we recognize as CMT because of our

diagnosis. We don't just dismiss them. We are aware and take heed.

Nice to hear your story Kim -- thank you.

Natilee

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