Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 6:12:44 PM Pacific Standard Time, malfunct@... writes: << Doesn't to me, if ankle is part of the triple. My doctor lied to me - and admitted it afterwards that he did not have my permission to do the other joints.... as he was not suppose to do them. So, since I am not a doctor, I don't know, but I do believe that your doctor and mine are of a totally different mine!! But then that is not unusual either...... >> Umm the ankle was called an osteotemy (sp) I had a triple fash and it included the ankle fusion. Sounds like you never needed surgery jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 2:58:50 PM Pacific Standard Time, benember@... writes: << As far as fusions lasting forever, , when you realize that the CMT is still creating more muscle loss, the foot again starts to change shape because of this. Most ankle fusions and triple arthrod. are done as temporary, to help the patient, and give them better walking options, and choice of footwear. Some last much longer than others, depending on the person, and the rate of progression. Some need it done in 10 or so years, others feel they don't need it again. >> Umm that must be it. I have a muscle that is weaking from stress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 2:58:50 PM Pacific Standard Time, benember@... writes: << As far as fusions lasting forever, , when you realize that the CMT is still creating more muscle loss, the foot again starts to change shape because of this. Most ankle fusions and triple arthrod. are done as temporary, to help the patient, and give them better walking options, and choice of footwear. Some last much longer than others, depending on the person, and the rate of progression. Some need it done in 10 or so years, others feel they don't need it again. >> Umm that must be it. I have a muscle that is weaking from stress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 4:30:34 PM Pacific Standard Time, jrmonica@... writes: << I ALSO HAVE DROP FOOT ,AND THAT DIDN'T CHANGE WITH MY OTHER SURGERYS. MONICA >> My drop foot was always fixed with my surgeries. Now that I am an adult I don't mind the fusions , but as a kid it was BAD! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 4:30:34 PM Pacific Standard Time, jrmonica@... writes: << I ALSO HAVE DROP FOOT ,AND THAT DIDN'T CHANGE WITH MY OTHER SURGERYS. MONICA >> My drop foot was always fixed with my surgeries. Now that I am an adult I don't mind the fusions , but as a kid it was BAD! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 5:25:53 PM Pacific Standard Time, malfunct@... writes: << The brace is much easier to wear and put up with - if it breaks, you can get another..... if they screw it up with surgery - is very hard to fix, and never can fix correctly. And, oh, so painful. >> Good point. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 In a message dated 1/24/00 5:25:53 PM Pacific Standard Time, malfunct@... writes: << The brace is much easier to wear and put up with - if it breaks, you can get another..... if they screw it up with surgery - is very hard to fix, and never can fix correctly. And, oh, so painful. >> Good point. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Hi Peggy, You said-<<<< had an ankle fusion that ended up being an ankle fusion plus a triple orthdesious (sp) without my consent.>> Perhaps I'm wrong, but the people I know, including my daughter, who had ankle fusion, had it done as one part of triple arthrodesis. Perhaps, the doctor called it 'ankle fusion', since that is easier to remember? If you were walking on the outside edge of your feet, after the surgery, was the sole of your foot flat on the floor again? As far as fusions lasting forever, , when you realize that the CMT is still creating more muscle loss, the foot again starts to change shape because of this. Most ankle fusions and triple arthrod. are done as temporary, to help the patient, and give them better walking options, and choice of footwear. Some last much longer than others, depending on the person, and the rate of progression. Some need it done in 10 or so years, others feel they don't need it again. For the best explanation of the ins and outs of this, speak to your surgeon. My daughter had her L foot done first about 10 years ago, and as more muscle atrophies (dies) the foot is again being pulled into a shape that will soon need attention. Hope this helps. Theresa ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 HI PEGGY-JUST A QUESTION FOR YOU DOES A FUSED ANKLE CHANGE THE WAY YOU WALK?? I WAS THINKING ABOUT HAVING THIS DONE IN MY NEXT OPERATION AND WONDERED WHAT THE EFFECTS ARE ON YOUR BODY AND DO YOU RECOMMEND THIS SURGERY??YES I ALSO HAVE DROP FOOT ,AND THAT DIDN'T CHANGE WITH MY OTHER SURGERYS. MONICA Re: Foot SurgeryPEGGY- Hi Theresa, Peggie here. No, I was told that my ankle would be fused to stop my foot dropping and would therefore replace wearing my brace. That was the sole reason for the surgery - to replace wearing a short leg brace! I had no others problems what so ever. And I was told the ankle would be fused - not 3 more sets of bones in addition to the ankle. I can understand some changes while young in your feet as you are still growing, I cannot, and have never heard before (and certainly not from any of my doctors) that this MAJOR type of surgery was " short term " . If I had, I never would have let them talk me into it in the first place. I was told that at my age of 26 at the time, that looking at wearing braces for the rest of my life, that this was the way to solve wearing the braces. Only on this list have I ever heard that fused bones were suppose to be short term!! And it doesn't make any sense to me - a fused bone, is a fused bone. I could see that maybe if the foot turned more, more surgery might be necessary, but if the ankle is fused and the next 3 sets of bones are fused, and it is done correctly, the fusion would not allow the foot to move - therefore, could not turn anymore. I may be missing something here, don't know. And, many different people on this list and one other have talked in regards to having the triple without the ankle being done, so think maybe it might depend on the doctor???? Just my input...... Re: Foot SurgeryPEGGY- > > > Hi Peggy, > > You said-<<<< had an ankle fusion that ended up being an ankle fusion > plus a triple > orthdesious (sp) without my consent.>> > > Perhaps I'm wrong, but the people I know, including my daughter, who had > ankle fusion, had it done as one part of triple arthrodesis. Perhaps, > the doctor called it 'ankle fusion', since that is easier to remember? If > you were walking on the outside edge of your feet, after the surgery, was > the sole of your foot flat on the floor again? > > As far as fusions lasting forever, , when you realize that the CMT > is still creating more muscle loss, the foot again starts to change shape > because of this. Most ankle fusions and triple arthrod. are done as > temporary, to help the patient, and give them better walking options, and > choice of footwear. Some last much longer than others, depending on the > person, and the rate of progression. Some need it done in 10 or so years, > others feel they don't need it again. > > For the best explanation of the ins and outs of this, speak to your > surgeon. My daughter had her L foot done first about 10 years ago, and as > more muscle atrophies (dies) the foot is again being pulled into a shape > that will soon need attention. > > Hope this helps. Theresa > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Hi Theresa, Peggie here. No, I was told that my ankle would be fused to stop my foot dropping and would therefore replace wearing my brace. That was the sole reason for the surgery - to replace wearing a short leg brace! I had no others problems what so ever. And I was told the ankle would be fused - not 3 more sets of bones in addition to the ankle. I can understand some changes while young in your feet as you are still growing, I cannot, and have never heard before (and certainly not from any of my doctors) that this MAJOR type of surgery was " short term " . If I had, I never would have let them talk me into it in the first place. I was told that at my age of 26 at the time, that looking at wearing braces for the rest of my life, that this was the way to solve wearing the braces. Only on this list have I ever heard that fused bones were suppose to be short term!! And it doesn't make any sense to me - a fused bone, is a fused bone. I could see that maybe if the foot turned more, more surgery might be necessary, but if the ankle is fused and the next 3 sets of bones are fused, and it is done correctly, the fusion would not allow the foot to move - therefore, could not turn anymore. I may be missing something here, don't know. And, many different people on this list and one other have talked in regards to having the triple without the ankle being done, so think maybe it might depend on the doctor???? Just my input...... Re: Foot SurgeryPEGGY- > > > Hi Peggy, > > You said-<<<< had an ankle fusion that ended up being an ankle fusion > plus a triple > orthdesious (sp) without my consent.>> > > Perhaps I'm wrong, but the people I know, including my daughter, who had > ankle fusion, had it done as one part of triple arthrodesis. Perhaps, > the doctor called it 'ankle fusion', since that is easier to remember? If > you were walking on the outside edge of your feet, after the surgery, was > the sole of your foot flat on the floor again? > > As far as fusions lasting forever, , when you realize that the CMT > is still creating more muscle loss, the foot again starts to change shape > because of this. Most ankle fusions and triple arthrod. are done as > temporary, to help the patient, and give them better walking options, and > choice of footwear. Some last much longer than others, depending on the > person, and the rate of progression. Some need it done in 10 or so years, > others feel they don't need it again. > > For the best explanation of the ins and outs of this, speak to your > surgeon. My daughter had her L foot done first about 10 years ago, and as > more muscle atrophies (dies) the foot is again being pulled into a shape > that will soon need attention. > > Hope this helps. Theresa > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Hi Peggy, You said<< And I was told the ankle would be fused - not 3 more sets of bones in addition to the ankle>> I did not say 3 more sets of bones--what I said was that the ankle fusion was ONE part of the triple arthrodesis. If I understand correctly, the back half of the foot has to be broken, so that the ankle can be placed in proper position. This involves more than the ankle bone itself. You are so right in saying--< > The fused ankle does not permit any flexing forward or backward, but NOT to the side, so as more muscles atrophy, there is no support and the foot will start to go over on that side. But --the fused ankle remains fused. Peggy said--<> You are right again, but you are speaking about a normal person's foot, that doesn't have CMT. If the disease progresses, then changes will always be occurring. Sometimes the CMT seems to be in a dormant state, and you stay at the same level for years.When this happens, then no changes will occur.That last sentence needs to be re-read--no progression, no changes. > Theresa said< > My last sentence says that, depending on the person, it may NOT be needed again. I wouldn't call that " short term " . Final analysis--the one thing all CMT people agree on, is that everybody's different. I realize you are frustrated, and am sorry I can't help you more. Theresa ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Hi . Peggie here. Yes, ankle fusion does change the way you walk. When you wear a brace, it allows for some movement in your walking. A fusion stops all movement of any kind. Then, when you take a step, it kind of send a shock wave up to your spine.... so have to have shoes resoled with very soft rubber to cushion the shock - has caused me much back pain, and the cushioned soles absorb that shock and relieve lots of the back pain. And is has to be done exactly right, because if they do it off - and foot is not level (flat) you can't walk. Or at least I couldn't! The first doctor that did it, set my foot for me to wear a 2 inch heel. Of course, I have never been able to wear any heel, so couldn't walk at all. Had to have it redone, by going back in and taking a wedge out to make foot flat. So I could walk. They were planning on doing my other foot, (to replace wearing that brace) and I said no way. The brace is much easier to wear and put up with - if it breaks, you can get another..... if they screw it up with surgery - is very hard to fix, and never can fix correctly. And, oh, so painful. You ask if I would recommend the surgery? NO WAY. I wish I had never had it, and was wearing two braces instead of one!!!! I could not handle that amount of pain at this point in my life. And, I will never have anyone cut on my feet again. I use temporary measures such as lamb's wool under my hammer toes for 15 years now. The doctors all seem to want to fix your problems with a " simple " surgery, but for me, the pain of these " simple " surgeries is not worth it. Supposedly, an ankle fusion only replaces your wearing a brace. the brace being a temporary aide, the surgery being permanent. Now, they are saying that the surgery is only temporary. I would never put anyone through that type of pain for a temporary fix!!! If you have other problems, maybe the surgery is the answer for you. I didn't have any other problems except the foot drop and the brace takes care of that....... Many people have had many surgeries. I really hope they helped them to walk better. Mine didn't. So, you asked!!! And, I have given you my opinion..... but you have to make your own decisions..... Have a good day! Re: Foot SurgeryPEGGY- > > > > > > > > Hi Peggy, > > > > You said-<<<< had an ankle fusion that ended up being an ankle fusion > > plus a triple > > orthdesious (sp) without my consent.>> > > > > Perhaps I'm wrong, but the people I know, including my daughter, who had > > ankle fusion, had it done as one part of triple arthrodesis. Perhaps, > > the doctor called it 'ankle fusion', since that is easier to remember? If > > you were walking on the outside edge of your feet, after the surgery, was > > the sole of your foot flat on the floor again? > > > > As far as fusions lasting forever, , when you realize that the CMT > > is still creating more muscle loss, the foot again starts to change shape > > because of this. Most ankle fusions and triple arthrod. are done as > > temporary, to help the patient, and give them better walking options, and > > choice of footwear. Some last much longer than others, depending on the > > person, and the rate of progression. Some need it done in 10 or so years, > > others feel they don't need it again. > > > > For the best explanation of the ins and outs of this, speak to your > > surgeon. My daughter had her L foot done first about 10 years ago, and as > > more muscle atrophies (dies) the foot is again being pulled into a shape > > that will soon need attention. > > > > Hope this helps. Theresa > > ________________________________________________________________ > > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > > Juno now offers FREE Internet Access! > > Try it today - there's no risk! For your FREE software, visit: > > http://dl.www.juno.com/get/tagj. > > > > --------------------------- ONElist Sponsor ---------------------------- > > > > Accurate impartial advice on everything from laptops to table saws. > > http://clickme.onelist.com/ad/Productopia " >Click Here > > > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 No Theresa, I am not frustrated. I just would never go through it again not for any reason. That's my opinion and I am sticking to it. I also said that everyone is different and may have other foot problems. - when I was asked, I said that I did not have any other problems. and that is fact. and now am 52 - cmt has progressed greatly, and still have no other foot problems except the ones caused by the surgery!!!! But, have had them for many years, and put up with them. But, would never advise anyone else to have the surgery. Also, I believe the triple is not the ankle - but might be wrong - three more sets of bones in addition to my ankle were fused - all the way to the toes - this is NOT an ankle fusion...... at least my other doctors informed me that it was not.... maybe different doctors call it different things, but still, many people talk about have the triple, and NOT the ankle. Does this make any sense to you???? Doesn't to me, if ankle is part of the triple. My doctor lied to me - and admitted it afterwards that he did not have my permission to do the other joints.... as he was not suppose to do them. So, since I am not a doctor, I don't know, but I do believe that your doctor and mine are of a totally different mine!! But then that is not unusual either...... Have a good night. Re: Foot SurgeryPEGGY- > > > Hi Peggy, > > You said<< And I was told the ankle would be > fused - not 3 more sets of bones in addition to the ankle>> > > I did not say 3 more sets of bones--what I said was that the ankle fusion > was ONE part of the triple arthrodesis. If I understand correctly, the > back half of the foot has to be broken, so that the ankle can be placed > in proper position. This involves more than the ankle bone itself. > > You are so right in saying--< any sense to me - a fused bone, is a fused bone.>> The fused ankle does > not permit any flexing forward or backward, but NOT to the side, so as > more muscles atrophy, there is no support and the foot will start to go > over on that side. But --the fused ankle remains fused. > > Peggy said--< some changes while young in your feet as you are still growing,>> You > are right again, but you are speaking about a normal person's foot, that > doesn't have CMT. If the disease progresses, then changes will always be > occurring. Sometimes the CMT seems to be in a dormant state, and you > stay at the same level for years.When this happens, then no changes will > occur.That last sentence needs to be re-read--no progression, no changes. > > that > this MAJOR type of surgery was " short term " . >> > Theresa said< person, and the rate of progression. Some need it done in 10 or so > years,others feel they don't need it again.>> > My last sentence says that, depending on the person, it may NOT be needed > again. I wouldn't call that " short term " . > > Final analysis--the one thing all CMT people agree on, is that > everybody's different. I realize you are frustrated, and am sorry I can't > help you more. > > Theresa > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 HI ALL I THINK OSTEOTOMY IS A PROSSES DONE ON ANY BONE NOT JUST THE ANKLE. I JUST HAD MAJOR FOOT SURGERY AND NEVER HAD THE ANKLE DONE 1ST- CULCANEAL OSTEOTOMY IS THE HEEL FUSION WHERE THEY BREAK THE FOOT APART AND DRIVE A LARGE POST THREW THE FOOT FROM BEHIND THE HEEL TO STABLIZE THE BACK OF THE FOOT THEN THERE IS THE 1ST AND 5TH (TOP OF FOOT INCESSION) METATURSAL OSTEOTOMY WHICH INVOLVES YOUR TOES ALSO FOR BALANCE THE ARCH DROP IS CALLED PLANTAR FASIAR RELEASE MONICA Re: Foot SurgeryPEGGY- From: JACEE17@... In a message dated 1/24/00 6:12:44 PM Pacific Standard Time, malfunct@... writes: << Doesn't to me, if ankle is part of the triple. My doctor lied to me - and admitted it afterwards that he did not have my permission to do the other joints.... as he was not suppose to do them. So, since I am not a doctor, I don't know, but I do believe that your doctor and mine are of a totally different mine!! But then that is not unusual either...... >> Umm the ankle was called an osteotemy (sp) I had a triple fash and it included the ankle fusion. Sounds like you never needed surgery jenny ---------------------------------------------------------------------------- Please click above to support our sponsor ---------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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