Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 HELLO MY NAME IS JULIE, I LIVE IN THE UK, IN A VILLAGE CALLED FELIXSTOWE. I HAVE A DAUGHTER, STEPHANIE, WHO IS 9 YEARS OLD WITH CMT TYPE 1B. THIS AFFECTS HER LEGS, HANDS AND SPINE. SHE ALSO HAS LEARNING DIFFICULTIES. THE CONDITION IS STILL QUITE RARE IN THE UK, SO IT WOULD BE LOVELY TO HEAR FROM OTHER PEOPLE AFFECTED BY THE DISEASE. LOOK FORWARD TO RECEIVING ANY COMMENTS. REGARDS JULIE Quote Link to comment Share on other sites More sharing options...
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