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Kids are such a mixed blessing. I had mine before I'd even heard of CMT. My

two eldest sons have it. They also had nystagmus which I conveniently blamed

my ex husband for, that was until I found out.

My youngest who has just turned nine, remembers events in our lives with

when Mummy could walk and when Mummy couldn't. However, he does have such an

incredible awareness (naturally) of disabliltiy. He said to me last night

that when he grows up he's going to do sponsered walking to raise money for

people like Mummy. I gave him a big hug and said thank you from all people

with CMT.

Sue

P.S He can be a little swine as well.

Re: offspring

> I absolutely understand how you feel. I'm still so

> absolutely unsure I want to have children at any point

> in my life. I've gone so far downhill in such a short

> period of time, I think all the time of what it would

> be like to not be able to hold my children because my

> hands & arms have gone, to play ball with them because

> I can no longer run, to barely be able to play with

> them at all because I get tired by just getting up in

> the morning.

>

>

>

> __________________________________________________

>

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