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I saw an OT yesterday who didn't have a problem with my CMT and she said very

much the same thing. People now can do their research and are finding out about

their own conditions and challenging the medics which is how it should be.

I'm speaking to a solicitor tomorrow with regards suing both the Royal Air

Force quacks who originally diagnosed me as having Talipes and the National

Health Service for their appalling treatment of my condition in the past four

years and all the information I have to give him has come from the internet.

It's a wonderful thing but I doubt if the doctors will think so. Fingers

crossed.

Sue

Re: CMT pioneers

In a message dated 18/07/00 09:41:37 AM Pacific Daylight Time,

liliwigg@... writes:

<< Yes, Sue I agree, we MUST become THE EXPERTS on CMT. It is sort of being

like the pioneers who settled the U.S. They just set out west with very

little, had alot happen, trials, trauma, etc., but the West was settled

and booming! Since I have had CMT so long, I still feel like a pioneer,

it gets tiring sometimes, but the value of our group here is that we can

help each other, encourage each other and exchange ideas on what works

and how/why/or why not something works.

Gretchen >>

We really are the pioneers with the internet and CMT. Maybe that is what

will change things?

jenny

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