Re: Re(2): Rose-Marie and all

[Guest guest]

hi from a new commer

that is funny what you said about cmt-ers like to scratch their back...I

also do, or mainly have other people do it for me,

humm.....never thought of it that way,

does anyone know if neck problem's are connected with CMT????

My Daughter who is 7, who also has cmt,

complain's of her neck hurting, but it may just be of the way she lay's I

do not know....

Is there anyone of you, with kids maybe my kids ages that deal with

CMT.......

hope you all are having a great day!!!

and I will talk to you all later, thanks to all that has welcomed me with

open arm's,

HI MOM!!!!;-) If you get this..... I got on;-) Kelley!!! ;-) LOVE

YOU!!!;-)

& Kelley

, , , Caleb

djscott@...

Re(2): Rose-Marie and all

> From: Rose-Marie.Isakson@... (Rose-Marie Isakson)

>

> Hi Kat and everybody!

>

> Seems like many CMT:ers like to scratch their backs. Of course that just

> can be an individual thing but as our sensory nerves also are effected

> wouldn´t I be surprised if there is a connection.

>

> Thanks for the advices about web-sites etc to show the doctors. But as you

> say: not all doctors are feeling happy when the patients " pretends " to

> know something abut their disease which the doc. not is convincted about.

> Well, it´s a struggel but whos life arn´t that?

>

> Don´t worry, be happy!

> Rose

>

>

> ---------------------------

[Guest guest]

Has she had her spine checked? Scoliosis can be a by-product of CMT.

I have 3 daughters, 12,11 and 9. The 9-yr-old was diagnosed at age 4.

Maybe they can " chat " with each other!

Ruth

>

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS (AT) onelist (DOT) com>

>Subject: Re: Re(2): Rose-Marie and all

>Date: Wed, 9 Feb 2000 15:18:40 -0600

>

>

>>does anyone know if neck problem's are connected with CMT????

>My Daughter who is 7, who also has cmt,

>complain's of her neck hurting, but it may just be of the way she lay's I

>do not know....

>

>Is there anyone of you, with kids maybe my kids ages that deal with

>CMT.......

>

>hope you all are having a great day!!!

>

>and I will talk to you all later, thanks to all that has welcomed me with

>open arm's,

>

>HI MOM!!!!;-) If you get this..... I got on;-) Kelley!!! ;-) LOVE

>YOU!!!;-)

>

>

>

> & Kelley

>, , , Caleb

>djscott@...

> Re(2): Rose-Marie and all

>

>

> > From: Rose-Marie.Isakson@... (Rose-Marie Isakson)

> >

> > Hi Kat and everybody!

> >

> > Seems like many CMT:ers like to scratch their backs. Of course that just

> > can be an individual thing but as our sensory nerves also are effected

> > wouldn´t I be surprised if there is a connection.

> >

> > Thanks for the advices about web-sites etc to show the doctors. But as

>you

> > say: not all doctors are feeling happy when the patients " pretends " to

> > know something abut their disease which the doc. not is convincted

>about.

> > Well, it´s a struggel but whos life arn´t that?

> >

> > Don´t worry, be happy!

> > Rose

> >

> >

> > ---------------------------

[Guest guest]

Has she had her spine checked? Scoliosis can be a by-product of CMT.

I have 3 daughters, 12,11 and 9. The 9-yr-old was diagnosed at age 4.

Maybe they can " chat " with each other!

Ruth

>

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS (AT) onelist (DOT) com>

>Subject: Re: Re(2): Rose-Marie and all

>Date: Wed, 9 Feb 2000 15:18:40 -0600

>

>

>>does anyone know if neck problem's are connected with CMT????

>My Daughter who is 7, who also has cmt,

>complain's of her neck hurting, but it may just be of the way she lay's I

>do not know....

>

>Is there anyone of you, with kids maybe my kids ages that deal with

>CMT.......

>

>hope you all are having a great day!!!

>

>and I will talk to you all later, thanks to all that has welcomed me with

>open arm's,

>

>HI MOM!!!!;-) If you get this..... I got on;-) Kelley!!! ;-) LOVE

>YOU!!!;-)

>

>

>

> & Kelley

>, , , Caleb

>djscott@...

> Re(2): Rose-Marie and all

>

>

> > From: Rose-Marie.Isakson@... (Rose-Marie Isakson)

> >

> > Hi Kat and everybody!

> >

> > Seems like many CMT:ers like to scratch their backs. Of course that just

> > can be an individual thing but as our sensory nerves also are effected

> > wouldn´t I be surprised if there is a connection.

> >

> > Thanks for the advices about web-sites etc to show the doctors. But as

>you

> > say: not all doctors are feeling happy when the patients " pretends " to

> > know something abut their disease which the doc. not is convincted

>about.

> > Well, it´s a struggel but whos life arn´t that?

> >

> > Don´t worry, be happy!

> > Rose

> >

> >

> > ---------------------------