Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 Hello Kat, great German find on CMT at onelist! I too am a bit miffed when I see wrong info! Now, this is bugging me, but for you or anyone else, why is CMT 'classified' as a 'rare disorder'? My understanding is that it is the most common inherited neurological disorder - it would seem that it is really not 'rare'. Perhaps just the 'visibility factor' - CMT just isn't as well known as say MS, for example, is that how that 'rare disorder' title happened? Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 I have a problem with " most common inherited neurological disorder " because I believe " most common " could be understood wrong. The disease really is rare because only 0.4% of the worlds population have it. And because there are not many neurological disorders it is said that cmt is the most common. But fact is that most doctors in this world never will meet a patient who has cmt. In Germany there are about 32.000 people (statistically) who have cmt but how many of them know about them having the disease? So, in reality most of the patients never even heard about cmt and the doctors also couldn' t tell them because they don' t know. It is like a wheel. MS has a lobby know because it was made known to the public. This is what should be done with cmt also. Bye, Gretchen Glick schrieb: > Hello Kat, great German find on CMT at onelist! I too am a bit miffed > when I see wrong info! Now, this is bugging me, but for you or anyone > else, why is CMT 'classified' as a 'rare disorder'? My understanding is > that it is the most common inherited neurological disorder - it would > seem that it is really not 'rare'. Perhaps just the 'visibility factor' > - CMT just isn't as well known as say MS, for example, is that how that > 'rare disorder' title happened? > > Gretchen > > ------------------------------------------------------------------------ > Make new friends, find the old at Classmates.com: > http://click.egroups.com/1/4052/10/_/616793/_/958324834/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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