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RLS: What is happening to this group?

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We drove Dr Levin out, Ed quit, and who knows how many others have quit

with all of the jokes, etc that have been on. There have been too many "

you should do this, and you should do that. " It seems like what I have

experienced over the last year has been very watered down.

Count me as another on who no longer wants to get all of this email. If I

want jokes, etc I can look at AOL email.

Thank you Jodi for all of the hard work you have done to start this group

and for keeping it going. Hope all is well with you.

Larry Gibbens

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Larry,

I fail to understand why you or anyone else needs to announce they are

leaving, and then lay the blame on others. There are many people here

who are going through hell every day and night because of rls and other

problems - some related, some not, who really knows, and I think it's

terrible that you feel the need to shut them up, and then take off in a

huff. Leaving is your option, but you are showing insensitivity,

unkindness, and disregard for other's feelings by blasting us in the

process. I hope you haven't made anyone feel guilty for sharing their

feelings, advice, and HUMOR. I hope you haven't driven someone into a

feeling of isolation by attempting to close down whatever it is YOU don't

like. Maybe certain personalities DON'T belong in a group like this - if

the need to control is stronger than the desire to listen and share, then

it's not for you. Keep in mind however, that it's your problem, not the

fault of anyone else.

ne, 59, Lawrenceville, NJ

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I beg to differ with you! I'm fairly new to the group so I don't know about

Dr. Levin OR Ed for that matter, and what caused them to leave. But I for

one, happen to enjoy a little humor now and then. Mind you, I'm not saying

that we should have it all the time, but I did happen to enjoy it when we'd

had the Joke of the day! Where ever that came from, I don't know, but life

without humor, is no life at all. And as far as the " you should do this or

you should do that " well nobody ever said that you HAD to do ANY of it. I

think that everyone that writes in and expresses what they are going thru and

what they are taking and " this works for me....BUT maybe not for you " type of

thing, is what we're all about. Isn't it? We're here to MAYBE find out

something new, POSSIBLY find someone who actually is feeling the same way we

are, but most of all to get the encouragement and support from everyone to be

able to say " Hey, I'm not alone, I'm not crazy, I'm not the only one! " And

then you feel relief, at least for a little while. OK, sorry, I probably got

a little carried away and off track, but maybe I didn't. Apologizes to

whomever I might have pissed off, I didn't mean too.

Kristy, 43

Fountain Hills, AZ

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I beg to differ with you! I'm fairly new to the group so I don't know about

Dr. Levin OR Ed for that matter, and what caused them to leave. But I for

one, happen to enjoy a little humor now and then. Mind you, I'm not saying

that we should have it all the time, but I did happen to enjoy it when we'd

had the Joke of the day! Where ever that came from, I don't know, but life

without humor, is no life at all. And as far as the " you should do this or

you should do that " well nobody ever said that you HAD to do ANY of it. I

think that everyone that writes in and expresses what they are going thru and

what they are taking and " this works for me....BUT maybe not for you " type of

thing, is what we're all about. Isn't it? We're here to MAYBE find out

something new, POSSIBLY find someone who actually is feeling the same way we

are, but most of all to get the encouragement and support from everyone to be

able to say " Hey, I'm not alone, I'm not crazy, I'm not the only one! " And

then you feel relief, at least for a little while. OK, sorry, I probably got

a little carried away and off track, but maybe I didn't. Apologizes to

whomever I might have pissed off, I didn't mean too.

Kristy, 43

Fountain Hills, AZ

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Hi Everyone,

I may be to new to the group to comment but I just feel I have to. First

isn't this supposed to be a support group? And if so support to me comes in

all shapes, sizes, and flavors. I kinda take this like TV. if I don't like

what I see when I open the mail I don't read it. How tough is that? I for

example don't have much in common with the people in the group who discuss

their medications....since I don't take any. I don't feel like I should say

" Hey, don't quit sending out letters about all your doses and medications! " I

just don't read them or I just skim through them. So if someone feels like

they don't like to read jokes or someone opinion that doesn't jive with their

own...that's what that little delete button is for. I for one enjoy being a

part of something that brings some relief for sleepless nights in what ever

form.

Raine :)

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Hi Everyone,

I may be to new to the group to comment but I just feel I have to. First

isn't this supposed to be a support group? And if so support to me comes in

all shapes, sizes, and flavors. I kinda take this like TV. if I don't like

what I see when I open the mail I don't read it. How tough is that? I for

example don't have much in common with the people in the group who discuss

their medications....since I don't take any. I don't feel like I should say

" Hey, don't quit sending out letters about all your doses and medications! " I

just don't read them or I just skim through them. So if someone feels like

they don't like to read jokes or someone opinion that doesn't jive with their

own...that's what that little delete button is for. I for one enjoy being a

part of something that brings some relief for sleepless nights in what ever

form.

Raine :)

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