Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Hi all Gretchen I am like you seem to trip much less than I use to....I wonder why that is? Could be I watch my feet more?LOL!! Does anyone think easy spirit shoes are worth trying as walking shoes? I would like to hear about them before I go and purchase tham because they are kind of expensive here. Thanks Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi all This is Patsy here, In reply to s asking if anyone else has had spinal problems. I'm 60 now, but when I was 9, I woke up one Sun. morning & was is so much pain. At that time we had an outhouse for a toilet, remember that was 51 yrs ago. Anyway I could not walk to it, because oof the pain. I remember it all like it was yesterday!! The Drs. took lots of x-rays, but didn't know what it was, told my parents I had had polio, but my folks said no. Finally, they called in a Dr. Crossland & he said it was Lumbar Scoliosis. I was in hospital for 17 days w/ weights on my legs, because one leg was shorter than the other. After that I wore a cast for 6 or 8 wks, from under arms to my hips. I came out straight, but now I think my spine is not straight, but maybe curved again, but MD I see now says no, but he never conducts any tests, just observes himself. I have breathing problems too. This MD says I have Fibromyalga & Osteoarthis, but ignores the fact that I have CMT. He didn't diagnose it so he doesn't acknowledge it. Drs. are very vain!! My bro, Jim, 70 had a larnjectomy last Aug., because of breathing & weak voice. They said it was a tumor wrapped around the larnx, but I suspect it was from CMT. Drs. don't know everthing, even from tests taken. The testing is not always accurate. I told his 3 kids, all older adult kids, to get a 2nd oppinion, making the Dr. he had very angry at me. They told him they wanted a 2nd. oppinion, but all he did was to send tem to his cohort in IL. I told the first Dr. about CMT, because I had just read in CMT International that therecan be voice problems w/ CMT. But this Dr. ignored me. I think they wanted to use my bro. as a guinnea pig, as both Drs. teach about larngectomies at Loyola Hosp. in IL. Sorry this is so long & drawn out. Thanx for listening! Patsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi, Patsy. You are right about " Doctor Vanity. " I would add arrogance and extreme egotism, or inflated ego to the list. Now, having said that, I would add that there are some wonderfully sensitive, compassionate docs out there. It just takes a while to find them. Glad to know there's someone else out there in my age range - I'm 61 - CMT II and osteoarthritis in knees are main problems. I'm glad that many younger folks at least have a diagnosis and have research results, etc. because nobody knew when I was a kid why I fell all the time. They just said I was clumsy! Well, I was (am) but there's a reason and it's not because I'm inferior somehow. When I was in college I was supposed to be a piano major. I had teacher after teacher berate me severely for not practicing hard enough, etc, etc, all to no avail, because my fingers could never support all the technical stuff. I grieved that issue greatly after I found out about the CMT. Thought a lot about all the wasted time.... But grateful now that I can still play the piano - I just play different things now and enjoy it immensely! Carolyn > Hi all > This is Patsy here, > In reply to s asking if anyone else has had spinal problems. I'm 60 > now, but when I was 9, I woke up one Sun. morning & was is so much pain. > At that time we had an outhouse for a toilet, remember that was 51 yrs > ago. Anyway I could not walk to it, because oof the pain. I remember it > all like it was yesterday!! The Drs. took lots of x-rays, but didn't > know what it was, told my parents I had had polio, but my folks said no. > Finally, they called in a Dr. Crossland & he said it was Lumbar > Scoliosis. I was in hospital for 17 days w/ weights on my legs, because > one leg was shorter than the other. After that I wore a cast for 6 or 8 > wks, from under arms to my hips. I came out straight, but now I think my > spine is not straight, but maybe curved again, but MD I see now says > no, but he never conducts any tests, just observes himself. I have > breathing problems too. This MD says I have Fibromyalga & Osteoarthis, > but ignores the fact that I have CMT. He didn't diagnose it so he > doesn't acknowledge it. Drs. are very vain!! My bro, Jim, 70 had a > larnjectomy last Aug., because of breathing & weak voice. They said it > was a tumor wrapped around the larnx, but I suspect it was from CMT. > Drs. don't know everthing, even from tests taken. The testing is not > always accurate. I told his 3 kids, all older adult kids, to get a 2nd > oppinion, making the Dr. he had very angry at me. They told him they > wanted a 2nd. oppinion, but all he did was to send tem to his cohort in > IL. I told the first Dr. about CMT, because I had just read in CMT > International that therecan be voice problems w/ CMT. But this Dr. > ignored me. I think they wanted to use my bro. as a guinnea pig, as both > Drs. teach about larngectomies at Loyola Hosp. in IL. Sorry this is so > long & drawn out. Thanx for listening! > Patsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 What part of Montana are you in We have a son in Billings & one in Missoula we just got back from there... ;) cmontana@... wrote: > Hi, Patsy. You are right about " Doctor Vanity. " I would add arrogance > and extreme egotism, or inflated ego to the list. Now, having said > that, I would add that there are some wonderfully sensitive, > compassionate docs out there. It just takes a while to find them. > > Glad to know there's someone else out there in my age range - I'm 61 - > CMT II and osteoarthritis in knees are main problems. > > I'm glad that many younger folks at least have a diagnosis and have > research results, etc. because nobody knew when I was a kid why I > fell all the time. They just said I was clumsy! Well, I was (am) but > there's a reason and it's not because I'm inferior somehow. > > When I was in college I was supposed to be a piano major. I had > teacher after teacher berate me severely for not practicing hard > enough, etc, etc, all to no avail, because my fingers could never > support all the technical stuff. I grieved that issue greatly after I > found out about the CMT. Thought a lot about all the wasted time.... > But grateful now that I can still play the piano - I just play > different things now and enjoy it immensely! > > Carolyn > > > > Hi all > > This is Patsy here, > > In reply to s asking if anyone else has had spinal problems. > I'm 60 > > now, but when I was 9, I woke up one Sun. morning & was is so much > pain. > > At that time we had an outhouse for a toilet, remember that was 51 > yrs > > ago. Anyway I could not walk to it, because oof the pain. I > remember it > > all like it was yesterday!! The Drs. took lots of x-rays, but didn't > > know what it was, told my parents I had had polio, but my folks > said no. > > Finally, they called in a Dr. Crossland & he said it was Lumbar > > Scoliosis. I was in hospital for 17 days w/ weights on my legs, > because > > one leg was shorter than the other. After that I wore a cast for 6 > or 8 > > wks, from under arms to my hips. I came out straight, but now I > think my > > spine is not straight, but maybe curved again, but MD I see now > says > > no, but he never conducts any tests, just observes himself. I have > > breathing problems too. This MD says I have Fibromyalga & > Osteoarthis, > > but ignores the fact that I have CMT. He didn't diagnose it so he > > doesn't acknowledge it. Drs. are very vain!! My bro, Jim, 70 had a > > larnjectomy last Aug., because of breathing & weak voice. They said > it > > was a tumor wrapped around the larnx, but I suspect it was from CMT. > > Drs. don't know everthing, even from tests taken. The testing is not > > always accurate. I told his 3 kids, all older adult kids, to get a > 2nd > > oppinion, making the Dr. he had very angry at me. They told him they > > wanted a 2nd. oppinion, but all he did was to send tem to his > cohort in > > IL. I told the first Dr. about CMT, because I had just read in CMT > > International that therecan be voice problems w/ CMT. But this Dr. > > ignored me. I think they wanted to use my bro. as a guinnea pig, as > both > > Drs. teach about larngectomies at Loyola Hosp. in IL. Sorry this is > so > > long & drawn out. Thanx for listening! > > Patsy > > ------------------------------------------------------------------------ > Experience MSN... > Get 1 FREE* month of unlimited Internet access! > http://click.egroups.com/1/6323/13/_/616793/_/963932767/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 What part of Montana are you in We have a son in Billings & one in Missoula we just got back from there... ;) cmontana@... wrote: > Hi, Patsy. You are right about " Doctor Vanity. " I would add arrogance > and extreme egotism, or inflated ego to the list. Now, having said > that, I would add that there are some wonderfully sensitive, > compassionate docs out there. It just takes a while to find them. > > Glad to know there's someone else out there in my age range - I'm 61 - > CMT II and osteoarthritis in knees are main problems. > > I'm glad that many younger folks at least have a diagnosis and have > research results, etc. because nobody knew when I was a kid why I > fell all the time. They just said I was clumsy! Well, I was (am) but > there's a reason and it's not because I'm inferior somehow. > > When I was in college I was supposed to be a piano major. I had > teacher after teacher berate me severely for not practicing hard > enough, etc, etc, all to no avail, because my fingers could never > support all the technical stuff. I grieved that issue greatly after I > found out about the CMT. Thought a lot about all the wasted time.... > But grateful now that I can still play the piano - I just play > different things now and enjoy it immensely! > > Carolyn > > > > Hi all > > This is Patsy here, > > In reply to s asking if anyone else has had spinal problems. > I'm 60 > > now, but when I was 9, I woke up one Sun. morning & was is so much > pain. > > At that time we had an outhouse for a toilet, remember that was 51 > yrs > > ago. Anyway I could not walk to it, because oof the pain. I > remember it > > all like it was yesterday!! The Drs. took lots of x-rays, but didn't > > know what it was, told my parents I had had polio, but my folks > said no. > > Finally, they called in a Dr. Crossland & he said it was Lumbar > > Scoliosis. I was in hospital for 17 days w/ weights on my legs, > because > > one leg was shorter than the other. After that I wore a cast for 6 > or 8 > > wks, from under arms to my hips. I came out straight, but now I > think my > > spine is not straight, but maybe curved again, but MD I see now > says > > no, but he never conducts any tests, just observes himself. I have > > breathing problems too. This MD says I have Fibromyalga & > Osteoarthis, > > but ignores the fact that I have CMT. He didn't diagnose it so he > > doesn't acknowledge it. Drs. are very vain!! My bro, Jim, 70 had a > > larnjectomy last Aug., because of breathing & weak voice. They said > it > > was a tumor wrapped around the larnx, but I suspect it was from CMT. > > Drs. don't know everthing, even from tests taken. The testing is not > > always accurate. I told his 3 kids, all older adult kids, to get a > 2nd > > oppinion, making the Dr. he had very angry at me. They told him they > > wanted a 2nd. oppinion, but all he did was to send tem to his > cohort in > > IL. I told the first Dr. about CMT, because I had just read in CMT > > International that therecan be voice problems w/ CMT. But this Dr. > > ignored me. I think they wanted to use my bro. as a guinnea pig, as > both > > Drs. teach about larngectomies at Loyola Hosp. in IL. Sorry this is > so > > long & drawn out. Thanx for listening! > > Patsy > > ------------------------------------------------------------------------ > Experience MSN... > Get 1 FREE* month of unlimited Internet access! > http://click.egroups.com/1/6323/13/_/616793/_/963932767/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 What part of Montana are you in We have a son in Billings & one in Missoula we just got back from there... ;) cmontana@... wrote: > Hi, Patsy. You are right about " Doctor Vanity. " I would add arrogance > and extreme egotism, or inflated ego to the list. Now, having said > that, I would add that there are some wonderfully sensitive, > compassionate docs out there. It just takes a while to find them. > > Glad to know there's someone else out there in my age range - I'm 61 - > CMT II and osteoarthritis in knees are main problems. > > I'm glad that many younger folks at least have a diagnosis and have > research results, etc. because nobody knew when I was a kid why I > fell all the time. They just said I was clumsy! Well, I was (am) but > there's a reason and it's not because I'm inferior somehow. > > When I was in college I was supposed to be a piano major. I had > teacher after teacher berate me severely for not practicing hard > enough, etc, etc, all to no avail, because my fingers could never > support all the technical stuff. I grieved that issue greatly after I > found out about the CMT. Thought a lot about all the wasted time.... > But grateful now that I can still play the piano - I just play > different things now and enjoy it immensely! > > Carolyn > > > > Hi all > > This is Patsy here, > > In reply to s asking if anyone else has had spinal problems. > I'm 60 > > now, but when I was 9, I woke up one Sun. morning & was is so much > pain. > > At that time we had an outhouse for a toilet, remember that was 51 > yrs > > ago. Anyway I could not walk to it, because oof the pain. I > remember it > > all like it was yesterday!! The Drs. took lots of x-rays, but didn't > > know what it was, told my parents I had had polio, but my folks > said no. > > Finally, they called in a Dr. Crossland & he said it was Lumbar > > Scoliosis. I was in hospital for 17 days w/ weights on my legs, > because > > one leg was shorter than the other. After that I wore a cast for 6 > or 8 > > wks, from under arms to my hips. I came out straight, but now I > think my > > spine is not straight, but maybe curved again, but MD I see now > says > > no, but he never conducts any tests, just observes himself. I have > > breathing problems too. This MD says I have Fibromyalga & > Osteoarthis, > > but ignores the fact that I have CMT. He didn't diagnose it so he > > doesn't acknowledge it. Drs. are very vain!! My bro, Jim, 70 had a > > larnjectomy last Aug., because of breathing & weak voice. They said > it > > was a tumor wrapped around the larnx, but I suspect it was from CMT. > > Drs. don't know everthing, even from tests taken. The testing is not > > always accurate. I told his 3 kids, all older adult kids, to get a > 2nd > > oppinion, making the Dr. he had very angry at me. They told him they > > wanted a 2nd. oppinion, but all he did was to send tem to his > cohort in > > IL. I told the first Dr. about CMT, because I had just read in CMT > > International that therecan be voice problems w/ CMT. But this Dr. > > ignored me. I think they wanted to use my bro. as a guinnea pig, as > both > > Drs. teach about larngectomies at Loyola Hosp. in IL. Sorry this is > so > > long & drawn out. Thanx for listening! > > Patsy > > ------------------------------------------------------------------------ > Experience MSN... > Get 1 FREE* month of unlimited Internet access! > http://click.egroups.com/1/6323/13/_/616793/_/963932767/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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