Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Do I detect another in the house??!! You sound suspiciously knowledgeable! ne, 59, Lawrenceville, NJ --- " Mangum, " mangumc@...> wrote: > > > Responding to the several posts regarding brain > surgery and its potential > for helping with RLS, the television broadcast > referenced pertained to a > procedure called pallidotomy. In this procedure, the > surgeons precisely > locate a region of the brain that has become > hyperactive and actually > destroy it by cooking the tissue. The procedure has > been used successfully > in treating certain sufferers of Parkinson's disease > and related movement > disorders who no longer respond successfully to > medication. Candidates for > the procedure are carefully screened, as the > procedure is seen as a last > option in treatment. There is obvious risk in the > procedure and one of its > drawbacks is the permanent destruction of brain > tissue. > > Another procedure used to treat Parkinson's and > other similar movement > disorder diseases is the deep brain stimulation. In > this procedure, four > electrodes are carefully inserted into a specific > region of the brain chosen > depending on the patients primary symptoms. Once in > place, the electrodes > are electrically stimulated by a pacemaker type > device surgically implanted > beneath the patient's collar bone. The electrical > stimulation of these > regions of the brain have shown good results in > decreasing patients' tremors > and dyskenisia, and improving patients' balance and > walking. Again, this > treatment is considered a last option of treatment > and patients are > carefully screened. The cost for this procedure is > approximately $25,000. > > In my research, I have not seen any writing > pertaining to treating RLS with > either pallidotomy or DBS, but it is interesting > that movement disorders > seem to respond well to the procedures. > Additionally, DBS was originally > developed as a treatment to chronic pain, and for > some of us, pain is our > primary symptom. But in my opinion, brain surgery > for RLS is not a realistic > option. There's far too many meds that either alone > or in combination offer > substantial assistance. > > ------------------------------------------------------------------------ > Star Wars fans are using ONElist to share the fun. > http://www.onelist.com > Are you? > > ------------------------------------------------------------------------ > This forum is for support only. The information > posted to this List is for support purposes > and is not intended to replace the examination, > diagnosis and treatment of a licensed > physician and no such claims are inferred. > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 I left out a key word in my previous message - " doctor " ne --- susanne isbill susanne2740@...> wrote: > > > > Do I detect another in the house??!! You sound > suspiciously > knowledgeable! > ne, 59, Lawrenceville, NJ > > > > --- " Mangum, " mangumc@...> > wrote: > > > > > > Responding to the several posts regarding brain > > surgery and its potential > > for helping with RLS, the television broadcast > > referenced pertained to a > > procedure called pallidotomy. In this procedure, > the > > surgeons precisely > > locate a region of the brain that has become > > hyperactive and actually > > destroy it by cooking the tissue. The procedure > has > > been used successfully > > in treating certain sufferers of Parkinson's > disease > > and related movement > > disorders who no longer respond successfully to > > medication. Candidates for > > the procedure are carefully screened, as the > > procedure is seen as a last > > option in treatment. There is obvious risk in the > > procedure and one of its > > drawbacks is the permanent destruction of brain > > tissue. > > > > Another procedure used to treat Parkinson's and > > other similar movement > > disorder diseases is the deep brain stimulation. > In > > this procedure, four > > electrodes are carefully inserted into a specific > > region of the brain chosen > > depending on the patients primary symptoms. Once > in > > place, the electrodes > > are electrically stimulated by a pacemaker type > > device surgically implanted > > beneath the patient's collar bone. The electrical > > stimulation of these > > regions of the brain have shown good results in > > decreasing patients' tremors > > and dyskenisia, and improving patients' balance > and > > walking. Again, this > > treatment is considered a last option of treatment > > and patients are > > carefully screened. The cost for this procedure is > > approximately $25,000. > > > > In my research, I have not seen any writing > > pertaining to treating RLS with > > either pallidotomy or DBS, but it is interesting > > that movement disorders > > seem to respond well to the procedures. > > Additionally, DBS was originally > > developed as a treatment to chronic pain, and for > > some of us, pain is our > > primary symptom. But in my opinion, brain surgery > > for RLS is not a realistic > > option. There's far too many meds that either > alone > > or in combination offer > > substantial assistance. > > > > > ------------------------------------------------------------------------ > > Star Wars fans are using ONElist to share the fun. > > http://www.onelist.com > > Are you? > > > > > ------------------------------------------------------------------------ > > This forum is for support only. The information > > posted to this List is for support purposes > > and is not intended to replace the examination, > > diagnosis and treatment of a licensed > > physician and no such claims are inferred. > > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 1999 Report Share Posted May 18, 1999 Dear and ne: I have gotten some great ideas on things to do to decrease RLS symptoms during a trip. Most has been for flying. Can you give me some ideas on things to do to decrease RLS symptoms on a bus or train trip? Thanks Pamela > > > > Do I detect another in the house??!! You sound suspiciously > knowledgeable! > ne, 59, Lawrenceville, NJ > > > > --- " Mangum, " mangumc@...> wrote: > > > > > > Responding to the several posts regarding brain > > surgery and its potential > > for helping with RLS, the television broadcast > > referenced pertained to a > > procedure called pallidotomy. In this procedure, the > > surgeons precisely > > locate a region of the brain that has become > > hyperactive and actually > > destroy it by cooking the tissue. The procedure has > > been used successfully > > in treating certain sufferers of Parkinson's disease > > and related movement > > disorders who no longer respond successfully to > > medication. Candidates for > > the procedure are carefully screened, as the > > procedure is seen as a last > > option in treatment. There is obvious risk in the > > procedure and one of its > > drawbacks is the permanent destruction of brain > > tissue. > > > > Another procedure used to treat Parkinson's and > > other similar movement > > disorder diseases is the deep brain stimulation. In > > this procedure, four > > electrodes are carefully inserted into a specific > > region of the brain chosen > > depending on the patients primary symptoms. Once in > > place, the electrodes > > are electrically stimulated by a pacemaker type > > device surgically implanted > > beneath the patient's collar bone. The electrical > > stimulation of these > > regions of the brain have shown good results in > > decreasing patients' tremors > > and dyskenisia, and improving patients' balance and > > walking. Again, this > > treatment is considered a last option of treatment > > and patients are > > carefully screened. The cost for this procedure is > > approximately $25,000. > > > > In my research, I have not seen any writing > > pertaining to treating RLS with > > either pallidotomy or DBS, but it is interesting > > that movement disorders > > seem to respond well to the procedures. > > Additionally, DBS was originally > > developed as a treatment to chronic pain, and for > > some of us, pain is our > > primary symptom. But in my opinion, brain surgery > > for RLS is not a realistic > > option. There's far too many meds that either alone > > or in combination offer > > substantial assistance. > > > > > ------------------------------------------------------------------------ > > Star Wars fans are using ONElist to share the fun. > > http://www.onelist.com > > Are you? > > > > > ------------------------------------------------------------------------ > > This forum is for support only. The information > > posted to this List is for support purposes > > and is not intended to replace the examination, > > diagnosis and treatment of a licensed > > physician and no such claims are inferred. > > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 Bus and train trips: Drugs, drugs, and more drugs! Seriously, I save my codeine for just such occasions. ne --- Pamela E Hamiltonstubbs phstubbs@...> wrote: > From: Pamela E Hamiltonstubbs > phstubbs@...> > > > Dear and ne: > > I have gotten some great ideas on things to do to > decrease RLS symptoms > during a trip. Most has been for flying. Can you > give me some ideas on > things to do to decrease RLS symptoms on a bus or > train trip? Thanks > Pamela > > > > > > > > > > > > > > Do I detect another in the house??!! You sound > suspiciously > > knowledgeable! > > ne, 59, Lawrenceville, NJ > > > > > > > > --- " Mangum, " mangumc@...> > wrote: > > > From: " Mangum, " > mangumc@...> > > > > > > Responding to the several posts regarding brain > > > surgery and its potential > > > for helping with RLS, the television broadcast > > > referenced pertained to a > > > procedure called pallidotomy. In this procedure, > the > > > surgeons precisely > > > locate a region of the brain that has become > > > hyperactive and actually > > > destroy it by cooking the tissue. The procedure > has > > > been used successfully > > > in treating certain sufferers of Parkinson's > disease > > > and related movement > > > disorders who no longer respond successfully to > > > medication. Candidates for > > > the procedure are carefully screened, as the > > > procedure is seen as a last > > > option in treatment. There is obvious risk in > the > > > procedure and one of its > > > drawbacks is the permanent destruction of brain > > > tissue. > > > > > > Another procedure used to treat Parkinson's and > > > other similar movement > > > disorder diseases is the deep brain stimulation. > In > > > this procedure, four > > > electrodes are carefully inserted into a > specific > > > region of the brain chosen > > > depending on the patients primary symptoms. Once > in > > > place, the electrodes > > > are electrically stimulated by a pacemaker type > > > device surgically implanted > > > beneath the patient's collar bone. The > electrical > > > stimulation of these > > > regions of the brain have shown good results in > > > decreasing patients' tremors > > > and dyskenisia, and improving patients' balance > and > > > walking. Again, this > > > treatment is considered a last option of > treatment > > > and patients are > > > carefully screened. The cost for this procedure > is > > > approximately $25,000. > > > > > > In my research, I have not seen any writing > > > pertaining to treating RLS with > > > either pallidotomy or DBS, but it is interesting > > > that movement disorders > > > seem to respond well to the procedures. > > > Additionally, DBS was originally > > > developed as a treatment to chronic pain, and > for > > > some of us, pain is our > > > primary symptom. But in my opinion, brain > surgery > > > for RLS is not a realistic > > > option. There's far too many meds that either > alone > > > or in combination offer > > > substantial assistance. > > > > > > > > > ------------------------------------------------------------------------ > > > Star Wars fans are using ONElist to share the > fun. > > > http://www.onelist.com > > > Are you? > > > > > > > > > ------------------------------------------------------------------------ > > > This forum is for support only. The information > > > posted to this List is for support purposes > > > and is not intended to replace the examination, > > > diagnosis and treatment of a licensed > > > physician and no such claims are inferred. > > > > > > > > > > _________________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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