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Re: Digest Number 162

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In a message dated 2/15/00 11:00:21 AM Central Standard Time,

charnicoma@... writes:

<< Thanks for your support through all your letters here on the list. I read

them often and daily to keep me encouraged with life's limitations.

Love and hugs; Libby >>

Libby:

May God continue to bless you. Thanks for the inspiration.

Ol' Bud in TX

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To :

Hey , I'm Kim, a 44 year old male who has had

the surgery on my left big toe because it had crossed over

the smaller toes also !!! I have a hard time finding shoes

to fit me also !!! I have found NIKE air walk hiking boots

to be the most comfort and ankle support for me !!! My feet

also hurt very much but have hurt for many,many years and

I have just grown to live with it !!! I take Neurotin for

nerve pain and non-asprin for the other pain I suffer with

!!! I can remember in jr high and high school how everyone

called me BIRD-LEGS because my legs were so skinny !!! I

also had a bad limp and they called me GIMPY !!! I look

back on it now and realize those people and I didn't know

that I had CMT and I accept it and live with it because

there is nothing I can do about it other than get all the

help I can to help me keep walking !!! I to have fallen

more than I wanted to !!! It is great to see more & more

men writing into this site !!! Lots of friendly super nice

people on this site !!! LADIES, NO PUN INTENDED ABOUT MORE

MEN WRITING!!! , you have a nice day and just take

it one day at a time !!! LATER>>>KIM>>>CRUZIN54

Digest Number 162

>

>---------------------------

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Friends;

Just wanted to share what I hope to achieve in the next month. I entered

" The Power To Change " essay contest in the Ladies Home Journal sponsored by

BIG K-MART and The Judds. ( any interested visit www.ladieshomejournal.com

for details ) Hopefully it will be published or maybe they will do a follow

up article about CMT. Deadline and winners published in March 2000.

My hope is to bring AWARENESS to CMT . We live with constant change and must

learn to take control of how we allow it to limit our lives. This has been

my focus since being diagnosed with this little known disease. And takes a

lot of energy and tenacity. Its given me purpose and sort of a " Quest " to

help all of us by bringing awareness to the front.

The winners (10 Grand prize Awards) get a $5,000 gift card to BIG K-MART

stores ( sure will be handy to the family's budget; I have two growing kids

and an older daughter and granddaughter) and a roundtrip for two to the

final Concert of the Judds Power to Change Tour. I am a big fan of the

Judds, and enjoy the messages their music carriers. It will be great to meet

them, but even better if they would help us bring CMT to the public eye.

you all have been saying for awhile now how we need a celebrity to help us)

I sing many of their songs in my Awareness efforts on Wednesday nights

singing at the local restaurant in my area. Their music lifts my spirits and

makes me feel good. Singing has also helped breathing and vocal chord

difficulties I had due to CMT by keeping my respiratory muscles stretched

and exercised.

Wish me luck in this effort; Hoping for more opportunities to educate and

make the general public aware of CMT and what it can do. LOL (I always

wanted to teach, but didn't realize it would be this instead of elementary

school)

Thanks for your support through all your letters here on the list. I read

them often and daily to keep me encouraged with life's limitations.

Love and hugs; Libby

__________________________________________

NetZero - Defenders of the Free World

Get your FREE Internet Access and Email at

http://www.netzero.net/download/index.html

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Dear Libby,

What a clever way to make people aware of CMT. And you are just smart

enough to do it. Here' hoping you are one of the big winners.

Good luck, Theresa

________________________________________________________________

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