Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 In response to new member, Kathleen - have you tried Tylenol PM? I take it at night and it helps. I was told however by a group member that side effects can include liver damage. You may want to check it out. Welcome! Lynn 45 Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 I'm pretty sure the liver damage contributed to tylenol use is with high dosage and long-term usage. The exdeption to this is taking tylenol or any brand of acetaminophen with alcohol. This is an absolute no-no, Guys.......and can lead to liver damage much faster. Actually, alcohol with any pain reliever, over the counter or not ,is something that you should avoid. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 I'm pretty sure the liver damage contributed to tylenol use is with high dosage and long-term usage. The exdeption to this is taking tylenol or any brand of acetaminophen with alcohol. This is an absolute no-no, Guys.......and can lead to liver damage much faster. Actually, alcohol with any pain reliever, over the counter or not ,is something that you should avoid. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 To JHolt and all, Are you talking about Tylenol or Tylenol #3 (neither helps me but they might help someone else). Like any drug, Tylenol can produce adverse reactions, especially if you use it alot. Tylenol has been linked to liver damage just as aspirin has been linked to ulcers and asthma, but I would think that we're talking about chronic use ... at high levels??? jane janegf@...> ---JHolt14085@... wrote: > > From: JHolt14085@... > > In response to new member, Kathleen - have you tried Tylenol PM? I take it at > night and it helps. I was told however by a group member that side effects > can include liver damage. You may want to check it out. > > Welcome! > > Lynn 45 Ga. > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Not only that, but it (Tylenol PM) can make you so sleepy you can't stand up , but you can't be still for your whole body " jerking " . Not the same for everyone,Im sure , but I for one would never want to go theough it again. Ninette - 51- TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 << WHAT IS TYLENOL? >> Tylenol is a brand name for acetaminophen. It is for pain. No prescription. Your friend could bring you some, if you don't have it in Greece. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 << WHAT IS TYLENOL? >> Tylenol is a brand name for acetaminophen. It is for pain. No prescription. Your friend could bring you some, if you don't have it in Greece. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 << WHAT IS TYLENOL? >> Tylenol is a brand name for acetaminophen. It is for pain. No prescription. Your friend could bring you some, if you don't have it in Greece. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Was just going thru my posts. The doc who diagnosed my sister, me and my son with MELAS told me to not use aspirin, use tylenol or advil or there generic equivalents. However, another mito patient told me that she and her son cannot take either tylenol or advil, I do not remember which. They do not have melas I cannot remember but something else. So I am not sure what to take. Personally we have advil generic in the house because it just seems to work better for me and my son with headaches and stomach pain he used to have. Talking to a nurse on the phone once when he had a high fever we were told to give motrin (same ingredient as advil I believe) supposedly it works better and faster for fevers. Janet Sample new but old this is ann logged in as jasheridan. My questions? has anyone now or heard of Tyenol not a good pain medication for Melas or mito patients for headaches Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Janet I was told by Dr. Cohen and it was also mentioned at one of the mito conferences that we should avoid asprin and tylenol. Taking the occasional probably isn't an issue. He told me that it was okay to take an asprin a day for protection of the heart. I can't remember exactly why these are bad. laurie > Was just going thru my posts. The doc who diagnosed my sister, me and my > son with MELAS told me to not use aspirin, use tylenol or advil or there > generic equivalents. > > However, another mito patient told me that she and her son cannot take > either tylenol or advil, I do not remember which. They do not have melas I > cannot remember but something else. > > So I am not sure what to take. Personally we have advil generic in the > house because it just seems to work better for me and my son with headaches > and stomach pain he used to have. > > Talking to a nurse on the phone once when he had a high fever we were told > to give motrin (same ingredient as advil I believe) supposedly it works > better and faster for fevers. > > Janet Sample > new but old > > > > > this is ann logged in as jasheridan. > > My questions? has anyone now or heard of Tyenol not a good pain > medication for Melas or mito patients for headaches > > > > > > > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of this > e mail is entirely responsible for its content. List members are reminded of > their responsibility to evaluate the content of the postings and consult > with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I do remember someone mentioning recently that tylenol is supposed to be " bad " for mito patients. I can't imagine why ibuprofen would be okay if aspirin isn't though. I was told by my mito doc to take a low-dose aspirin every day, but I'm taking Vitamin K instead. I find that children's doses of tylenol and motrin work well for my occasional mild headache or fever. If one is concerned about side effects, I'd start with a child's dose or half of an adult dose. I think anyone who is chronically using tylenol or advil should be followed up by a doctor, even though these medicines are over-the- counter, they are not side-effect-free. I'd be careful ibuprofen (motrin or advil), and aspirin for that matter, for stomach pain, as they can cause or aggravate ulcers. I have ulcers so tend to use tylenol, which doesn't bother them. YMMV... Take care, RH > > Was just going thru my posts. The doc who diagnosed my sister, me and my > > son with MELAS told me to not use aspirin, use tylenol or advil or there > > generic equivalents. > > > > However, another mito patient told me that she and her son cannot take > > either tylenol or advil, I do not remember which. They do not have melas I > > cannot remember but something else. > > > > So I am not sure what to take. Personally we have advil generic in the > > house because it just seems to work better for me and my son with headaches > > and stomach pain he used to have. > > > > Talking to a nurse on the phone once when he had a high fever we were told > > to give motrin (same ingredient as advil I believe) supposedly it works > > better and faster for fevers. > > > > Janet Sample > > new but old > > > > > > > > > > this is ann logged in as jasheridan. > > > > My questions? has anyone now or heard of Tyenol not a good pain > > medication for Melas or mito patients for headaches > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained > > herein are not necessarily those of the list moderators. The author of this > > e mail is entirely responsible for its content. List members are reminded of > > their responsibility to evaluate the content of the postings and consult > > with their physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I am not sure why one is better or worse than the other. Luckily, I only need to take one for pain or headache rarely, maybe once every couple of months. My 12 yr old now only has to use one every couple of months. He takes the adult dose when he has a headache as he weighs about 110 lbs now, more than my sister weighed at 33. Anyway, when he went thru has phase a couple of years ago with constant headaches and no MRI or anything could find a cause Dr Tick told us to give him 200 mg of Ibuprofen. That sometimes worked and sometimes didn't. He weighed about 90 lbs at the time. Never did find out what the problem was, they just went away one day and the constipation started. Now that is controlled with Qgel. Janet new but old > > > > > > > > > > this is ann logged in as jasheridan. > > > > My questions? has anyone now or heard of Tyenol not a good pain > > medication for Melas or mito patients for headaches > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained > > herein are not necessarily those of the list moderators. The author of this > > e mail is entirely responsible for its content. List members are reminded of > > their responsibility to evaluate the content of the postings and consult > > with their physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 The reason I believe Tylenol is considered more troublesome to Mito patients is because we already deal with the risk of liver failure because of the disease. Think about the liver biopsies that are done for Mito. Acetaminophen poisoning is believed to cause liver damage. According to some studies, acetaminophen causes up to 40 percent of liver failures in the United States. In addition, acetaminophen toxicity kills an average of 100 people and sends roughly 56,000 people to emergency rooms annually. Basically, Tylenol toxicity is the poisoning of the liver caused by taking large doses and/or frequent doses of Tylenol, resulting in acetaminophen build-up. The same principle applies for any medication containing acetaminophen in significant amounts. Acetaminophen toxicity is caused by depletion of the amount of glutathione levels in the liver and may ultimately result in liver failure. Alice -- No virus found in this incoming message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Alice Thanks! I thought we shouldn't take aspirin (I think it also matabolized in the liver) or Tylenol because of the liver, but didn't want to say so unless certain. Since we are at risk of having a liver with damaged mito, we would be even more sensitive to the liver effect of these pain killers. laurie > > The reason I believe Tylenol is considered more troublesome to Mito > patients > is because we already deal with the risk of liver failure because of the > disease. Think about the liver biopsies that are done for Mito. > > > Acetaminophen poisoning is believed to cause liver damage. According to > some > studies, acetaminophen causes up to 40 percent of liver failures in the > United States. In addition, acetaminophen toxicity kills an average of 100 > people and sends roughly 56,000 people to emergency rooms annually. > > Basically, Tylenol toxicity is the poisoning of the liver caused by taking > large doses and/or frequent doses of Tylenol, resulting in acetaminophen > build-up. The same principle applies for any medication containing > acetaminophen in significant amounts. Acetaminophen toxicity is caused by > depletion of the amount of glutathione levels in the liver and may > ultimately result in liver failure. > > Alice > > > > > -- > No virus found in this incoming message. > Checked by AVG Anti-Virus. > Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 OK – I looked up aspirin and here is the list of reasons a person should not take aspirin. • Before taking this medication, tell your doctor if you · have an allergy to aspirin; · have an allergy to nonsteroidal HYPERLINK " http://www.drugs.com/aspirin.html " \nanti-inflammatory drugs (NSAIDs) such as ibuprofen (Motrin, Advil, others), naproxen (Aleve, Naprosyn, Anaprox, others), indomethacin (HYPERLINK " http://www.drugs.com/aspirin.html " \nIndocin), ketoprofen (HYPERLINK " http://www.drugs.com/aspirin.html " \nOrudis KT, Orudis, Oruvail), nabumetone (Relafen), oxaprozin (Daypro), and others; · have an allergy to tartrazine; · drink more than three alcoholic beverages a day; · have an ulcer or bleeding in your stomach; · have liver disease; · have kidney disease; · have a coagulation (bleeding) disorder (e.g., hemophilia); · have congestive heart failure; · have fluid retention; · have heart disease; · have high blood pressure; · have gout; · have asthma; or · have nasal polyps. Alice _____ * Alice Thanks! I thought we shouldn't take aspirin (I think it also matabolized in the liver) or Tylenol because of the liver, but didn't want to say so unless certain. Since we are at risk of having a liver with damaged mito, we would be even more sensitive to the liver effect of these pain killers. laurie -- No virus found in this incoming message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.11.10 - Release Date: 5/13/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 I have had my Tylenol compounded for some years so the filler is legal, and I am going to ask the doctor tomorrow (when we discuss this flare of pain) if I should do the same with the Ibuprofen now that I seem to need both. I probably should as I'm needing both these days. Compounding pharmacies can do anything that isn't still on patent, though I must admit, it's expensive. Most prescription and OTC drugs have either or both lactose and cornstarch to begin with and then the list of chemicals and things go on from there! So is extra strength tylenol not allowed? If not, can you let me know why? I've had a bad virus recently myself and took extra strength (rapid release) tylenol several times a few days ago. Thanks, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 I have had my Tylenol compounded for some years so the filler is legal, and I am going to ask the doctor tomorrow (when we discuss this flare of pain) if I should do the same with the Ibuprofen now that I seem to need both. I probably should as I'm needing both these days. Compounding pharmacies can do anything that isn't still on patent, though I must admit, it's expensive. Most prescription and OTC drugs have either or both lactose and cornstarch to begin with and then the list of chemicals and things go on from there! So is extra strength tylenol not allowed? If not, can you let me know why? I've had a bad virus recently myself and took extra strength (rapid release) tylenol several times a few days ago. Thanks, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 I have had my Tylenol compounded for some years so the filler is legal, and I am going to ask the doctor tomorrow (when we discuss this flare of pain) if I should do the same with the Ibuprofen now that I seem to need both. I probably should as I'm needing both these days. Compounding pharmacies can do anything that isn't still on patent, though I must admit, it's expensive. Most prescription and OTC drugs have either or both lactose and cornstarch to begin with and then the list of chemicals and things go on from there! So is extra strength tylenol not allowed? If not, can you let me know why? I've had a bad virus recently myself and took extra strength (rapid release) tylenol several times a few days ago. Thanks, Jill Quote Link to comment Share on other sites More sharing options...
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