new signs/evaluation

[Guest guest]

Hello Helen,

I guess that in my case, with anything new as a sign, it is an

indication for me to seek medical attention. I however, have stayed WAY

away from Neurologists for 20 year. Instead, my Internist is great and

can handle most everything. From there, my orthopedist is great. And

from there, I go to the Orthotist.

The only 2 major changes in me and my CMT in the last 5 or so years have

been 1) needing full in-shoe orthotics, as opposed to half ones and 2)

having 'electrical' type pain that started last year and is under

control thanks to Neurontin.

I would say that anytime one of your life's activities gets difficult,

like say, when I was in Australia, I had some 'unexplained' pain from

all the walking I was doing in the rainforrests.(so who doesn't have

trouble walking in mud?) When I got home, even back on city streets, I

still had it, so to the Internist first, then directly to the Orthotist

who made new orthotics. In no time I was back to daily walks with no

pain and traveling again.

I have had to observe myself alot and especially the pain issue, because

if I get something 'new', sometimes in my CMT life, I have symptoms that

dissappear and don't come back (such as numbness - used to get numb

arms, not for 25 year now) No neurologist could ever explain this or

anything else to me and just wanted to give me braces and stuff me with

medications.

My current Drs. are the best and we all work together as a team.

So, when one of your activities in your daily life starts being

affected, perhaps I would suggest going to the Dr. and getting the new

symptom evaluated.

Gretchen

[Guest guest]

Gretchen, Kathleen, Danieta.....Just wanted to thank you for replying to my

query the other day about signs and symptoms. My computer has been playing

up and only just now can send email, it seems to have its own set of signs

and symptoms!

thanks again

Helen