Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hi Carolyn, I have tried many different types of beds including futon,foam,waterbed and regular mattresses. I have a very difficult time getting a restful night sleep. I liked the waterbed and used one for many years, but they are very difficult to move and set-up again ( and I moved it several times)so I sold it. The waterbed was nice cause you could fill it to how firm you want it, and it was nice and warm to get into. Somewhat difficult to get out of though, as it isn't as firm as a regular mattress. I now use a foam topper and a wool mattress cover on top of the softest mattress I could find, which is still quite firm (the mattress i mean). There is one problem with the foam in that I sometimes wake up sweating in the middle of the night, And I think it is because of the foam???? I have looked at other options, but they are more expensive. I tried out a temperpedic mattress and it was very comfortable as it molds to your body shape, it is supposed to reduce tossing and turning by at least 50%. I slept a lot better on it but as it is made in Sweden, it is very expensive to buy here. It was first designed for astronauts.. There are copycat less expensive materials available but don't know if they are as good. A slightly less expensive mattress I have recently tried through a medical supply store is a " Renew " mattress. It was designed for hosptials to alleviate pressure sores in patients that spend a lot of time in bed and can't move around as frequently. They let me try it for 7 days, and I loved it! It has air chambers inside it that you can adjust to the firmness you want. It costs a lot though, almost $900.00 Canadian for a single size.(probably about 600 US $.) I am seriously considering it, because I don't sleep well unless I take sleeping pills or something, and I'm tired most of the day. Re cushioning for the feet,like Gretchen I use orthotics, and recently I am also using the Spenco inserts that she mentioned. I put them on top of my orthotics for extra cushioning, and they work well. I also use them in a pair of slippers as well. My feet are very skinny and contorted so I can relate to the " tender foot " problem. I also have problems with my knees too, chiropractor also feels it is because of the way I walk. I have had different health professionals try to get me to change the way I walk, but I found this near impossible. My back pain is also related to this walk, but so far haven't had any hip pain. Good luck with finding some good solutions! At 08:13 PM 7/30/2000 -0000, you wrote: >Hi, All. Several folks have talked about hip pain. I too have this, >sometimes less, sometimes more. Worst problem is in the hip that >adjoins the leg with the severe osteoarthritis, which is a result of >the CMT (sounds like the House that Jack Built...) Have had an >occasional cortisone shot in that joint, which was good for a kind of >long-term temporary effect. I think the poor gait that we develop as >the result of CMT, regardless of type, must surely have an effect on >the hips - right? Also, I find that my posture has suffered from the >effect of the feet pronating, and the knees deteriorating. I wish it >were not so, but it is. For me, when the hip pain gets bad, the " Bed >Buddy " helps a lot. Any other non-drug therapy out there? > >Today in the Sunday Parade magazine, I ran across an ad having to do >with Fibromyalgia relief in the form of a " bed underquilt. " The >company is called " Cuddle Ewe " and they make a bed pad out of " thick, >natural wool batting. " Web site www.cuddleewe.com. Kind of >interesting, but quite expensive (for my budget). Sounds like it >could be helpful for CMT. Wish it weren't so expensive. > >Feet: Maybe most of you have this - but I'm noticing more and more >that my feet are just getting more and more tender in shoes. Is it >more bone-on-bone stuff, because the muscles are wasting more? Do you >wear any kind of padded insoles that help with that? > >I mentioned earlier that I think some of my chronic sleep problems >are that my body is not comfortable being in itself. Too many aches >and pains and not able to find comfortable positions, etc. Does >anyone use a water bed, or other kind of bed that helps? > >Love the Group! Regards to All, Carolyn > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hi Carolyn, I have tried many different types of beds including futon,foam,waterbed and regular mattresses. I have a very difficult time getting a restful night sleep. I liked the waterbed and used one for many years, but they are very difficult to move and set-up again ( and I moved it several times)so I sold it. The waterbed was nice cause you could fill it to how firm you want it, and it was nice and warm to get into. Somewhat difficult to get out of though, as it isn't as firm as a regular mattress. I now use a foam topper and a wool mattress cover on top of the softest mattress I could find, which is still quite firm (the mattress i mean). There is one problem with the foam in that I sometimes wake up sweating in the middle of the night, And I think it is because of the foam???? I have looked at other options, but they are more expensive. I tried out a temperpedic mattress and it was very comfortable as it molds to your body shape, it is supposed to reduce tossing and turning by at least 50%. I slept a lot better on it but as it is made in Sweden, it is very expensive to buy here. It was first designed for astronauts.. There are copycat less expensive materials available but don't know if they are as good. A slightly less expensive mattress I have recently tried through a medical supply store is a " Renew " mattress. It was designed for hosptials to alleviate pressure sores in patients that spend a lot of time in bed and can't move around as frequently. They let me try it for 7 days, and I loved it! It has air chambers inside it that you can adjust to the firmness you want. It costs a lot though, almost $900.00 Canadian for a single size.(probably about 600 US $.) I am seriously considering it, because I don't sleep well unless I take sleeping pills or something, and I'm tired most of the day. Re cushioning for the feet,like Gretchen I use orthotics, and recently I am also using the Spenco inserts that she mentioned. I put them on top of my orthotics for extra cushioning, and they work well. I also use them in a pair of slippers as well. My feet are very skinny and contorted so I can relate to the " tender foot " problem. I also have problems with my knees too, chiropractor also feels it is because of the way I walk. I have had different health professionals try to get me to change the way I walk, but I found this near impossible. My back pain is also related to this walk, but so far haven't had any hip pain. Good luck with finding some good solutions! At 08:13 PM 7/30/2000 -0000, you wrote: >Hi, All. Several folks have talked about hip pain. I too have this, >sometimes less, sometimes more. Worst problem is in the hip that >adjoins the leg with the severe osteoarthritis, which is a result of >the CMT (sounds like the House that Jack Built...) Have had an >occasional cortisone shot in that joint, which was good for a kind of >long-term temporary effect. I think the poor gait that we develop as >the result of CMT, regardless of type, must surely have an effect on >the hips - right? Also, I find that my posture has suffered from the >effect of the feet pronating, and the knees deteriorating. I wish it >were not so, but it is. For me, when the hip pain gets bad, the " Bed >Buddy " helps a lot. Any other non-drug therapy out there? > >Today in the Sunday Parade magazine, I ran across an ad having to do >with Fibromyalgia relief in the form of a " bed underquilt. " The >company is called " Cuddle Ewe " and they make a bed pad out of " thick, >natural wool batting. " Web site www.cuddleewe.com. Kind of >interesting, but quite expensive (for my budget). Sounds like it >could be helpful for CMT. Wish it weren't so expensive. > >Feet: Maybe most of you have this - but I'm noticing more and more >that my feet are just getting more and more tender in shoes. Is it >more bone-on-bone stuff, because the muscles are wasting more? Do you >wear any kind of padded insoles that help with that? > >I mentioned earlier that I think some of my chronic sleep problems >are that my body is not comfortable being in itself. Too many aches >and pains and not able to find comfortable positions, etc. Does >anyone use a water bed, or other kind of bed that helps? > >Love the Group! Regards to All, Carolyn > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Thanks for the great input. Appreciated! Carry on.... Regards, Carolyn > >Hi, All. Several folks have talked about hip pain. I too have this, > >sometimes less, sometimes more. Worst problem is in the hip that > >adjoins the leg with the severe osteoarthritis, which is a result of > >the CMT (sounds like the House that Jack Built...) Have had an > >occasional cortisone shot in that joint, which was good for a kind of > >long-term temporary effect. I think the poor gait that we develop as > >the result of CMT, regardless of type, must surely have an effect on > >the hips - right? Also, I find that my posture has suffered from the > >effect of the feet pronating, and the knees deteriorating. I wish it > >were not so, but it is. For me, when the hip pain gets bad, the " Bed > >Buddy " helps a lot. Any other non-drug therapy out there? > > > >Today in the Sunday Parade magazine, I ran across an ad having to do > >with Fibromyalgia relief in the form of a " bed underquilt. " The > >company is called " Cuddle Ewe " and they make a bed pad out of " thick, > >natural wool batting. " Web site www.cuddleewe.com. Kind of > >interesting, but quite expensive (for my budget). Sounds like it > >could be helpful for CMT. Wish it weren't so expensive. > > > >Feet: Maybe most of you have this - but I'm noticing more and more > >that my feet are just getting more and more tender in shoes. Is it > >more bone-on-bone stuff, because the muscles are wasting more? Do you > >wear any kind of padded insoles that help with that? > > > >I mentioned earlier that I think some of my chronic sleep problems > >are that my body is not comfortable being in itself. Too many aches > >and pains and not able to find comfortable positions, etc. Does > >anyone use a water bed, or other kind of bed that helps? > > > >Love the Group! Regards to All, Carolyn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Thanks for the great input. Appreciated! Carry on.... Regards, Carolyn > >Hi, All. Several folks have talked about hip pain. I too have this, > >sometimes less, sometimes more. Worst problem is in the hip that > >adjoins the leg with the severe osteoarthritis, which is a result of > >the CMT (sounds like the House that Jack Built...) Have had an > >occasional cortisone shot in that joint, which was good for a kind of > >long-term temporary effect. I think the poor gait that we develop as > >the result of CMT, regardless of type, must surely have an effect on > >the hips - right? Also, I find that my posture has suffered from the > >effect of the feet pronating, and the knees deteriorating. I wish it > >were not so, but it is. For me, when the hip pain gets bad, the " Bed > >Buddy " helps a lot. Any other non-drug therapy out there? > > > >Today in the Sunday Parade magazine, I ran across an ad having to do > >with Fibromyalgia relief in the form of a " bed underquilt. " The > >company is called " Cuddle Ewe " and they make a bed pad out of " thick, > >natural wool batting. " Web site www.cuddleewe.com. Kind of > >interesting, but quite expensive (for my budget). Sounds like it > >could be helpful for CMT. Wish it weren't so expensive. > > > >Feet: Maybe most of you have this - but I'm noticing more and more > >that my feet are just getting more and more tender in shoes. Is it > >more bone-on-bone stuff, because the muscles are wasting more? Do you > >wear any kind of padded insoles that help with that? > > > >I mentioned earlier that I think some of my chronic sleep problems > >are that my body is not comfortable being in itself. Too many aches > >and pains and not able to find comfortable positions, etc. Does > >anyone use a water bed, or other kind of bed that helps? > > > >Love the Group! Regards to All, Carolyn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Thanks for the great input. Appreciated! Carry on.... Regards, Carolyn > >Hi, All. Several folks have talked about hip pain. I too have this, > >sometimes less, sometimes more. Worst problem is in the hip that > >adjoins the leg with the severe osteoarthritis, which is a result of > >the CMT (sounds like the House that Jack Built...) Have had an > >occasional cortisone shot in that joint, which was good for a kind of > >long-term temporary effect. I think the poor gait that we develop as > >the result of CMT, regardless of type, must surely have an effect on > >the hips - right? Also, I find that my posture has suffered from the > >effect of the feet pronating, and the knees deteriorating. I wish it > >were not so, but it is. For me, when the hip pain gets bad, the " Bed > >Buddy " helps a lot. Any other non-drug therapy out there? > > > >Today in the Sunday Parade magazine, I ran across an ad having to do > >with Fibromyalgia relief in the form of a " bed underquilt. " The > >company is called " Cuddle Ewe " and they make a bed pad out of " thick, > >natural wool batting. " Web site www.cuddleewe.com. Kind of > >interesting, but quite expensive (for my budget). Sounds like it > >could be helpful for CMT. Wish it weren't so expensive. > > > >Feet: Maybe most of you have this - but I'm noticing more and more > >that my feet are just getting more and more tender in shoes. Is it > >more bone-on-bone stuff, because the muscles are wasting more? Do you > >wear any kind of padded insoles that help with that? > > > >I mentioned earlier that I think some of my chronic sleep problems > >are that my body is not comfortable being in itself. Too many aches > >and pains and not able to find comfortable positions, etc. Does > >anyone use a water bed, or other kind of bed that helps? > > > >Love the Group! Regards to All, Carolyn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 My AFO's have a foam lining that is really comfy. I was one of the few who had a serious allergic reaction to the methylmylacralate, so they put the foam in to create a barrier. I go in around 2 times a year to get the heels and any trouble spots re-cushioned. I call it my 10,000 mile check. Melody Re: BEDS, Foot cushions. > Hi Carolyn, > > I have tried many different types of beds including futon,foam,waterbed and > regular mattresses. I have a very difficult time getting a restful night > sleep. I liked the waterbed and used one for many years, but they are > very difficult to move and set-up again ( and I moved it several times)so I > sold it. The waterbed was nice cause you could fill it to how firm you > want it, and it was nice and warm to get into. Somewhat difficult to get > out of though, as it isn't as firm as a regular mattress. > > I now use a foam topper and a wool mattress cover on top of the softest > mattress I could find, which is still quite firm (the mattress i mean). > There is one problem with the foam in that I sometimes wake up sweating in > the middle of the night, And I think it is because of the foam???? > > I have looked at other options, but they are more expensive. I tried out a > temperpedic mattress and it was very comfortable as it molds to your body > shape, it is supposed to reduce tossing and turning by at least 50%. I > slept a lot better on it but as it is made in Sweden, it is very expensive > to buy here. It > was first designed for astronauts.. There are copycat less expensive > materials available but don't know if they are as good. > > A slightly less expensive mattress I have recently tried through a medical > supply store is a " Renew " mattress. It was designed for hosptials to > alleviate pressure sores in patients that spend a lot of time in bed and > can't move around as frequently. They let me try it for 7 days, and I > loved it! It has air chambers inside it that you can adjust to the > firmness you want. It costs a lot though, almost $900.00 Canadian for a > single size.(probably about 600 US $.) I am seriously considering it, > because I don't sleep well unless I take sleeping pills or something, and > I'm tired most of the day. > > Re cushioning for the feet,like Gretchen I use orthotics, and recently I am > also using the Spenco inserts that she mentioned. I put them on top of my > orthotics for extra cushioning, and they work well. I also use them in a > pair of slippers as well. My feet are very skinny and contorted so I can > relate to the " tender foot " problem. > > I also have problems with my knees too, chiropractor also feels it is > because of the way I walk. > I have had different health professionals try to get me to change the way I > walk, but I found this near impossible. My back pain is also related to > this walk, but so far haven't had any hip pain. > > Good luck with finding some good solutions! > > > > > > > > > At 08:13 PM 7/30/2000 -0000, you wrote: > >Hi, All. Several folks have talked about hip pain. I too have this, > >sometimes less, sometimes more. Worst problem is in the hip that > >adjoins the leg with the severe osteoarthritis, which is a result of > >the CMT (sounds like the House that Jack Built...) Have had an > >occasional cortisone shot in that joint, which was good for a kind of > >long-term temporary effect. I think the poor gait that we develop as > >the result of CMT, regardless of type, must surely have an effect on > >the hips - right? Also, I find that my posture has suffered from the > >effect of the feet pronating, and the knees deteriorating. I wish it > >were not so, but it is. For me, when the hip pain gets bad, the " Bed > >Buddy " helps a lot. Any other non-drug therapy out there? > > > >Today in the Sunday Parade magazine, I ran across an ad having to do > >with Fibromyalgia relief in the form of a " bed underquilt. " The > >company is called " Cuddle Ewe " and they make a bed pad out of " thick, > >natural wool batting. " Web site www.cuddleewe.com. Kind of > >interesting, but quite expensive (for my budget). Sounds like it > >could be helpful for CMT. Wish it weren't so expensive. > > > >Feet: Maybe most of you have this - but I'm noticing more and more > >that my feet are just getting more and more tender in shoes. Is it > >more bone-on-bone stuff, because the muscles are wasting more? Do you > >wear any kind of padded insoles that help with that? > > > >I mentioned earlier that I think some of my chronic sleep problems > >are that my body is not comfortable being in itself. Too many aches > >and pains and not able to find comfortable positions, etc. Does > >anyone use a water bed, or other kind of bed that helps? > > > >Love the Group! Regards to All, Carolyn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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