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In a message dated 5/22/99 8:02:38 AM !!!First Boot!!!, bowlpoker@...

writes:

<< Wanted to know do many in the group take painkillers because of the pain

associated with the leg? >>

I have leg pain along with my typical RLS symptoms.....one of the lucky ones,

eh?

My RLS meds do nothing for the pain; hence, I have tried the following:

Tylenol Extra-Strength

Aspirin

Ibuprofen (Advil)

Aleve (naprosyn)

Indocin-SR (indomethacin)

Celebrex

Capzasin (capsaicin - cayenne pepper extract)

I don't do narcotics! No and's, if's or but's about it. Against my

" religion. "

In my personal experience, Aleve did NOTHING at OTC doses.

Indocin helps a lot but after time, it hurts my stomach. On the side, I have

noticed a big difference between the generic Indocin and the brand-name

Indocin. There is a difference between generics and brand-names, in spite of

what the HMO's would have you to believe. I ALWAYS get brand-name meds

regardless of the cost. I refilled my my Indocin once and the pharmacy

mistakenly gave me the generic. I took one right before supper one night and

I literally feel asleep while eating supper. I passed out. My wife could

not wake me up. Thinking they gave me the " wrong " medicine (pharmacies do

that you know, more than you think), she took the med to the pharmacy and

they told her that they gave me the generic Indocin.

The Celebrex works wonderfully! No pain! It even helps my RLS, sometimes

more than the Permax. Unfortunately, it started hurting my stomach and

causing a lot of GER in spite the claims that it doen't " hurt " your stomach!

The capsaicin cream works but that " burning " feeling is rather annoying and

if you don't wash your hands really really really really well and accidently

rub your eyes or other sensitive areas, OUCH!

RAINBOWPED@...

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  • 2 years later...
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In a message dated 4/23/2002 12:01:05 PM US Mountain Standard Time,

pancreatitis writes:

> The other issue I wanted to responds to was that your post was written as if

>

> you felt you were already on an aggressive pain management program with

> high

> doses of strong medications. You are only on the floor level. maybe the

> second floor. I have been on Fentanyl Patches 100mcg, three patches at a

> time, Oxycontin 80mg two tablets every 6 hours, Neurotransmitters such as

> Neurontin, & Balcofen, Smooth muscle relaxers such as Flexaril and Valium,

> as

> well as Oxyfast and ACTIQ 1600mcg for breakthrough pain. I was on an IV

> Morphine pump. Actually what I think initially brought my pain under

> control

> was going on TPN resting the gut completely. After several months I was

> able

> to go back to oral pain management program. It is important to address any

> depression and insomnia you may have. Those greatly affect pain.

> Additionally, many antidepressants serve as pain medication adjuncts.

>

> Karyn E. , RN

> Founder / President

> Pancreatitis Association Intl.

> KarynWms@.../

>

>

>

Dear Karyn,

Thanks for sharing your pain meds. I am on floor 1/2, but I saved your list

to take to my GI doc when (or hopefully, if) I get worse and need more pain

management. That way he will know what is a TYPICAL regiment for managing

pancreatitis pain - I don't think he has a clue yet as I don't believe he has

treated anyone with CP. Did Dr. Lehman give you that regiment? If so, I can

tell my GI that, as he respects Dr. Lehman and Dr. Lehman consults with him

regarding my treatment.

Cecilia

Cecilia

soce@...

Mesa, Arizona

Arizona Chapter Representative

Pancreatitis Association International

http://pancassociation.org/storieshome.html

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In a message dated 4/23/02 11:53:48 PM US Eastern Standard Time,

soce@... writes:

> Did Dr. Lehman give you that regiment? If so, I can tell my GI that, as he

> respects Dr. Lehman and Dr. Lehman consults with him regarding my

> treatment. Cecelia

Dr. Lehman and Dr. Sherman say that is not their area of expertise, though,

they initially put me on Oxycontin. They refer to the pain clinic. I am not

pleased with the IU pain clinic as they do no pharmaceutical pain management,

only blocks, etc. I went to an outside pain clinic and now go to my Internal

Medicine doctor.

I will get back to the several of you who asked about the pancreatic related

spinal nerve injury after I get some data that will be useful.

Karyn E. , RN

Founder / President

Pancreatitis Association Intl.

KarynWms@.../

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  • 4 years later...
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One of the things about pain medication-- if you are being treated with the correct dosage-- you will not become addicted. It is when you are being under-medicated--and have to increase the dosage (naturally you're not telling your MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've got a problem.

I have done several posts on Addiction vs. Dependency. It took a very long time for me to truly understand this--and it is very important to me. I have 17 yrs of sobriety from pain pill addiction now-- and have great respect for the power of the medication.

Pain medication only works if you take it as directed, and if the dose isn't working-- talk to your MD-- DO NOT SELF-MEDICATE!

In order for pain meds to work, you take them as you would take any other drug-- use them as a prevention of pain. If you wait until you're hurting-- then the pain cycle has started, and it is very hard to break it.

Check out the info on Addiction and Dependency in the ARCHIVES and LINKS.

Blessings,

Tracie

NS Co-owner/moderator

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One of the things about pain medication-- if you are being treated with the correct dosage-- you will not become addicted. It is when you are being under-medicated--and have to increase the dosage (naturally you're not telling your MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've got a problem.

I have done several posts on Addiction vs. Dependency. It took a very long time for me to truly understand this--and it is very important to me. I have 17 yrs of sobriety from pain pill addiction now-- and have great respect for the power of the medication.

Pain medication only works if you take it as directed, and if the dose isn't working-- talk to your MD-- DO NOT SELF-MEDICATE!

In order for pain meds to work, you take them as you would take any other drug-- use them as a prevention of pain. If you wait until you're hurting-- then the pain cycle has started, and it is very hard to break it.

Check out the info on Addiction and Dependency in the ARCHIVES and LINKS.

Blessings,

Tracie

NS Co-owner/moderator

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One of the things about pain medication-- if you are being treated with the correct dosage-- you will not become addicted. It is when you are being under-medicated--and have to increase the dosage (naturally you're not telling your MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've got a problem.

I have done several posts on Addiction vs. Dependency. It took a very long time for me to truly understand this--and it is very important to me. I have 17 yrs of sobriety from pain pill addiction now-- and have great respect for the power of the medication.

Pain medication only works if you take it as directed, and if the dose isn't working-- talk to your MD-- DO NOT SELF-MEDICATE!

In order for pain meds to work, you take them as you would take any other drug-- use them as a prevention of pain. If you wait until you're hurting-- then the pain cycle has started, and it is very hard to break it.

Check out the info on Addiction and Dependency in the ARCHIVES and LINKS.

Blessings,

Tracie

NS Co-owner/moderator

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Tracie,

I agree totally with what you said. But we are humans and a lot of

people will think, I will just take one extra today and then the next

day and then maybe two extra today.....I think I just wanted people to

know that dependency can happen even if it is only in your head that you

cannot live without the pills. A lot of people come from families that

are addicted and I think that is why I under medicate myself.

I just want everyone to be taken care of and be aware of what can happen

if they depend too much on the meds to make them feel better. Like you,

I believe there are alternative therapies.....when my legs spasm I try

to do stretches to counteract them. I also use my Yoga meditation (slow

breathing, becoming aware of my body) to try to not take medication for

it. If all else fails, then I take my ativan. I just don't want to

become addicted and I also believe there are some alternative therapies

you can use. I feel that my body has been poisoned through some many

things in everyday life, I try to only take what I have too.

Well, I have gone on and on about this so I think you see where I am

coming from. Part of it is coming from personal experience and part of

it is from working in pain management.

Take care.

Terri G.

>

> One of the things about pain medication-- if you are being treated

with the

> correct dosage-- you will not become addicted. It is when you are

being

> under-medicated--and have to increase the dosage (naturally you're not

telling your

> MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've

got a

> problem.

>

> I have done several posts on Addiction vs. Dependency. It took a very

long

> time for me to truly understand this--and it is very important to me.

I have

> 17 yrs of sobriety from pain pill addiction now-- and have great

respect for

> the power of the medication.

>

> Pain medication only works if you take it as directed, and if the dose

isn't

> working-- talk to your MD-- DO NOT SELF-MEDICATE!

>

> In order for pain meds to work, you take them as you would take any

other

> drug-- use them as a prevention of pain. If you wait until you're

hurting-- then

> the pain cycle has started, and it is very hard to break it.

>

> Check out the info on Addiction and Dependency in the ARCHIVES and

LINKS.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

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Tracie,

I agree totally with what you said. But we are humans and a lot of

people will think, I will just take one extra today and then the next

day and then maybe two extra today.....I think I just wanted people to

know that dependency can happen even if it is only in your head that you

cannot live without the pills. A lot of people come from families that

are addicted and I think that is why I under medicate myself.

I just want everyone to be taken care of and be aware of what can happen

if they depend too much on the meds to make them feel better. Like you,

I believe there are alternative therapies.....when my legs spasm I try

to do stretches to counteract them. I also use my Yoga meditation (slow

breathing, becoming aware of my body) to try to not take medication for

it. If all else fails, then I take my ativan. I just don't want to

become addicted and I also believe there are some alternative therapies

you can use. I feel that my body has been poisoned through some many

things in everyday life, I try to only take what I have too.

Well, I have gone on and on about this so I think you see where I am

coming from. Part of it is coming from personal experience and part of

it is from working in pain management.

Take care.

Terri G.

>

> One of the things about pain medication-- if you are being treated

with the

> correct dosage-- you will not become addicted. It is when you are

being

> under-medicated--and have to increase the dosage (naturally you're not

telling your

> MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've

got a

> problem.

>

> I have done several posts on Addiction vs. Dependency. It took a very

long

> time for me to truly understand this--and it is very important to me.

I have

> 17 yrs of sobriety from pain pill addiction now-- and have great

respect for

> the power of the medication.

>

> Pain medication only works if you take it as directed, and if the dose

isn't

> working-- talk to your MD-- DO NOT SELF-MEDICATE!

>

> In order for pain meds to work, you take them as you would take any

other

> drug-- use them as a prevention of pain. If you wait until you're

hurting-- then

> the pain cycle has started, and it is very hard to break it.

>

> Check out the info on Addiction and Dependency in the ARCHIVES and

LINKS.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

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Tracie,

I agree totally with what you said. But we are humans and a lot of

people will think, I will just take one extra today and then the next

day and then maybe two extra today.....I think I just wanted people to

know that dependency can happen even if it is only in your head that you

cannot live without the pills. A lot of people come from families that

are addicted and I think that is why I under medicate myself.

I just want everyone to be taken care of and be aware of what can happen

if they depend too much on the meds to make them feel better. Like you,

I believe there are alternative therapies.....when my legs spasm I try

to do stretches to counteract them. I also use my Yoga meditation (slow

breathing, becoming aware of my body) to try to not take medication for

it. If all else fails, then I take my ativan. I just don't want to

become addicted and I also believe there are some alternative therapies

you can use. I feel that my body has been poisoned through some many

things in everyday life, I try to only take what I have too.

Well, I have gone on and on about this so I think you see where I am

coming from. Part of it is coming from personal experience and part of

it is from working in pain management.

Take care.

Terri G.

>

> One of the things about pain medication-- if you are being treated

with the

> correct dosage-- you will not become addicted. It is when you are

being

> under-medicated--and have to increase the dosage (naturally you're not

telling your

> MD that)-- but instead of 1 tablet, you take 2- or 3 or 10-- you've

got a

> problem.

>

> I have done several posts on Addiction vs. Dependency. It took a very

long

> time for me to truly understand this--and it is very important to me.

I have

> 17 yrs of sobriety from pain pill addiction now-- and have great

respect for

> the power of the medication.

>

> Pain medication only works if you take it as directed, and if the dose

isn't

> working-- talk to your MD-- DO NOT SELF-MEDICATE!

>

> In order for pain meds to work, you take them as you would take any

other

> drug-- use them as a prevention of pain. If you wait until you're

hurting-- then

> the pain cycle has started, and it is very hard to break it.

>

> Check out the info on Addiction and Dependency in the ARCHIVES and

LINKS.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

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