intoduction

[Guest guest]

Hello, my name is Joyce and I live in Arizona. I had been diagnosed as a carrier

of CMT 25 yr. ago, and my youngest son with the disease. I have been diagnosed

with fibromyalgia about 6 years ago. About 4 months ago my hands felt like they

were sleeping or burning or just frozen. I went to see a neurologist and had an

emg. This doctor informed me that I had CMT. I have lost the feelings in my feet

and now it seems it will do the same to my fingers ands than my palms.I was so

very angry and frustrated till I read about some of your questions.How very

selfish of me and how stong so many of you are. I hope you enjoy this little

saga. Seize the Moment

I have a friend who lives by a three word philosophy . Seize the moment. Just

possibly she may be the wisest woman on this planet. Too many people put off

something that brings them joy just because they haven't thought about it, do

not have it on their schedule, didn't know it was coming or are too rigid to

depart from their routine. I got to thinking one day about all the women on the

Titanic who passed up dessert at dinner that fateful night in an effort to cut

back. From than on, I've tried to be a little more flexible. How many women out

there will eat at home because their husband don't suggest going out to dinner

until after something had been thawed. How often have your children dropped in

to talk and sat in silence while you watched Jeopardy on TV. Or how often have

you called your sister or friend and said lets go out to lunch in one hour. they

replied I can't because

1. I have clothes on the line

2.My hair is dirty

3.I wish I had know yesterday

4. I had a late breakfast, anyway something may happen to them and you never did

have lunch with them

Because Americans cram so much onto their lives, we tend to shedule headaches.

We live on a sparse diet of promises we make to ourselves when all the

conditions are p reflect. Life has a way of accelerating, as we get older. The

days get shorter, and the list of promises to ourselves gets longer.

One morning, we awaken and all we have to show for our lives is a litany of "

Imgoing to, or I plan to. someday. But when anyone calls my seize the moment

friend, she is open to adventure and available for trips. She keeps an open mind

on new ideas. Her enthusiasm for life is contagious.You talk with her for five

minutes and you are ready to trade in your bad feet for a pair of roller blades,

and skip an elevator for a bungee cord

So my friends go on and have a wonderful day, do something you want too and not

something on your should do list.

I hope this will bring a smile to all.