Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 To Ninette and the group, especially Ninette: Thanks for all your comments and help. I don't mind the squabbling, either. After all, we are a mixed bag of people who suffer horrendously from a very poorly researched and treated syndrome (disease?). Even " healthy " people in families less tied to pain than we are will tiff from time to time. Our disagreements are as important as agreements to learning about ourselves and our difficulties. I'm pretty new to the RLS support, and can't believe how much I've realized in a short time. I've had RLS for 39 years, been through about all the rest of you have been through, and am just getting the idea that there may be a life without the $300 I spend on meds each month, not to mention the effects of those meds. Bless you one and all, and keep up the real-life-on-line. ---------- > From: ninettecampbell@... (Ninette ) > > Kathleen & group, > > I wonder why, if you were keeping your RLS > in check, that anyone put you on a different drug. IMO Sinimet only > increases the agony of this disease. I know that I am am not everyone, > but after finally getting off Requip, I will not take anything, ever > again, that increases my symptoms. Even though it does keep it in > check, you HAVE to take it or you will be CRAZY. you are absolutely tied > to it. When I first joined this list, I made it very clear that I was > over suffereing and I would take " anything " that would help with this. > Well, I was wrong, because I didn't realize what other agonies those > drugs were bringing with them. It took several weeks and a lot of > suffering to get off the Requip,but I did it. i'm only taking Xanax > at the moment, and last night (after a 4.3 mile run - YES) I went to bed > and slept with no meds, for the first time in years. Now I'm not living > in a fantasy world. I realize, because i've been there too many times > that It will get worse again, I'll have to take more meds to stop the > " action " and I'll be looking for something new again. In the meantime, > no matter how short lived, I'm happy to be off of a drug that i could > not forget to take. I don't intend to suggest that this is for anyone > else, but right now, for me, I am feeling better than I have in a long > time. > I would like to say in closing, that I truly don't mind who > argues, who agrees, who kicks > and fights, or who loves and sends greetings. I care about you all, and > know that everyone > handles stress, illness, and life in general - in different ways. I'm > just glad to be here and have the support and knowledge of this group. > Continue to agree and disagree, the whole world does, and if everyone > agreed about everything we would never make new discoveries. > > Love, care & sweet dreams to all, > Ninette > > > > ------------------------------------------------------------------------ > ONElist members are using Shared Files in great ways! > http://www.onelist.com > Are you? If not, see our homepage for details. > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for > support purposes > and is not intended to replace the examination, diagnosis and treatment of a > licensed > physician and no such claims are inferred. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 I tried to go to the internet address for A to B Calm given as : www.calmag.com and there was no result for that address. Can the person who posted this please let us know the right address? I was trying to use the internet to research it instead of paying long distance to learn about it. I am sorry, but I already deleted the persons message from my mail, so I don't know who posted it with this address. Thanks. Nat Dean, Santa Fe, NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Nat: The address for the site is: http://www.calmag.com/ I had it bookmarked as I had checked it out when it was posted to the group. Just received mine in the mail a couple of days ago, but have yet to try it. Jodi Nat Dean wrote: > > > I tried to go to the internet address for A to B Calm given as : > www.calmag.com and there was no result for that address. Can the person > who posted this please let us know the right address? I was trying to use > the internet to research it instead of paying long distance to learn about > it. I am sorry, but I already deleted the persons message from my mail, so > I don't know who posted it with this address. Thanks. > Nat Dean, Santa Fe, NM > > ------------------------------------------------------------------------ > " Congratulations to 'Voice-Diary,' our latest ONElist of the Week. > http://www.onelist.com > Visit our homepage and share with us how ONElist is changing YOUR life! > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for support purposes > and is not intended to replace the examination, diagnosis and treatment of a licensed > physician and no such claims are inferred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Nat: The address for the site is: http://www.calmag.com/ I had it bookmarked as I had checked it out when it was posted to the group. Just received mine in the mail a couple of days ago, but have yet to try it. Jodi Nat Dean wrote: > > > I tried to go to the internet address for A to B Calm given as : > www.calmag.com and there was no result for that address. Can the person > who posted this please let us know the right address? I was trying to use > the internet to research it instead of paying long distance to learn about > it. I am sorry, but I already deleted the persons message from my mail, so > I don't know who posted it with this address. Thanks. > Nat Dean, Santa Fe, NM > > ------------------------------------------------------------------------ > " Congratulations to 'Voice-Diary,' our latest ONElist of the Week. > http://www.onelist.com > Visit our homepage and share with us how ONElist is changing YOUR life! > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for support purposes > and is not intended to replace the examination, diagnosis and treatment of a licensed > physician and no such claims are inferred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Nat: The address for the site is: http://www.calmag.com/ I had it bookmarked as I had checked it out when it was posted to the group. Just received mine in the mail a couple of days ago, but have yet to try it. Jodi Nat Dean wrote: > > > I tried to go to the internet address for A to B Calm given as : > www.calmag.com and there was no result for that address. Can the person > who posted this please let us know the right address? I was trying to use > the internet to research it instead of paying long distance to learn about > it. I am sorry, but I already deleted the persons message from my mail, so > I don't know who posted it with this address. Thanks. > Nat Dean, Santa Fe, NM > > ------------------------------------------------------------------------ > " Congratulations to 'Voice-Diary,' our latest ONElist of the Week. > http://www.onelist.com > Visit our homepage and share with us how ONElist is changing YOUR life! > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for support purposes > and is not intended to replace the examination, diagnosis and treatment of a licensed > physician and no such claims are inferred. Quote Link to comment Share on other sites More sharing options...
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