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Carolyn,

My feet only become numb if I stand on them in one place for longer than

10 minutes. They just kind of 'freeze' in one place. This has happened

my whole life, since I was about 12. The minute I move around, either

walking or sitting, the numbness leaves. My right foot has always been

weaker and prone to more pain and soreness. I have short, wide feet with

some hammertoes. My feet are not symmetrical, neither is my entire body.

One Dr. once told me I can't possibly have CMT because CMT is always

symmetrical. My entire right side of my body is weaker than the left,

says the physical therapist. I have only had the one foot surgery. I can

move my feet, heels, ankles, but when it comes to toes, like wiggling

them, can't hardly do it at all. Without my shoes and orthotics, I walk

OK, but I walk on my toes, especially when I am tired at the end of the

day. This has pretty much been the way of my life. Although feet got

wider as I got older. I started wearing 1/2 in shoe orthotics maybe in

the 80's, in the 90's went to full ones. Old orthotist died, so had to

fine a new one and he is even better. He said full inshoe orthotics

would benefit me and they do.

I guess all I can say is don't worry abouot progresion. I spent years in

worry and it didn't do much good. Everybody's different and our feet are

different too.

Gretchen

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  • 2 years later...

(9.9) has had that problem too with his feet. Cracking, bleeding, etc.

we assumed from sweating. We constantly made him change his socks and put

hydrocortosone on - sure - try to spell that without looking at 7 in the

morning!

The poor kids cries and walks around like he is crippled from the

pain. Thank God its not my daughter - I would be driving myself off a

cliff!! HE is great about it! He puts medicine on, changes his socks and

tries!

Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!

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This is so wierd b/c Jake has cracked feet and dry toes. I just bought

athlete's foot medicine for it. I thought that was what it was. It seems to

be helping. Also, I notice his hands peel and he picks at the skin. this

makes it worse, and the poor kid comes up to me and says " Boo-boo. " I just

thought it was Jake, and I never brought it up to the doctor. Maybe it's a

defiency in a vitiamin or something. Especially if so many of us have kids

with the same problem. Hmmmm. .. .

Cheryl

Mom to Jake (2 1/2 yrs wcf)

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If these problems are caused by sweaty feet why not

try a deoderant with antipersperant on them? That is

what a doctor had me do when I was a teen. It really

does work.

Dawn mom of 4, 6 and under, the youngest wcf

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