CMT Book Idea!

[Guest guest]

OK, Becky, Rose and anyone else, how about this: write a page of info.

on you and your CMT and send it to me. I will see if I can get a book of

it published, but we are going to need MANY of you to get this done! You

can send it to me via email at liliwigg@..., send in regular email

form, or Word. Maybe some guidelines? 1) the CMT type you have if you

know it 2) how you were diagnosed 3) describe an 'ordinary' day in your

life with CMT 4) and what you would like Drs. to know ( I do think a

positive tone is a good approach to this)

Gretchen

Maxwell wrote:

>

> That works for me! Lets all get started pronto! >Becky M.

>

>

[Guest guest]

I would love to be a part of this! I started having problems about 12 years

ago when I was 16. Since then, my symptoms have become worse but I have

never been able to get a clear diagnosis.

> ----------

> From: Gretchen Glick

> Reply To: CMTUS (AT) e

> Sent: Sunday, April 16, 2000 1:23 PM

> To: CMTUS (AT) e

> Subject: CMT Book Idea!

>

>

>

>

> OK, Becky, Rose and anyone else, how about this: write a page of info.

> on you and your CMT and send it to me. I will see if I can get a book of

> it published, but we are going to need MANY of you to get this done! You

> can send it to me via email at liliwigg@..., send in regular email

> form, or Word. Maybe some guidelines? 1) the CMT type you have if you

> know it 2) how you were diagnosed 3) describe an 'ordinary' day in your

> life with CMT 4) and what you would like Drs. to know ( I do think a

> positive tone is a good approach to this)

>

> Gretchen

>

> Maxwell wrote:

> >

> > That works for me! Lets all get started pronto! >Becky

> M.

> >

> >