Re: Sensitivity to hot air temperatures

[Guest guest]

Dear Kathy,

I live in South Texas where the summers are real hot and HUMID. I notice that

during the heat here, I am more tired. I feel my legs " heavier " if that makes

any sense at all. I feel like I cant catch my breath and I avoid going out at

all. I have to have the air conditioning set at a real cold temp. I have

ofter wondered myself if this affects other CMTers..

[Guest guest]

Kathy,

I am one of those CMTers who is always cold. My feet and hands can turn to

ice cubes. My 9-yr old Katey, however, runs " Hot " just like you describe.

It is her biggest complaint next to pain. She is always talking about

feeling like she is burning up...

Two CMT family members with completely opposite symptoms. No wonder it's so

hard to get a handle on this syndrome.

Ruth

>From: KathyH215@...

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS (AT) onelist (DOT) com

>Subject: Sensitivity to hot air temperatures

>Date: Sun, 05 Mar 2000 23:35:45 -0000

>

>From: KathyH215@...

>

>I'm wondering if my sensitivity to hot air temperatures is at all

>related to CMT. I have run " hot " for as long as I can remember. There

>have been articles written relating to sensitivity to cold temps, but

>not too much is mentioned about the other extreme.

>

>There was one article in the CMT International Newsletter last summer

>(6/99) about " Fun in the Sun " , which mentioned how easily we CMTers

>can sunburn and not really know it because of our impaired

>neuromuscular and " thermoregulation " (heat and sweating

>response)system. Is there anywhere I can read more information about

>this?

>

>I would be interested in hearing from other CMTers who are also

>sensitive to heat. I keep the temperature in my apartment cool which

>also keeps me from getting too hot - especially my legs. Summertime

>can be difficult, especially when it is humid.

>

>

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>

[Guest guest]

Kathy,

I am one of those CMTers who is always cold. My feet and hands can turn to

ice cubes. My 9-yr old Katey, however, runs " Hot " just like you describe.

It is her biggest complaint next to pain. She is always talking about

feeling like she is burning up...

Two CMT family members with completely opposite symptoms. No wonder it's so

hard to get a handle on this syndrome.

Ruth

>From: KathyH215@...

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS (AT) onelist (DOT) com

>Subject: Sensitivity to hot air temperatures

>Date: Sun, 05 Mar 2000 23:35:45 -0000

>

>From: KathyH215@...

>

>I'm wondering if my sensitivity to hot air temperatures is at all

>related to CMT. I have run " hot " for as long as I can remember. There

>have been articles written relating to sensitivity to cold temps, but

>not too much is mentioned about the other extreme.

>

>There was one article in the CMT International Newsletter last summer

>(6/99) about " Fun in the Sun " , which mentioned how easily we CMTers

>can sunburn and not really know it because of our impaired

>neuromuscular and " thermoregulation " (heat and sweating

>response)system. Is there anywhere I can read more information about

>this?

>

>I would be interested in hearing from other CMTers who are also

>sensitive to heat. I keep the temperature in my apartment cool which

>also keeps me from getting too hot - especially my legs. Summertime

>can be difficult, especially when it is humid.

>

>

>------------------------------------------------------------------------

>GET A NEXTCARD VISA, in 30 seconds! Get rates

>as low as 0.0% Intro APR and no hidden fees.

>Apply NOW!

>http://click.egroups.com/1/975/5/_/616793/_/952299357/

>------------------------------------------------------------------------

>

>

[Guest guest]

<< I am one of those CMTers who is always cold. My feet and hands can turn

to ice cubes. My 9-yr old Katey, however, runs " Hot " just like you describe.

It is her biggest complaint next to pain. She is always talking about

feeling like she is burning up... >>

LOL I can relate to both of you. I had a few years of feeling I was burning

up, then I was burning on the outside and freezing on the inside for a couple

of years. Now I'm just freezing on the inside. My mom went thru the same

things. For a few years she slept with her feet outside the covers to cool

them. Then she needed a heating pad for her feet during the night.

I've heard of others who have experienced the same series of changes. I was

able to handle the burning best. By using fans I could be somewhat

comfortable. Nothing helps the freezing.

I do prefer cool to hot weather, however. I wilt if it gets too hot, and high

humidity is even worse. Fortunately, Seattle doesn't have those problems. I

don't know if that has anything to do with CMT or not. It may not.

As you say, trying to pin this syndrome down is a royal pain!

Too many variables.

Kat

[Guest guest]

<< I am one of those CMTers who is always cold. My feet and hands can turn

to ice cubes. My 9-yr old Katey, however, runs " Hot " just like you describe.

It is her biggest complaint next to pain. She is always talking about

feeling like she is burning up... >>

LOL I can relate to both of you. I had a few years of feeling I was burning

up, then I was burning on the outside and freezing on the inside for a couple

of years. Now I'm just freezing on the inside. My mom went thru the same

things. For a few years she slept with her feet outside the covers to cool

them. Then she needed a heating pad for her feet during the night.

I've heard of others who have experienced the same series of changes. I was

able to handle the burning best. By using fans I could be somewhat

comfortable. Nothing helps the freezing.

I do prefer cool to hot weather, however. I wilt if it gets too hot, and high

humidity is even worse. Fortunately, Seattle doesn't have those problems. I

don't know if that has anything to do with CMT or not. It may not.

As you say, trying to pin this syndrome down is a royal pain!

Too many variables.

Kat

[Guest guest]

Hi Kathy, well I am a CMTer who is just about always hot! Even on some

of our cold days here, I am outside in just a lightweight sweatshirt

(yes, this in Calif!) And no humidity factor here. As for being

sensitive to the sun, well, I for one, love the sun, and in the

fall/winter turn pretty paleskinned, but after about a month of various

degreed sunblocks, I can start to get a nice tan June/July/August.

However, if I am not careful, I can get sunburned in the Spring while

just gardening for an hour - and not remembering I need the sunblock.

Gretchen

KathyH215@... wrote:

>

> From: KathyH215@...

>

> I'm wondering if my sensitivity to hot air temperatures is at all

> related to CMT. I have run " hot " for as long as I can remember. There

> have been articles written relating to sensitivity to cold temps, but

> not too much is mentioned about the other extreme.

>

> There was one article in the CMT International Newsletter last summer

> (6/99) about " Fun in the Sun " , which mentioned how easily we CMTers

> can sunburn and not really know it because of our impaired

> neuromuscular and " thermoregulation " (heat and sweating

> response)system. Is there anywhere I can read more information about

> this?

>

> I would be interested in hearing from other CMTers who are also

> sensitive to heat. I keep the temperature in my apartment cool which

> also keeps me from getting too hot - especially my legs. Summertime

> can be difficult, especially when it is humid.

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates

> as low as 0.0% Intro APR and no hidden fees.

> Apply NOW!

> http://click.egroups.com/1/975/5/_/616793/_/952299357/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hi Kathy, well I am a CMTer who is just about always hot! Even on some

of our cold days here, I am outside in just a lightweight sweatshirt

(yes, this in Calif!) And no humidity factor here. As for being

sensitive to the sun, well, I for one, love the sun, and in the

fall/winter turn pretty paleskinned, but after about a month of various

degreed sunblocks, I can start to get a nice tan June/July/August.

However, if I am not careful, I can get sunburned in the Spring while

just gardening for an hour - and not remembering I need the sunblock.

Gretchen

KathyH215@... wrote:

>

> From: KathyH215@...

>

> I'm wondering if my sensitivity to hot air temperatures is at all

> related to CMT. I have run " hot " for as long as I can remember. There

> have been articles written relating to sensitivity to cold temps, but

> not too much is mentioned about the other extreme.

>

> There was one article in the CMT International Newsletter last summer

> (6/99) about " Fun in the Sun " , which mentioned how easily we CMTers

> can sunburn and not really know it because of our impaired

> neuromuscular and " thermoregulation " (heat and sweating

> response)system. Is there anywhere I can read more information about

> this?

>

> I would be interested in hearing from other CMTers who are also

> sensitive to heat. I keep the temperature in my apartment cool which

> also keeps me from getting too hot - especially my legs. Summertime

> can be difficult, especially when it is humid.

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates

> as low as 0.0% Intro APR and no hidden fees.

> Apply NOW!

> http://click.egroups.com/1/975/5/_/616793/_/952299357/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Jeanie here, my thermometer is all messed up with early menopause. But,

during the cooler months (Oct. - May) my legs are like ice cubes. I have to

be very careful if I am outside in the sold to long and it's freezing temp.

out. I can't tell when my legs are tooooo cold. I'm one of those that has

to use a heating pad to thaw my legs so I can goo too sleep, however, once

my legs are finally warm and toasty I can overheat and have to put my feet

outside of the covers to cool down. (We keepp our room cool) (68*).

During the warm to hot months my legs get really hot and swell up horribly.

In a message dated 3/5/00 6:32:33 PM Pacific Standard Time, liliwigg@...

writes:

<<

Hi Kathy, well I am a CMTer who is just about always hot! Even on some

of our cold days here, I am outside in just a lightweight sweatshirt

(yes, this in Calif!) And no humidity factor here. As for being

sensitive to the sun, well, I for one, love the sun, and in the

fall/winter turn pretty paleskinned, but after about a month of various

degreed sunblocks, I can start to get a nice tan June/July/August.

However, if I am not careful, I can get sunburned in the Spring while

just gardening for an hour - and not remembering I need the sunblock.

Gretchen

KathyH215@... wrote:

>

> From: KathyH215@...

>

> I'm wondering if my sensitivity to hot air temperatures is at all

> related to CMT. I have run " hot " for as long as I can remember. There

> have been articles written relating to sensitivity to cold temps, but

> not too much is mentioned about the other extreme.

>

> There was one article in the CMT International Newsletter last summer

> (6/99) about " Fun in the Sun " , which mentioned how easily we CMTers

> can sunburn and not really know it because of our impaired

> neuromuscular and " thermoregulation " (heat and sweating

> response)system. Is there anywhere I can read more information about

> this?

>

> I would be interested in hearing from other CMTers who are also

> sensitive to heat. I keep the temperature in my apartment cool which

> also keeps me from getting too hot - especially my legs. Summertime

> can be difficult, especially when it is humid.

> >>

[Guest guest]

In a message dated 3/8/00 3:56:56 PM Pacific Standard Time,

Moonglow21@... writes:

<< Jeanie here, my thermometer is all messed up with early menopause. But,

during the cooler months (Oct. - May) my legs are like ice cubes. I have to

be very careful if I am outside in the sold to long and it's freezing temp.

out. I can't tell when my legs are tooooo cold. I'm one of those that has

to use a heating pad to thaw my legs so I can goo too sleep, however, once

my legs are finally warm and toasty I can overheat and have to put my feet

outside of the covers to cool down. (We keepp our room cool) (68*).

During the warm to hot months my legs get really hot and swell up horribly.

>>

Just take jeanies name off and add my name. This is just like me.

jenny

[Guest guest]

In a message dated 3/8/00 3:56:56 PM Pacific Standard Time,

Moonglow21@... writes:

<< Jeanie here, my thermometer is all messed up with early menopause. But,

during the cooler months (Oct. - May) my legs are like ice cubes. I have to

be very careful if I am outside in the sold to long and it's freezing temp.

out. I can't tell when my legs are tooooo cold. I'm one of those that has

to use a heating pad to thaw my legs so I can goo too sleep, however, once

my legs are finally warm and toasty I can overheat and have to put my feet

outside of the covers to cool down. (We keepp our room cool) (68*).

During the warm to hot months my legs get really hot and swell up horribly.

>>

Just take jeanies name off and add my name. This is just like me.

jenny

[Guest guest]

In a message dated 3/8/00 3:56:56 PM Pacific Standard Time,

Moonglow21@... writes:

<< Jeanie here, my thermometer is all messed up with early menopause. But,

during the cooler months (Oct. - May) my legs are like ice cubes. I have to

be very careful if I am outside in the sold to long and it's freezing temp.

out. I can't tell when my legs are tooooo cold. I'm one of those that has

to use a heating pad to thaw my legs so I can goo too sleep, however, once

my legs are finally warm and toasty I can overheat and have to put my feet

outside of the covers to cool down. (We keepp our room cool) (68*).

During the warm to hot months my legs get really hot and swell up horribly.

>>

Just take jeanies name off and add my name. This is just like me.

jenny